NEUROLOGICAL EXAM

[young at heart]

WENT TO THE CLEVELAND CLINIC TODAY FOR A 2 YEAR FOLLOW-UP WITH DR.K AT THE CLEVELAND CLINIC,THE SAME DR. THAT YORKIE AND PENN HAS SEEN.

I HAVE TO SAY THAT HER NEUROLOGICAL TESTING WAS VERY THOUROUGH.IT TOOK ABOUT AN HOUR AND 15 MINUTES.

SHE COULD OF KEPT HER SAFETY PIN TO HERSELF THOUGH,NEVER HAD A NEURO DO IT DOWN THE SPINE.LEFT SIDE HURT LIKE THE DICKENS,RIGHT SIDE DIDN'T EVEN KNEW SHE DONE IT.

SHE WASN'T HAPPY WITH THE DOWN HILL PROGRESSION,ALL ON THE RIGHT SIDE.

SHE STATED THE ON WAS FULLY INFLAMED,WHICH I'VE KNOWN,BUT TRYING TO LET IT HEAL ITSELF. AFTER SHE BLINDED ME WITH HER LIGHT,SHE WANTED ME TO FOLLOW HER FINGERS WITH MINE,I GOT TO LAUGHING ,I ASK HER WHICH FINGER,THERE WAS 3 OF THEM.I HAD DOUBLE VISION GOING IN,BUT AFTER HER LIGHT,IT WAS TRIPLE.

SHE WOULD TELL ME TO MOVE MY FEET INWARDS OR OUTWARDS,BUT MY BRAIN WOULD DO THE OPPOSITE,SHE FINALLY ASK ME TO REPEAT WHAT SHE WAS TELLING ME TO DO,WELL EVEN REPEATING WHAT SHE WAS TELLING ME TO DO,I WAS DOING THE OPPOSITE. SHE FINALLY ASK ME IF I HAD COGNITIVE ISSUES AND I TOLD HER YES,BUT WHEN I GO TO MOVE MY LEGS,ITS LIKE THE LEGS DON'T RESPOND,NOR DOES THE RIGHT HAND.

THE TUNING FORK DIDN'T GO WELL,SHE PUT IT ON MY FOREHEAD AND BREAST BONE AND ASK WHAT SIDE I FELT IT THE STRONGEST,I TOLD HER THE RIGHT AND SHE FINALLY ASK WAS I HEARING IT OR FEELING IT.,SHE DONE IT 3 TIMES.I EXPLAINED ,IT WAS MORELESS HEARING IT AS HIGH PITCHED NOISES BOTHER MY EARS.(HAVE NO CLUE WHAT THIS TEST DOES)

WE WENT THROUGH THE STRENGTH TEST,WALKING WITHOUT THE LEG BRACES WAS A TRIP (LITERALLY)AND SHE SAID WE WOULDN'T DO THE HEEL TO TOE WALK ,PUSHING UP ON THE TOES,OR A BALANCE TEST AS SHE ALREADY KNEW THE ANSWERS.

SHE WENT THROUGH ALL THE MOTOR SKILLS TESTING,SHE WAS NOT HAPPY WITH THE RIGHT SIDE.

I FORGOT TO TAKE MY MRI FILMS WITH ME,THEY PREFER FILMS NOT THE CD'S.SO I GOTTA GET THEM AND MAIL THEM TO HER.SHE IS GONNA SCHEDULE ME FOR A SERIES OF MRI'S THERE T3 OF THE THORACIC AND C-SPINE AND THEY HAVE A T5 MACHINE (STUDY PURPOSES)THAT SHE WOULD LIKE TO DO THE BRAIN.SHE SAID MOST FACILITIES USE 5MM SLICES AND SHE WANTS THEM 3 MM AND 1MM OF THE BRAIN STEM.

