I have persistent, severe nerve pain. It's left-side burning, electric-like pain, mostly from shoulder down left arm, but can be on face, head, hip, leg. Also deep stabbing pain around left shoulder blade and under left ribs. Sometimes it's a 10+. Ranges from 4 to 10.
Dx with RRMS in '97, very active 10+ years after, but on disability since 2008. Take Rebif, on brk from Tysabri. Have taken Lyrica + Tramadol to prevent pain since late 2008, it helped, but now the pain burns through even the max. dose.
I have an appointment with my neuro next week. What new medication or treatments should I talk to him about to stop the pain?
steroid infusions have helped me with TN and occipital neuralgia. I take lyrica (300 mg) and gabapentin (900 mg) both, with percocet for breakthrough pain. I'm also exploring acupuncture as a treatment, though this is very new.
My biggest problem with the anti-seizure drugs is that I feel like my body acclimates to them pretty quickly, so I'm constantly upping the dosage.
Sorry to hear about your pain. I know how you feel.
What has helped me with nerve pain are Gabapentin and Cymbalta. When I first started with the meds, I had some succesws with Gabapentin and Elavil. I also take oxycodone. I'm sure there are others that your Dr. can try. Good luck.
Sorry to hear about your pain. It is terrible when you flare-up with this kind of pain. I hope you can get it under control. My neuro did tell me that Lyrica is great and 6 times stronger than Neurontin.
I have been on Neurontin for about 6 years now. For myself of late, I have had what I think to be occipital neuralgia flares, which is also very painful. It seems like there is a small component of the TN pain, but it is different of late.
Like Steph74 had stated, I wish that I could get my neuro onboard for steroid infusions. This pain we all have like this is difficult to say the least.
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