Muscles get weaker the more I use them. Anyone relate?

[luvnGod]

I've noticed the more I use my muscles, the weaker I get.  In the mornings I'm stiff and then it seems to get a bit better as I move around.  But then after that short period of being fairly limber, the more I use my muscles I just get weaker.  I could kneel down to talk to a child (I teach) and when I stand up the muscle in my left leg especially, is so weak like it's rubber.  It's almost a painful stiffness/weakness. I could start blow drying my hair and after a minute or two my left arm is so weak I can't hold it up anymore.

Anyone else get like this?  On some days it feels like it takes all of my strength just to walk through the house ( I have a small home) and my left leg will get so weak it will buckle on me.

Thanks ahead of time for your input.  I would love to hear how your muscles affect you.
Blessings
Stacie

[kwarendorf]

My weakness is in my legs and it is directly related to core temperature. If my core temp remains down my legs are OK. The minute my temp starts to tick up, my legs start to go to s*it. If I sit and cool down, my legs start to behave themselves.

When I was first dx'd I asked my doc If overdoing it would hasten the progression of my MS. He said no. He told me that my MS would make recvery time much longer. I wonder if this is similar to your day after big activity drop off.

Kyle

[j0dy]

Hi JJ!
Thank you!  This rapid onset weakness with rapid recovery (10-30 minutes) is new for me.  It's frustrating and scary.  I was diagnosed with MS at 24 and am now 45 and 2013 was the first "crumpling" I experienced.   In the past 2 years since it started I've desperately sought answers and to find a schedule, if you will, for triggers.  There seems to be no consistency to it.
One day I can do 20 mins on recumbent bike, 10 mins on treadmill, go grocery shopping and the next day something as simple as walking to the mailbox has me crumpling to the ground unable to move.  The past 2 years have been a roller coaster of frustration.
Thank you for the welcome.  I will see if I can figure out the "ask a question" tip.  :)
Jody

[supermum_ms]

Hi Jody and welcome to our little MS community,

You are definitely not alone.........the more you do, the harder you push your self the weaker you will get with MS, the key is finding your balance and understanding just how much you can do 'before' you run out of umpf :D and you start crumbling.

Why don't you introduce your self to the community, which you can do by going to the top of your screen and clicking on the green 'ask a question' box

Cheers......JJ

[j0dy]

Hello Everyone!
This is my first time here.  I was diagnosed with MS in 1994.  I am so happy to find this forum!  I have been desperately searching for answers to explain the weakness described here.  The more I do, the harder I try, the weaker I get. :(
This is the first time since the onset of this weakness in 2013 that I haven't felt alone.
I posted on Reddit last year asking anyone if they experienced what I call "crumpling."  I found no one.  I thought I was going crazy. I could not, until now, find anyone else who experienced what I was experiencing.  
I see my neurologist in August and will definitely ask about nerve conductivity after reading about here.
Best to all,
Jody

[Rumplestiltzkin]

Ok...I  have MS and what this lady talked about sounds a lot like that...It takes a long time to get a DZ, but one has to hang in there...

[unekme]

After years of searching for answers, I finally found this site and feel like I'm not alone.  Almost 7 years ago, I had 4 stents in my heart, only 47 at the time, and almost immediately I became so weak that my husband pushed me in a wheel chair or helped me when I got too weak to walk.  I have thought it was the statin drug that damaged my muscles but all the tests have come back normal.  As the years have continued, I continue to get weaker and weaker.  Doesn't help that my blood pressure is 90/54 I found out.  I can not exercise at all, run, play with my grand kids much, or do much that would use my muscles more than walking.  If I do, I hurt so bad, especially at night and can't sleep.  My whole body hurts and it feels like every muscle aches like the flu.  I move very slow and need to just do nothing the day or two after.  As time goes on, I am getting worse and am terrified that I will end up in a wheel chair.  I am lucky that I have a wonderful understanding husband.  I am afraid to have tests as I have heard insurance is really bad once a person is diagnosed if it is MS.
MANY years ago I had some type of brain scan and they said I had what could be signs of MS but nothing more ws ever done.  My cousin has MS but no one else in our family.
It's very reassuring to know I am not the only one with the muscle weakness and pain.  It makes it easier to deal with.  
Thank you all for your posts.

Lisa