Aa
Neuro #4 Sounds Like a Keeper
I am so happy right now! Let me first say....I can not thank you guys enough for all the support & prayers you've given me. OK...I'll stop with the mushy stuff.
I went to see neuro #4 and I believe she is a keeper. Finally!!! She took a long history from me and asked me many questions. I went through and told her my concerns and how autoimmune disease run in the family. She took notes and would make comments about everything. She told me that my GP was worried about the MS symptoms that I was having. My new neuro said even though she is not a specialist, she has DX MS many times and that when she took her residency she worked closely with a MS doctor and studied more than your average neuro. Thank God!
My husband told her about my shaky legs and she said that was very important. She didn't even brush it off like the other neuros. She popped off and said ..OH That's Clonus. Then she started her exam...
I was a little upset at the fact that I didn't feel like I had symptoms right now and here I am coming to her explaining I have this, I have that but nothing to show for it. But guess what?...I was wrong! She looked into my eyes and said...Do you realize that your left eye is droopy? UH? I didn't even know! She showed my husband. He said he saw what she was talking about but didn't even notice. She had me hold out my arms. She said...You have a tremor. She asked me if I did that a lot. I said that it has occurred for more than a year but only when I reach for things not when I'm doing nothing. My reflexes I think were good but when it came to walking heel to toe, I looked like I was drunk. I couldn't get up on my toes either.
After the exam..She said that...You have a lot of MS symptoms and we need to find more evidence because your MRI isn't enough. Quix...I told her that a family friend who is a doctor thought that my MRI should be done on a better machine (3T) than the open MRI that I had it done on. She said..yes those machines (open MRIs) aren't good enough to see MS lesions. She also said that my old neuro wasn't giving them all my test results. She wants my LP because she said if it is positive she could DX but if it's negative, we would have to find more evidence to DX MS and my old doctor isn't sending them.
Plan of action is..a c-spine MRI to see if that questionably lesion is there, VEP, BAER, and new blood work to test for all MS mimics, and to get my LP results to see if there was any banding. So there you go. She said that she will figure all this out but until I get another positive result she can't DX. So I'm going to have more test and hopefully she will figure this all out.
She almost quoted everything I've read on this forum. I just kept nodding my head like I've never heard it before. It was great to finally meet a doctor who doesn't contradict things you've read.
THANKS YOU AGAIN
{{{HUGS}}} to all
I went to see neuro #4 and I believe she is a keeper. Finally!!! She took a long history from me and asked me many questions. I went through and told her my concerns and how autoimmune disease run in the family. She took notes and would make comments about everything. She told me that my GP was worried about the MS symptoms that I was having. My new neuro said even though she is not a specialist, she has DX MS many times and that when she took her residency she worked closely with a MS doctor and studied more than your average neuro. Thank God!
My husband told her about my shaky legs and she said that was very important. She didn't even brush it off like the other neuros. She popped off and said ..OH That's Clonus. Then she started her exam...
I was a little upset at the fact that I didn't feel like I had symptoms right now and here I am coming to her explaining I have this, I have that but nothing to show for it. But guess what?...I was wrong! She looked into my eyes and said...Do you realize that your left eye is droopy? UH? I didn't even know! She showed my husband. He said he saw what she was talking about but didn't even notice. She had me hold out my arms. She said...You have a tremor. She asked me if I did that a lot. I said that it has occurred for more than a year but only when I reach for things not when I'm doing nothing. My reflexes I think were good but when it came to walking heel to toe, I looked like I was drunk. I couldn't get up on my toes either.
After the exam..She said that...You have a lot of MS symptoms and we need to find more evidence because your MRI isn't enough. Quix...I told her that a family friend who is a doctor thought that my MRI should be done on a better machine (3T) than the open MRI that I had it done on. She said..yes those machines (open MRIs) aren't good enough to see MS lesions. She also said that my old neuro wasn't giving them all my test results. She wants my LP because she said if it is positive she could DX but if it's negative, we would have to find more evidence to DX MS and my old doctor isn't sending them.
Plan of action is..a c-spine MRI to see if that questionably lesion is there, VEP, BAER, and new blood work to test for all MS mimics, and to get my LP results to see if there was any banding. So there you go. She said that she will figure all this out but until I get another positive result she can't DX. So I'm going to have more test and hopefully she will figure this all out.