SHE SAID MS WAS NOT HER SPECIALITY AND THAT I WOULD FAIR BETTER AT THE MELLON MS INSTITUTE AND SHE HAS THE RIGHT SPECIALIST IN MIND.BUT WOULD LIKE TO GET THE MRI'S DONE FIRST AND THEN MAKE THE APPOINTMENT AT THE MELLON INSTITUTE.BUT HAVE ALL OF IT DONE IN ONE DAY..

SHE DID CALL AND TALKED TO A DR AT THE MS INSTITUTE ABOUT MY MEDS AND AT THIS POINT ,TO STAY ON ALL OF THEM.

IT WAS A PRODUCTIVE DAY BUT WITH THE DRIVE AND THE EXAM I'M WHIPPED.YOU WOULDN'T THINK THE EXAM WOULD OF WHIPPED ME,BUT GEEZ.BUT VERY PLEASED SHE WAS VERY THOUROUGH.WISH ALL NEURO'S TOOK THIS TIME WITH THEIR PATIENTS.

T-LYNN

[tmjfibro]

THANKS FOR THE ADVICE .IT WAS GREATLY APPRECIATED.I THINK  I
SUFFER FROM WHITE COAT SYNDROME .MY MIND GOES BLANK AND
I  FORGET ALL THE QUESTIONS THAT I WANTED ANSWERS TO

MY D/H IS COMING TO THIS NEURO VISIT ,SO I WILL WRITE ALL MY
QUESTIONS DOWN  AND GIVE HIM THE LIST AS I SEEM TO HAVE
BRAIN FOG

SORRY YOU ARE FEELING SORE


SHEILA

[young at heart]

TO THE ONES SEEING A NEURO FOR THE FIRST TIME,PLEASE MAKE SURE THEY DO A FULL NEUROLOGICAL EXAM.

SO MANY DO A VERY VAGUE EXAM AND THEN THEY SEND THE PATIENT OUT THE DOOR , MAKE SURE YOU GET YOUR MONEY'S WORTH.

REMEMBER THIS NEURO IS WORKING FOR YOU.

ASK QUESTIONS AND LOTS OF THEM,PLEASE DON'T GET WHAT THEY CALL WHITE COAT SYNDROME.

IF YOU DON'T ASK QUESTIONS,LEAVING A NEURO'S OFFICE FRUSTRATED CAN BE VERY UPSETTING IF THE NEURO IS DISMISSIVE.

MANY NEURO'S CAN BE JERKS,BUT BE VERY UPFRONT,ASK THE NEURO TO WORK WITH YOU TO FINDING THE ETOLOGY OF YOUR SYMPTOMS.

A NEUROLOGICAL EXAM SHOULD BE AT LEAST A HALF HOUR OR SO.THE NEUROLOGIST I SEEN YESTERDAY IS AWESOME,JUST WISH SHE WAS A NEURO FOR MS,BUT WAS HONEST AND STATED IT WAS NOT HER EXPERTISE AND THE MELLON INSTITUTE IS WHERE I NEEDED TO BE.

I LOVE HER HONESTY,BUT DIDN'T LIKE HER SAFTEY PIN,LITTLE SORE TODAY FROM HER POKING ME,GOOD THING THE RIGHT SIDE IS NUMB NOW.

REMEMBER NEURO'S ARE HUMAN TO,EVEN THOUGH SOME FEEL THEY ARE ABOVE THAT HUMANITY STANDARD,BUT FOR THE BAD NEURO'S THERE ARE GOOD ONES.

ASK LOTS OF QUESTIONS,RIGHT THE QUESTIONS DOWN,TAKE A LIST OF SYMPTOMS.BELEIVE ME YOU WILL FORGET,NO MATTER HOW PREPARED YOU,TAKE THESE WITH YOU.

