New twist on my trigeminal neuralgia

Yesterday my trigeminal neuralgia flared up.  It's been a while, thank heavens!  It's always been on my upper left jaw area; for years I thought it was a dental issue, even had a unnecessary crown put on years ago.

Anyway, this time the pain isn't limited to it's usual area.  It's still on the left side, but it extends up over my forehead.  I have an area on my scalp that is too painful to touch; I had a hard time getting to sleep last night because of it.

I think I remember Quix saying that TN is usually limited to one nerve distribution, rarely more, and the forehead is a different one.  I guess I could be one of those rare cases; wouldn't be the first time, lol.  

If so, would that point to a new lesion, do you think?  I already sent my neuro's office about my tremors and being so scatter-brained, with no response yet.  Should I send another with this latest revoltin' development?

My Lyrica and Tegretol have it down to a dull roar, but I'm a little loopy and afraid to eat anything that would aggravate things.  I had lukewarm cream of wheat for breakfast.  I'm signed up to attend a round-table discussion and potluck tonight with my MS support group and a speaker from the local MS Society.  I think I'll go, since my roommate is driving me and attending, too.  I hope she remembers what is discussed.  I guess I could take notes.

Kathy

[jensequitur]

Mmmm... cream of wheat...  I always liked it made with milk.

The nerves of the head are coated in myelin, and frequently MS patients have problems with facial symptoms.  Hard to say whether it's a new lesion, or whether the MS is just attacking the trigeminal nerve.

[Fluffysmom]

I apparently have a lesion affecting my trigeminal nerve; my neuro-ophtha noted a lesion on my pons, so that might be the culprit.  I just wonder if it's growing or something.  Like, a new attack.

I sent an e-mail to my neuro's office; I'll see if I get a response.

[elie777]

Hi when I got my trigeminal attack Tegretol help to dull the pain but everytime I try to stop taking it the pain returned.  I was in pain for 9 months.  I wish you the best, this symptom is one of the worst.

[jensequitur]

I thought I saw a lesion on the pons in my MRI, but you know how dangerous that can be, looking at your own MRIs.  

Lesions can be dormant for a while, then enhance.  They look like little white rings on the MRI - scar tissue in the middle, fresh damaged tissue on the outside.

[Quixotic1]

The level of the eye upward is the first branch of the Trigeminal Nerve - CN V1.  It is the least commonly affected branch in the nerve, but it does occur (ie.  it's not rare)

Quix

[steph74]

Unfortunately I have pain in all three branches on the left side and the third branch (lower jaw) on the right.  I know how you feel.

I'm trying a massage therapist tomorrow.  I figure at the very least they can massage the muscles that are tense from the pain.  I'll let you know how it goes, but I don't have high hopes.

Stephanie

[Nancy T]

My face shocks often involve the whole schmeer--above the eye, the cheek/nose, and the upper lip--sometimes also the chin--all at the same time. At least on the left side. The right side is more "selective."

Good luck to all suffering pain from this.

[summerluvr]

My eyebrow and forehead and eye are the part affected.  I don't have MS but I have this trigeminal nerve problem.  I alsoe get  very painful spots on my scalp.  They are very small like someone is sticking a pin into a very distinct spot, and it last for a few seconds then goes.  My eyebrow is the worse trigger point or moving my eye.