I've noticed the more I use my muscles, the weaker I get. In the mornings I'm stiff and then it seems to get a bit better as I move around. But then after that short period of being fairly limber, the more I use my muscles I just get weaker. I could kneel down to talk to a child (I teach) and when I stand up the muscle in my left leg especially, is so weak like it's rubber. It's almost a painful stiffness/weakness. I could start blow drying my hair and after a minute or two my left arm is so weak I can't hold it up anymore.
Anyone else get like this? On some days it feels like it takes all of my strength just to walk through the house ( I have a small home) and my left leg will get so weak it will buckle on me.
Thanks ahead of time for your input. I would love to hear how your muscles affect you.
Yes I have this problem. It's frustrating! My neuro just shrugs and says ms when I mention it. He did tell though that strengthening exercises wouldn't help as it has something to do with nerve conduction.
Yes this happens to me too. Just like today I was outside sitting on a chair pulling weeds and every time I stood up it was a lot of work. I even get the shakes in my legs so much so it looks like I am failing at dancing. I find that if I start noticing this happening I take a break and relax for 30 mins or so and then try to get back to what I was doing. So my day ends up like do an hour of work, rest for 30 mins, work another hour, rest, etc.
Being a teacher I am sure you cannot get many breaks but try to take as many as you can whenever you can and it might help you out.
Me, too. If I take a break, I recover some and can go on for a while, but as I repeat these cycles, the length of my recovery shortens until I just have to give it up.
I think this is called "central motor fatigue." One neuro says it's "related to activity-dependent conduction block in axons that are either demyelinated or inadequately remyelinated. This causes a reduced safety factor of conduction that fails with exercise or a rise in body temperature."
So it's not really the muscles, but rather the nerves that signal the muscles that cause the problem. If they've been damaged by MS, they send weaker signals to begin with and then wear out quickly. This leads to reduced speed and size of the electrical impulse to the muscles. At least that's how I understand it.
I used to tell my doctor that I get tired. One day he raised his hand above his head and then after 20 seconds or so he let it drop. He asked if that was what I meant. I was so excited that all I had to do was say "yes,yes,yes".
He said that was not tiredness or weakness but was fatiguability and had to do with nerve conduction to the muscles.
It might not be good to have it, but it was good to know that at least one person on this planet knew what I was feeling.
Another yes from me, and i think you'll find almost all of us here experience this to some degree. This was and still is the one thing that i cant get my head around, oh i understand the why's of it but still i try for a different out come than the one I keep getting lol. I've been the sporty athletic type all my life, pushing through is soooo stuck in my head space, literally drummed into me as a gymnast that I still forget my reality.
In the last year or so DH has really taken to gym work outs, cardo, weight lifting, resistence etc and all the foods necessary to build muscle and its taken about that amount of time for him to get that 'we' are 'not' normal. It doesn't matter what the 'normal rules' are, they just dont work and often if you try to apply those 'rules' the result is just the opposite.
I'd not experienced anything like it prior to my big bang in 09, but i was aware something was going on though nothing in comparrison to what happens to me today. If i try to push through now, the muscle spasms and tremors go epic on me, grrrrr. When the muscle weakness takes over, I can get to the point were my body suddenly stops working on me, if i'm wakeboarding when it happens, i fold up like an acordian literally a boneless (wet) noodle lol.
It all comes down to understanding your limits and balancing that through out your day. Stretching, eating well and strengthening those muscles by limiting your repititions ruetine to shorter but multiple times or mini sets, is better than one work out because with mini sets, you wont usually get to your weakness point yet.
yes oh yes am i with you on this !!!!!
its my main complaint that my muscles get tired so easily i cant do things that i once could because of it.
its so frustrating cos nothing helps to stop it i just have to take rests in between tasks ie,start stop start stop start . lol
it efects all my muscles especialy ams, n legs
hang in there
Yeah, you really can't exercise to make those muscles stronger. You'll just get tired and weak, and it'll take a while to recover. I discovered this in physical therapy - I just got really sore and tired.
This has been my biggest problem. I get muscle fatigue and weakness very quickly. I find that it gets worse if I overdue it. When that happens, I usually just need to sit for a long time and I can hardly walk. I'm very committed to stretching and excersizing. I try to work out in small increments so my muscles don't tire out. My problem is that sometimes I feel fine so I just keep going and then all of a sudden, the weakness hits hard and fast and I'm totally worn out. I really need to pace myself, but as you know, it's very frustrating!
I know exactly what you're talking about. I am having the same issue. The longer I walk the slower I get and feels like it takes so much energy to move. Almost like I'm walking in quick sand. When I sit down and rest I'm stiff when I first get up; the first few steps are ok but I get progressively worse.
I'm now starting to get it in my arms/hands. I type all day so you can imagine what a joy this is going to bring!!
I too have experienced this quite often and since my R leg is more stiff then the other the more I use it the heavier it gets and after awhile stairs or standing too long causes my legs to tremor.:(
This is one reason I had stopped teaching this year besides other issues and surgeries(sinus,cyst and hysterectomy).