GOODLUCK WITH YOUR NEURO'S

T

[tmjfibro]

THANK YOU FOR POSTING WHAT A REAL NEURO EXAM SHOULD BE LIKE
I  HAVE MY FIRST APPOINTMENT WITH NEURO ON FRIDAY AND WAS
WORRYING ABOUT WHAT TEST TO EXPECT

SO SORRY TO HEAR ABOUT THE ON  AND PROGRESSION OF THE OTHER
SYMPTONS


SENDING SOFT HUGS  SHEILA

[tmjfibro]

THANK YOU FOR POSTING WHAT A REAL NEURO EXAM SHOULD BE LIKE
I  HAVE MY FIRST APPOINTMENT WITH NEURO ON FRIDAY AND WAS
WORRYING ABOUT WHAT TEST TO EXPECT

SO SORRY TO HEAR ABOUT THE ON  AND PROGRESSION OF THE OTHER
SYMPTONS


SENDING SOFT HUGS  SHEILA

[spastic]

Thank you for posting what a real examination should go like. I'm sorry to hear of the progression. I have my first appt on Monday and was very curious as to what to expect.  My last neuro exam probably didn't even last ten minutes and that was several years ago!  Thank you T-Lynne!

Big Hugs,

Spazie Ada

[young at heart]

I DIDN'T REALIZE THAT I HAD THAT MANY NEUROLOGICAL POINTS IN MY BODY,THE ONLY THING WE DIDN'T DO WAS THE HOKEY-POKEY.

BUT I DEFINATELY GOT MY MONIES WORTH ON THIS EXAM.

I KNOW SOME OF THE TEST SHE REPEATED LATER IN THE EXAM.

WE DIDN'T DO MUCH WALKING AS I WAS DEALING WITH DOUBLE VISION.

I WAS REALY IMPRESSED WITH THE EXAM,

FOR ANY OF YA THAT ARE GOING TO A NEURO AND THE NEURO DOES A SUB-STANDARD EXAM,ASK WHY?

WHEN DR. K. WAS DOING MY NEURO EXAM I ASK QUESTIONS ALL THE WAY THROUGH,I NEEDED TO KNOW,SHE PROBABLY THOUGHT I WAS A PAIN.

I REALLY WANTED TO KNOW ABOUT THE MS PROGRESSION,BUT SHE WAS REALLY CLOSED MOUTH AND JUST STATED WAIT AND SEE.

SHE JUST POKED ME TO DEATH,THE LEAST SHE COULD OF DONE WAS  SAY YEA OR NEY

T

[kitten o]

I AM GLAD YOU HAVE A GOOD NEURO.DR.
IT IS NOT THAT OFFEN YOU FIND ONE SO
GOOD. I AM SORRY FOR YOUR ON. HOPE IT GETS BETTER.
HAVE A GOOD NITE, YOU MUST BE POOPED.
KITT

[Quixotic1]

THANKS FOR SHARING THAT.  I SAID A LONG TIME AGO THAT A GOOD EXAM SHOULD TAKE AT LEAST 30 MINUTES, BUT I MADE THAT NUMBER UP.  IT SEEMS LIKE MY NEURO TAKES MUCH LONGER THAN THAT.

YES, IT IS CERTAINLY EXHAUSTING!  WHEN MY NEURO DOES THE MUSCLE STRENGTH PART HE TESTS 18 MUSCLE GROUPS ON EACH SIDE!!  36 TESTS IN ALL.  AND HE MAKES ME DO IT OVER AND OVER TIL HE IS SURE HE UNDERSTANDS WHETHER IT IS EFFORT ON MY PART OR REAL WEAKNESS.

HE ALSO WATCHES MY GAIT TWICE.  AND HE TIMES ME WALKING A CERTAIN DISTANCE AT EACH VISIT, MAKING A NOTE OF WHICH SHOES I'M WEARING AND WHETHER I HAVE MY BRACE ON.

SO FOR THOSE OF YOU THAT WONDER IF YOUR NEURO IS REALLY CHECKING YOU OUT FOR THAT "EXTENSIVE CONSULTATION" THAT HE IS BILLING FOR - COMPARE T-LYNN'S AND MY EXPERIENCE WITH YOURS.

QUIX