She almost quoted everything I've read on this forum. I just kept nodding my head like I've never heard it before. It was great to finally meet a doctor who doesn't contradict things you've read.
THANKS YOU AGAIN
{{{HUGS}}} to all
Slightly-B,
WOW! WOW - This is great! You must of had a good nights rest after this. I wish this kind of care for everyone. Such good news. Very happy for you.....
Hope the tests are ordered soon, must keep this train steaming ahead!
Shelly
WOW! WOW - This is great! You must of had a good nights rest after this. I wish this kind of care for everyone. Such good news. Very happy for you.....
Hope the tests are ordered soon, must keep this train steaming ahead!
Shelly
I am so happy for you...apparently 4th time is a charm; my new neuro is a keeper and my 4th as well! I will include you in my prayers of thanks for the day. Congratulations again!!!
The forum's on a roll!
Penn
The forum's on a roll!
Penn
CONGRATULATIONS!!!!!!!!!!!!!!!!!!!!!!!!!!!! This is good news, and yes she does sound like a KEEPER!!!!!!!!! Wow, I am impressed just by your description of the exam. What a difference a good neuro makes!!! I see neuro # 3 on the 29th and I am hoping that I will be as happy as you after I see him. I will be watching for your update!!
~Santana~
~Santana~
Wow! Yes, that is exactly what we need and expect of a good neurologist! I am sosooooooooo happy for you. She listened, looked and thought hard. This is wonderful! This is what being believed and given credence feels like.
I understand that she feels she needs a little more of the puzzle in order to diagnose. That's fair. When she gets the new batch of answers, if she can't diagnose, but still feels strongly that this is MS (clearly she feels that way now), then you can have the discussion with her about the "decision to treat." Treating is a different issue from the making the "Definite" diagnosis.
You handled all of this very well. I'm proud of you. I'm also very proud that this forum is consistently giving out good information. You're the second one this week who has validated what we say. D*mn, we good!
And, way to go about slipping in the couched "request" for imaging on a better machine. She now knows you have someone in touch with you who knows more. I don't really think she needed that push, but it can't hurt.
Honey, you've made my day!
Quix
I understand that she feels she needs a little more of the puzzle in order to diagnose. That's fair. When she gets the new batch of answers, if she can't diagnose, but still feels strongly that this is MS (clearly she feels that way now), then you can have the discussion with her about the "decision to treat." Treating is a different issue from the making the "Definite" diagnosis.
You handled all of this very well. I'm proud of you. I'm also very proud that this forum is consistently giving out good information. You're the second one this week who has validated what we say. D*mn, we good!
And, way to go about slipping in the couched "request" for imaging on a better machine. She now knows you have someone in touch with you who knows more. I don't really think she needed that push, but it can't hurt.
Honey, you've made my day!
Quix
Thanks guys for the support! Just think I was going to give up and through in the towel back in April. If it wasn't for my family, my GP, and my forum family, I would have. I can't thank you guys enough.
They should be calling within a few days about when I can have the test. The blood work I can get done anytime. My neuro said the blood work could take a couple of weeks. I have to go back in 3 weeks for a follow up.
They should be calling within a few days about when I can have the test. The blood work I can get done anytime. My neuro said the blood work could take a couple of weeks. I have to go back in 3 weeks for a follow up.
Wow...this is good news! Do you know when you will be having all the testing done? Soon let's hope!
She sounds very attentive and SHE saw something you did not know about! This is GOOD!
Keep us posted!
(((HUGS)))
Wanna :o)
She sounds very attentive and SHE saw something you did not know about! This is GOOD!
Keep us posted!
(((HUGS)))
Wanna :o)
Hey there, my friend!!
I am over here jumping up and down for you! (OK, I'm really not...but try and picture it anyway! LOL)
It's great to hear that this Neuro is a KEEPER! It's about time you found someone that will listen and believe.....
Way to go!! I am so happy for you!
HUGS!
Tammy :)
I am over here jumping up and down for you! (OK, I'm really not...but try and picture it anyway! LOL)
It's great to hear that this Neuro is a KEEPER! It's about time you found someone that will listen and believe.....
Way to go!! I am so happy for you!
HUGS!
Tammy :)
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