Be prepared for the injections hurting when you first get started on Copaxone, but do not have anxiety about it. There are things that the Copaxone nurse will show you that will lessen the pain.
I've been on the medicine daily since March 2008--over 5 years. The medicine has made a difference in my MS progression. Please keep this in mind when starting the treatment and keep with it.
At first, my husband did the injections every day for a year or two. He stopped using the injector and started injecting me manually. He could control how quickly the medicine was injected.
Warming the area helps a great deal. Some people find that an ice pack after the injection helps, too.
For the first few months, the injection site was huge, warm to the touch, and quite red. This lessened gradually over the year. I now have no injection site reactions. I don't have the skin problems that some people have. I take my injections after I take my oral medicines at night, and I never think twice about them--it's just like taking my oral medicines.
Eventually, the medicine will be only 3 times a week in double strength (maybe it is already and I just hadn't found out yet). Hang in there and don't get too anxious.
Copaxone is a great medicine, for me at least! I am certain I would not be walking unless I was on a DMD. I wasn't walking well prior to treatment and a year later was back up on my feet! Both neurologists said it was related to my brain getting a chance to heal by not having the relapses I was getting before.
Hi there. It's kind of traditional to say, 'sorry you're part of the club, but glad you found your way to our clubhouse!'
Most of us start off with the injectables and get used to them pretty quickly! I'm not sure who 'they' are and how much pain you've been given the impression to expect, but it becomes second nature, especially as you'll be doing it every day.
On the off chance you run into some issues, there are loads of searchable answers on this forum that will give you tips on and shared experiences about injecting (see "search this community in the upper right). It's entirely normal to have some anxiety in the run-up to this new reality especially if it comes directly on the heels of 'the biggie' - the diagnosis. But you'll succeed!
There are a lot of medications out there for us with relapsing-remitting MS now, so even if your first one isn't the perfect fit, there will be other options. Glad you're here. It's a great resource for support for the newly diagnosed and the 'old guard' as well!
I'm in the same boat. I got diagnosed last Friday and just got the shots delivered yesterday. I haven't had the appointment with the nurse yet for shot training, but I'm nervous too. Good luck to you, just wanted you to know you aren't alone!
Hi! I started copaxone in January of 2012. I don't think the injections hurt, but I may have a high threshold for pain. I still get inflammation at the injection site on my legs but that's cleared if I take benedryl before I do my injection. I assume copaxone is working since I havent had any symptoms since October 2011 ish...
I got my meds through the mail order pharmacy that services Blue Cross and they shipped it really fast. I waited longest on the appointment with the nurse, which is tomorrow, but still feel like things went fairly fast. Thanks, I hope it works well for you too!
Gorgeous, thanks for some good stories about it. I'll try the benadryl thing if I have a problem. Thanks!
I just wanted to let you know, I met with the nurse and did my first injection today. It went great. I was so nervous about it being painful too because of what I'd heard, like you and it wasn't bad. The injection didn't hurt at all and like a minute or 3 after it burned a little but ice totally helped. I was afraid that like some people it would be so bad that it would put me off of the treatment but it wasn't that bad at all for me. I just thought I'd pass that along, it's not that bad for everyone so try not to be too anxious! The anticipation was totally worse than the actual event. Good luck with yours!
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