I wish they're was a med for this!
Well, I just keep hoping and praying.:)
Also, I've been lifting you in prayer with all that you have going on.
I am not diagnosed but waiting around for answers. I am terrible with limb tiredness and weakness. Blow drying hair any physical demands on my left leg and arm make them ache and tired. It's really wierd and I like some others used to be so active I am 33, but only a couple of years ago I was playing badminton ice skating etc and enjoyed keeping fit. I was also a gymnast as a child and well into my teens. Now if I try badminton or other stuff after a couple of minutes my legs can't keep me up I fall over they shake along with my arms because I have been using them, it really is awful, even typing this my left arm is resting on my leg it always needs support when using the computer. But I definately know what you mean about blow drying hair!! Its a real nuisance.
This morning I was reminded of a good example of this in real time. In the morning, I do some stretches. In one, I lie on my back with my legs straight and try to point my toes toward my nose. When I do this, after a bit my feet ever so gradually start slipping downwards, despite my ongoing intention of pushing up. This didn't used to happen and doing this everyday doesn't seem to build up my ability to do this exercise.
OMG.....i couldnt beleive what i read what luvnGod wrote, i thought i was going mad....i had a MRI scans on my brain to see if i have MS and it came back negative, in 2008. WHO in the world can tell us why are our muscles weak? Its driving me crazy....i diagnosed myself with Fibromyalgia after going to my G.P for two years and not getting anywhere, so i looked at the symptoms and found a answer which was Fibromyalgia. My Dr asked me if ive been on the internet and what did i come up with...lol...lol..he agreed lol..!!
This is exactly the question I was looking for. I can't do the least little things anymore without wearing out, Brushing my teeth, making cookies or any cooking, folding laundry. It seems that anything I have to do with my arms does me in and kind of raises my heart rate a little. I also have Graves Disease and some other autoimmune diseases. Thanks for this post.
It is so good to hear that others are having this problem and I'm not the only one. I don't mean, I'm glad others are having this problem too, but that it is more common than I personally thought. I go to my Neuro today to get the results of all the blood tests and MRI. He was trying to narrow the results. He has been considering MS for a while, which turned out to be Lyme Disease, and now we will see. Thank you for your posts.
I am soooo glad to see that some one has the same problem as I.
My family doesn't understand what I'm going through ! They think I am just wanting attentiom Not so I always done all that a women does for her family and more You have said what I have felt for years As much as it hurt and no matter how week my legs got I still walked !
But now I can't do it anymore I get so I feel like I can't move my leg is getting weaker .Still trying to find a Dr. that will help me God knows I have many of them God bless you for saying what I have been trying to describe my pain and weekness
Please God help us all find somthing for this pain and weekness So we can go on living a normal life
Well, that depends so much on the individual. There are things to try, though. Ampyra helps a lot of people. Anything that relieves symptoms so that the person functions better is bound to produce a more energized feeling, and in the practical world, will let us accomplish more.
Even if the seemingly weak muscles can't be strengthened, sometimes the surrounding muscles can be trained to take over some of the work. Otherwise they too get exhausted and we feel wiped out in general. That's why being as physically fit as possible is so helpful in MS.
Not so easy, and I'm a prime example of that, but I'm working on improving. It's never going to be like it was, but if I can achieve more endurance I can maximize the abilities I do have and gain a more functional life. Some people's illness has progressed beyond this point but I don't think mine has yet.
I see my neuro in a couple of weeks and plan to ask for Amypyra.
Wow, I'm suddenly not feeling so alone! I have had right sided weakness for 5 mo thinking it was due to the herniated cervical disc that needs to be fused. Then last month I woke up fully paralyzed in all limbs. That lasted for 18 days, and little by littles improved to where I could care for myself again.
Spinal tap & labs are normal but two areas of the brain are odd. Anyway, I'm having the hearing & vision evoked potential tests this week to definitively diagnosed with MS. if its normal, the Dr said its not MS. I asked how can a 40 yr old wake up paralyzed? If I lay in one position, my limbs will no longer work. I can feel it if you touch them, but I cannot make the muscles move. My hubby will reposition them, and I can then move some of the muscles. It's weird! And yes, the more I use my muscles, the weaker I get. It's frustrating! I've been stuck in bed for 7 weeks weeks and fed up! Thanks for the post!!
Hi. A caution here--- Normal evoked potentials do NOT mean you don't have MS. Where do doctors get this stuff? If nerves affecting vision and hearing have not been subjected to demyelination, your tests will be normal. If they have (it's a crapshoot), they won't.
There are specific criteria for diagnosing MS, known as the McDonald criteria, and none of them mention eyes or ears. If you are not being seen by a true MS specialist, you should be. And get more info about the two areas of the brain that are 'odd.' Your doctor is not confidence-inspiring.
