Hello,
I'm E. Thanks for the above commentary. First useful thing I've been able to find. Is anyone still on this list? Most of the comments are very old.
I have coldness (I found this list searching "very cold legs")--I have Lyme; don't think I have MS. It's always worse in cold weather. My husband can feel it, though I think not as intensely as I do. Long ago it was in my butt, mostly noticed at night. After a few years that wasn't so bad. A few years ago it was in one of my wrists, then the next winter both, but neither as bad. They aren't really a problem now, except that I can't wear bracelets any more unless they are a non-chilling material (like cloth)--otherwise they make the bones ache. For the last 4 - 5 years, it's been in parts of my legs. Left is worse than right, and the areas that get cold follow nerve innervation areas perfectly, but the neurologist said it "wasn't neurological". I don't think I believe him. Fortunately, external heat does help (husband, heating pad, etc.) Does anyone else find it's always worst at night? And when I've been on my computer (no matter in what position or location).
In the mean time, I've had other weird symptoms that no one can explain (e.g., started doing pelvic floor exercises for a mild prolapse, find they make me incredibly light headed when I stand up), most of which focus around in my abdomen. I've had all kinds of diagnostics run: MRIs, Ultra sounds, nerve conduction testing, colonoscopy, leg blood pressures--and not much shows up.
Sure would love to find someone who can tell me what's actually going on, but having read through the comment list above, I am back to suspecting it's neuro-Lyme or at least neuro some kind of infection.
Last night I felt ice cold in my legs even with 3 blankets...just couldn't get warm. Haven't had that happen in a long time. Usually my feet are cold, but this was extreme. Don't remember I became warm again. I guess I fell asleep. I was dx'd w/MS in 1995!
Hi KL -
Quix pops in from time to time but is not a regular visitor to the forum. She has take a step back to focus on her 3D life.
Why not Post A Question and introduce yourself. We're pretty nice :-)
Kyle
I have that cold feeling in my left calf, but it's not cold. I at first thought my leg was wet. Not so. Also, sometimes I can't stand how cold and painful my feet are, and yet they are not cold. I put on socks, rub them and they hurt and are cold. I have never been diagnosed with MS. I am guessing I need to have a long talk with my doc and see if she can help me. I hate this feeling. I do have Fibromyalgia, but never was this issue a problem when I was diagnosed. This just started about 2 months ago. HELP....I feel like I'm nuts!!!
I am amazed to find so many w such simulator issues...my lower calf ake from a sensation of like bags of ice sitting on them for no reason..... i have not been diagnosed w ms but do have low thyroid and other unexplained things.....i am really not crazy
I ran across this today and it is funny because one of my new parasthesias is at the back of my head near the crown and it feels like cold water is being poured over head, however it doesn't happen at times when I really need it to like a hot flash....