Neurocardiogenic Syncope

[tonyad]

  I was wondering if any one can tell me if NeuroCardiogenic Syncope is in fact an
Autonomuc Dysfunction and if Autonomic Dysfunction is the same a Dysautonomia?
I have read and read and re-read so much but am still quite confused.

  Yhanks in advance for any info on this.
~Tonya

[tonyad]

Lu;
  Well, I am not sure it is what you would call Angina?  It is like a hot feeling (warm), sensation in neck and kinda on sides of neck, and at times a hot sensation will run up the side of neck in to my ears then back down...Very WEIRD!...if that makes any sense. I took some Acid Reducer just in case that is what it is.....I have had this feeling a couple of times in the recent past but do not know what to thi9nk about it?
   You know, that's the thing when you have any kind of heart conditions.....you never know when and if you should seek medical help or wait until the next day and call doctor.

Quix;
    I am going to agree with you in your statement about Autonomic Dysfunction being related to MS more than once was thought. I'm excited to hear what your Neuro is going to say about this!  Will be waiting for your updates on" Autonomic Dysfunctions and MS"

Thank You,
~Tonya

[Quixotic1]

After three years here and hearing hundreds of people describe their problems, I had begun to suspect that problems with the Autonomic Nervous System are more frequent in MS than our doctors admit.

When you look in the literature for cases linking Autonomic Dysfunction with MS, it is easy to fine case reports (usually just of one or a few people), but most of the literature does not include it.  However, we put this very question to the MS Expert via Lulu at her meeting with him.  He gave her a vague indication that Autonomic Dysfunction was VERY common.  She - and we - are still awaiting his formal answers to that and our other questions.

There are other things that I suspect are similar and that are not widely accepted as caused by MS.  One is movement disorders, other than RLS and tremors, including myoclonic jerks, dyskinesias, and such.  People with these manifestations always seem to get the "no" about MS and sent to the Movement Disorder people and never seem to get a diagnosis of that either.

I am going to put these questions - one at a time - to my neuro and see what he says.

Quix

[Lulu54]

T - I had this problem when I was in my late 20's.  There were several times I went down with little warning - I can still remember that out of body feeling.  Fortunately I have skipped the tilt test but know of its horrors.  


What really caught my attn in your last post though we the angina feeling in your throat.  That is exactly what sent me to the hospital and I then went into a heart attack.  Do not ignore that feeling - if it persists, please seek help.  It may be nothing, but  then again why take the chance?  

Stick with the cardio and get answers because it is a higher priority than the MS.  

my heartfelt best,

Lu

[tonyad]

  Hi ladies  :)
Thanks for jumping in once again. Much appreciated.  

   Yes, the Electro doc told me to drink at least one gatoraide daily and plenty of water (smart water is even better), increase salt intake, wearing compression stockings, stay out of heat, no hot showers/baths (which I do not do anyhow), and told me no driving until he thought this was under control.

   I guess what is happening is the vessels are dilating and not consrticting when they should to keep B/P at bay thus causing blood to pool in legs and away from heart and other organs in body causing a severe drop in B/P.  This can occur at anytime, no matter what you are doing ?

  According to the DINET web site, NCS is a form of dysautonomia. It's my understanding that dysautonomia frequently occurs "secondarily" to other primary diseases, so in my case it seems very likely that the dysautonomia would be related
to MS.
   He did prescribe me some meds and this is day 2 taking it. I do not know if I am going to be able to take it or not as I am feeling really weird and kinda like an Angina feeling in throat/neck area.......*****!   I am going to give him a call in the morning before I take
next dose.

Shell:
Thanks for the welcome back and I am sorry that your daughter has to deal w/ this
"Hell" as it is and can be life altering. But you already know that.

Udkas:
I am also sorry that your daughter is dealing with this.

Take Care,
~Tonya



  

[Udkas]

I checked this is what my daughter has too, she was originally told she was not allowed to drive because she had no warning when it was coming on but if she has been on her feet for a long time she goes and has a drink or sits for a bit.  She is managing it better now and her work give her more breaks so she doesn't faint as much, she used to faint when she had been standing for a long time.

She was on some type of med for it but as far as I know now she doesn't take anything.

Udkas

[sllowe]

Hi there,

My daughter has neurocardiogenetic syncope.

I've found the easiest way to think of it in terms of happenings is while most of us stand up are our heart and brain behaves in good order. If you have this condition you experience an "improper response" between the two. i.e., instead of rising BP to stand w/out an episode the BP drops down and then you drop, literally. Blood travels quicker between the heart and brain when you are laying down.

While the fainting is not so dangerous, the fall is! So glad you are with a ElectroPhysio Tonya! They are cardiologists and experts in electrophysio and pacing.

Though you must already know this, just wanted to add my 2 cents. Been dealing w/it for a long time....it's a condition that is near and dear to my heart.

Do you know the drill w/balancing food, water, food, salt, triggers, safety precautions, etc?

Very nice to have you back with us!
-shell

[Udkas]

Hi there,
I think that is what my daughter has, I will have to ask her, apparently her brain doesn't send the messages to her heart and she faints and then it re starts, she had a very positive tilt test.

She was fainting up to 4 times a day, would vomit after the episodes etc., originally she was told she would never be allowed to drive a car etc. but she does because these episodes only happen when she has been standing but the heart doctor said it was a brain problem not a heat problem.  I get confused but my daughter has a medical background/training so she understands it.

Not much fun

Udkas

[tonyad]

  Hey there. Thanks for the response.
Yes I have syncope at times and near syncope at other times
and then your diizzy/ vertigo. I had a Tilt test done last year and they (ElectroPhysiologist) said I had Inappropriate Sinus Tachycardia.  Well from all the reading I have done and my hx both my Cardio and myself did not agree w/ this
dx.

  So she referred me to a new Elector doc here in town and I had the Tilt Test done
yesterday. Let me remind or add that I have a hx of LOW b/p. I mean LOW!
So of course they got what the test intends to accomplish (and that is to pass out)
and I was out like a light. I really hate that feeling of Passing out!
B/P dropped to low 50's / to low 30's and Heart rate bottomed out at around low 40's.
Let me tell you I Felt Like ****!!!!!!

   He said when I came to and after giving me 2 bags of IV fluids w/in a 15 - 20 min period,
That I do not have IST but rather Neurocardiogenic Syncope.  So with that being said, since it is an Autonomic/Dysautonomia Dysfunction, could it be somehow related to MS?  Or.......is it just another gift from "Hell?" (lol)

   I know we can not blame everything on MS....but I do know that with some people w/ MS it is not uncommon for them to also some type of Autonomic Dysfunction.
I guess I am just wondering and curious and trying to learn more everyday.

Take Care,
~ Tonya

[Lulu54]

To Tonya, Yes, Autonomic Dysfunction is the same as Dysautonomia.  wouldn't it be nice if they would just pick one name and stick to that ??  :-)

Answers d ot co m has a good page on this at
http://www.answers.com/topic/autonomic-dysfunction

If I'm thinking right, and it is late and I'm tired so I may be wrong, everything cardio is autonomic. The heart is one big muscle and it is a key muscle controlled by our autonomic system. I'm not the medical guru here, so that's about all I can add.  I'm sure someone will let me know if I'm off base with this.

Have you experienced this type of syncope (fainting) that is associated with neural signals going haywire?  

Be well,
Lulu