I really didn't understand what was going on. One day I'm fine the next I was tired just doing light work. The fatigue in legs is worrying me , I'm a fire fighter and might have to put medical papers in soon. Used walking stick today to feed horses. To be honest I'm scared. I will check site regularly to see how others are doing and coping.
thanks for your question, i was beginning to think I'm imagining all of this! Every time I mention this weakness, I'm told that I need to exercise more; the more I do, the weaker and sicker I feel!
After years of searching for answers, I finally found this site and feel like I'm not alone. Almost 7 years ago, I had 4 stents in my heart, only 47 at the time, and almost immediately I became so weak that my husband pushed me in a wheel chair or helped me when I got too weak to walk. I have thought it was the statin drug that damaged my muscles but all the tests have come back normal. As the years have continued, I continue to get weaker and weaker. Doesn't help that my blood pressure is 90/54 I found out. I can not exercise at all, run, play with my grand kids much, or do much that would use my muscles more than walking. If I do, I hurt so bad, especially at night and can't sleep. My whole body hurts and it feels like every muscle aches like the flu. I move very slow and need to just do nothing the day or two after. As time goes on, I am getting worse and am terrified that I will end up in a wheel chair. I am lucky that I have a wonderful understanding husband. I am afraid to have tests as I have heard insurance is really bad once a person is diagnosed if it is MS.
MANY years ago I had some type of brain scan and they said I had what could be signs of MS but nothing more ws ever done. My cousin has MS but no one else in our family.
It's very reassuring to know I am not the only one with the muscle weakness and pain. It makes it easier to deal with.
Thank you all for your posts.
This is my first time here. I was diagnosed with MS in 1994. I am so happy to find this forum! I have been desperately searching for answers to explain the weakness described here. The more I do, the harder I try, the weaker I get. :(
This is the first time since the onset of this weakness in 2013 that I haven't felt alone.
I posted on Reddit last year asking anyone if they experienced what I call "crumpling." I found no one. I thought I was going crazy. I could not, until now, find anyone else who experienced what I was experiencing.
I see my neurologist in August and will definitely ask about nerve conductivity after reading about here.
Best to all,
You are definitely not alone.........the more you do, the harder you push your self the weaker you will get with MS, the key is finding your balance and understanding just how much you can do 'before' you run out of umpf :D and you start crumbling.
Why don't you introduce your self to the community, which you can do by going to the top of your screen and clicking on the green 'ask a question' box
Thank you! This rapid onset weakness with rapid recovery (10-30 minutes) is new for me. It's frustrating and scary. I was diagnosed with MS at 24 and am now 45 and 2013 was the first "crumpling" I experienced. In the past 2 years since it started I've desperately sought answers and to find a schedule, if you will, for triggers. There seems to be no consistency to it.
One day I can do 20 mins on recumbent bike, 10 mins on treadmill, go grocery shopping and the next day something as simple as walking to the mailbox has me crumpling to the ground unable to move. The past 2 years have been a roller coaster of frustration.
Thank you for the welcome. I will see if I can figure out the "ask a question" tip. :)
My weakness is in my legs and it is directly related to core temperature. If my core temp remains down my legs are OK. The minute my temp starts to tick up, my legs start to go to s*it. If I sit and cool down, my legs start to behave themselves.
When I was first dx'd I asked my doc If overdoing it would hasten the progression of my MS. He said no. He told me that my MS would make recvery time much longer. I wonder if this is similar to your day after big activity drop off.
My neurologist did touch on the topic of heat and recommended cooling towels which I use. I haven't noticed an improvement but keep using them.
It's just so odd. Something as simple as making a sandwich and I start to crumple. Not over exerted, not over heated, just weak... randomly.
I also spoke with my neuro, primary and physical therapist about pushing myself and all had the same response, that pushing myself when weak wasn't a bad thing. So... I push. Sometimes pushing the vacuum around while on my hands and knees, pulling clothes out of the dryer and folding them on my knees, blow drying my hair while on my knees.
I should have been better mentally and emotionally prepared for changes. I was an expert in my MS for over 20 years and was really jolted by these changes as they were uncharacteristic and new for me.
Hi there, the poster Eric12 has not posted since 2012......Fampyra is available in Europe, including the UK, for people with MS who have problems with walking. It is available in the USA under the name ‘Ampyra’......I hope this helps
I see that these posts are several years old so I don't now if anyone checks them. However, when I read your comments I said "that's me" and felt a sense of relief that I wasn't losing my mind. My doc keeps referring to my pain, which I don't have. Instead it just feels as if one day my left leg is going to stop working. Walking is so labored and difficult and I can't ever seem to judge how far I can go. I am starting PT next week but all the doc can say is that it "might" help. I am wondering how you made out and if you have a diagnosis / prognosis.
Community Leaders try to check all new responses to the old posts that come back up :D
If your doc is a general doc it's possible he's not the right doc to help you, what you believe the problem to be is medically 'suggestive' of reconditioning, associated with a pre-existing medical issue etc etc.....Your PT assessment next week will probably really help nut down what the problem is and point towards potential diagnosis's...
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