New Neuro, Steriod Infusion? Help!!!!

[Zacksmomi]

Hi all!
I have been gone a while....working WWWAAAYYYY TTTOOO MUCH! I miss my computer and especially all of you.  I went to see a new Neuro on Tuesday and WOW what a difference.  My first neuro was like "Oh you obviously have MS we will call you to set up your Rebif...see you next time"  I was not impressed.  So I asked my GP for a 2nd opinion.
The new neuro was amazing.  He actually sat down with me and showed me my MRI.  He did all the physical tests I have read about.  He listened to my problems and discussed solutions with me (I almost fell out of my chair and not from balance issues)
So he thinks I have just been having relapse after relapse and the Rebif hasn't kicked in yet. He wants me to do steriod infusion therapy (outpatient) to stop the attacks and hopefully hold me off till the Rebif starts working. (Been on it 2 months) So I have questions about the infusion therapy.  Anyone that can give their experience please do.

He ordered a new brain MRI a new C-spine MRI and a T-spine MRI plus an Evoked Potentials.   So he is going on vacation next week for 3 weeks.  They want all this done B4 he goes.  So Tues I am scheduling my appts with the office lady and we have set up brain MRI wed 845 am (yesterday).  C & T spine Fri 815 am and EVP Fri at 1230pm.  So while we are scheduling this the DR is saying..."When are we gonna start the infusion.?  Lets start it Thursday!"  
So did I mention I have a job and a 4 year old?  Even the office lady was like... "Can you give her till next week to add that to the list?"  
So I am excited to have a Neuro that is taking an active role in my disease.  He is also going to send me to a specialist.  He also gave me a note (per my request) to only work 3 days a week which should make a world of difference.  I am very nervous though about the infusion therapy.  I know when they have given me a steriod injection for injuries in the past I have had really bad pain from them and very little relief.
I am told this is totally different than the type they inject for injuries but I still could use some reinforcement before I totally agree to start this on Monday.
Any advice would be great.

I do hope everyone is well! I will try to check in more often.

D

[sllowe]

Hey there, Stranger!!!!!!!!!!1

Long time, no see!

This is great news from you!!! Wow! What a difference is right - This Dr. knows his stuff.  Knows the Rebif won't have it's full affect yet or protection.  I'm glad too that you are on lighter duty - slowing down, getting the infusions may make all the difference!

Yay! Yay!
Yay! Oh, I already said that..ha/ha...just so very happy for you, truly I am
ttys,
shell

[Wobbly]

Hi... can't help with the Solumedrol IV, I've never had them...not yet Dx... it's hard to start with a new Dr...but sounds like you found one you like..thats great

good luck and take care
wobbly
undx

[cz1970]

Hi there!

I've had the Solumedrol IV and it REALLY HELPED! It leaves you with some unpleasant side effects but SOOOO worth it. The side effects can be insomnia, so ask for Ambien PRN should you need it, heart burn, so pick up some OTC Zantac and a really yucky taste in your mouth while your getting the infusion but Lemon drops or other strong hard candy fixes that right up.

For me, I went from barely walking and so weak to walking on my own after 3 days of infusion. I haven't had a flare since and it's been a year. I was having them back to back like every 3 months. It would take me 4-6wks to recover then BAMM I'd get another one. So.... yes IV Solumedrol is worth it!

GOOD LUCK :)

cz