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739070 tn?1338603402

New parathesia -uncertain if new or related to old issue

I have a new parathesia which has been happening for the past 24 hours. It's a burning/wet (like hot water running down my leg) sensation in my left leg. The left leg weakness is what Dr. L considered a relapse and I have been doing PT for 9 weeks to strengthen that leg and work on balance. I've had great results.  It fact tomorrow is my last session.

So, is the new parathesia part of the left leg relapse or is it considered part of the original relapse even though it didn't show up until today? Although yesterday the left leg was more stubborn that usual and I stumbled as I walked into the PT clinic.

Any thoughts?

Thanks,
Ren
12 Responses
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739070 tn?1338603402
Thank you for your support, it is very much appreciated! BTW, you type very nicely with crossed fingers :-)

So, how are the copaxone shots going? The really do  become just part of your everyday routine and you will soon not even think about it, you'll just do it. It' s part of my bedtime routine and takes less than a minute to accomplish.

Off to take the next dose of 25 pills.....

Ren
Helpful - 0
Avatar universal
Oh no! I am so sorry. Nothing like a trip to a sub pharmacist to elevate stress! Glad you got them (with the help of your great doc)! Hopefully they kick in quick and karate chop those symptoms away! My fingers are crossed!!!!   :-)

-Dee
Helpful - 0
739070 tn?1338603402
Thanks. What a hassle at the drug store!  The computer at the pharmacy would let the pharmacist fill the order. It kept saying "overdose, overdose".

To make matters worse my regular pharmacist was not there and this sub was very uneasy about it. She called my house before I got there to discuss it but I was already on my way.

She then called another pharmacist to see if they had 50mg tablets as she only had 20 mg tabs. That pharmacist told her he wouldn't fill it. In the meantime, I asked her to call my wonderful Dr. L.

He quoted her literature which she was familiar with and then asked to speak to me again to reassure me. I was fine with it after we discussed the BP issues.  He was trying to save me the expense and trouble of daily infusions.

So, I just finished my 1st dose of 25 20 mg tablets. Boy, do they taste nasty. Keep your fingers crossed that this will end what the doc believes is yet another relapse.

Ren
Helpful - 0
Avatar universal
yay! At least he wants to try something. Hope it helps!

-Dee
Helpful - 0
739070 tn?1338603402
I just received a call back from neuro. He's giving me 1000mg of predinsone a day x 3 days (by mouth). He's unsure if it's an exacerbation or a continuation. He wants to see what the steroids do.

Thanks to all for your responses. Guess I'm off to the drug store.
Helpful - 0
Avatar universal
I hope you will call your neuro, if nothing else, to get a better idea of when you should. All of them are different but what mine said is if it lasts more than 24hours it is most likely an attack and he wants me to call. According to the diagnosis criteria for MS, attacks are separated by at least 30 days.

However, I don't know if this is just for diagnosis.....and also, it doesn't say if say you have an attack for 24hrs involving your leg, but 10 days later you get one involving your arm.....is this a new attack, or part of the old one?

So, definitely check with your doc and then you will know for next time. If he thinks your a whiner, he either hasn't explained your situation thoroughly enough, or he's a jerk! Call him! Hope you're better soon!

-Dee
Helpful - 0
Avatar universal
Best wishes with it all, let us know how you get on.  Sounds like you have a great neurologist, must be an added bonus to know you can have him return your calls, even if it is just for your own piece of mind.  

The trouble with MS everybody is so different from the amount of relapses, to their symptoms etc., so nothing is complete text book, always a bit confusing.  That's what I love about this site, the support, reassurance etc. of people who are experiencing similar problems/symptoms etc.

I once told the MS nurse years ago that perhaps MS should stand for "My Symptoms", as everyone's are so different.

I know that some people's symptoms linger for a long time after an attack, making it difficult to know if they are in new relapse or just experiencing stuff from the old one.  Others have clear defined attacks. I guess after time you will understand your body more but be guided by your neurologist.

I can relate to your confusion as I too at the moment am experiencing a lot of leg weakness, my stairs feel like MT Everest, and tongue numbness but I am still wondering if it is just some type of weird migraine.
I am not really diagnosed. (Transverse Myelitis?) well that is what my neuro thinks.

Take care, hope that your symptoms go away soon... maybe too if you are stressed it might be making your symptoms worse.

Udkas.

Helpful - 0
739070 tn?1338603402
Thank you for your responses. Guess I'll call tomorrow.

My neuro is great, when I asked what constitutes a reason to call him, he replied, "Whenever you feel like you need to talk to me just let the message center know you'd like to talk to me and I'll call." And he has, twice since that conversation. That's why I feel like a whiner.

Although after re-reading this post before sending it I realized the cog fog is back again.

Didn't somebody say that you can have a new relapse before the first relapse symptoms have abated? The left leg weakness started at the end of February and the bilateral leg pain soon after. Dr. L did acknowledge that the left leg weakness was a relapse. How long do these blasted relapses last?

Ren

Helpful - 0
Avatar universal
I agree,, contact your neuro. It may not matter whether it's all part and parcel of the same thing, but then again it may.

That might be a good time to have a talk with your neuro in general, about managing your symptoms and two-way communications. My own neuro has his shortcomings, but he unfailingly answers emails promptly. I in turn try to keep these to a minimum.

It's good to work out details as life and MS happens, and to get a feel for what works in your own situation.

ess
Helpful - 0
Avatar universal
I think that the Drs are there to provide us a service.  If you are uncertain about any new symptom I would ring and find out or make a new appointment.

It may be connected to your old problems, but it might well be very important.  Perhaps when you go or ring then you could ask them to specify more as to the guidelines required to go back.

I don't think going back is being a whinger or a whiner, you are dealing with a very serious disease that needs monitoring, it's not like you are going to the Dr for a sniffle.Or the other alternative it to run it past your GP and see if they think you should go to the neuro.  I find my GP is lovely when I am confused but sometimes not that helpful as he knows so little about MS/TM or diseases of the nervous system.

You need to be an advocate for your own health.

I get that feeling that you described too, weird feeling, I am always certain that there is water running down my leg, inside of my leg too, and my left leg as well, but my left leg is the one I have trouble with.  I am not diagnosed but they believe strongly I have lesions in my spinal cord..

Hope you feel well again,
Cheers,
Udkas.
P.S. Keep us posted as we can all learn from this but Hbananas thought her prob was trivial and they wanted to see her.
Helpful - 0
739070 tn?1338603402
Thanks for the response. It just seems trivial to report , although now it's progressed to both legs.

BTW, I believe I was in the group who told you to report it because you were instructions to do so. I haven't been told to report every new symptom and I don't want to seem like a whiner.

Thanks,
Ren
Helpful - 0
359574 tn?1328360424
Everybody advised me to report and let the neuro's office decide its importance.  There's my two cents, keep the change.
Helpful - 0
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