Aa
Not sure if MS or what
I really just have some questions. I have dealing with chest pains and heart rhythm issues for the last 8 years and it has just progressively gotten worst. I went in for a cardiac ablation in Jan of this year because the doc said that I had an electrical problem. After they went in nothing happened. During my follow up with the doc he told my husband and I that it looks like I could have an autonomic nervous system disorder but did not do a referral for more testing. I went to my family doc and she did a lot of blood work and found out that I have a vitamin D deficiency. I am wondering how many of you with a MS have a vitamin D deficiency problem? My family doc is now sending me to a neurologist for more testing because of the deficiency and my other symptoms.
Other symptoms include: dizziness, tightness in back, shortness of breath, chest pains, brain fog, tingling in arms and hands mainly when lying down.
There are probably more but I can't remember right now.
Other symptoms include: dizziness, tightness in back, shortness of breath, chest pains, brain fog, tingling in arms and hands mainly when lying down.
There are probably more but I can't remember right now.
Actually, the ablation could not be completed due to the fact the the doc couldn't get the palpitations to happen. I have been seeing a cardiologist for the last 6 years and now I have been told that basically my heart is fine and that the palpitations and chest pains are being caused by something else. Therefore since all cardiology tests are coming back normal my family doc is going the route of a neurologist. My cardiologist mentioned mentioned ANS but my family doc is more concerned about MS so to the neurologist I go.
Thanks for replying.
Kandy
Thanks for replying.
Kandy
Hi there & welcome to the community.
I think that research suggests that one in three people in the population actually have low vitamin d levels so this can happen with or without MS. I was told before my dx of MS that I have some ANS problems but this can be a stand alone dx as well. I think the common term for this is now called "Dysautonomia" which covers a wide variety of ANS problems.
I think it is wise to go to the Neurologist with an open mind & they will probably order some testing such as an MRI, EMG, NCS etc. You have mentioned that your tingling in your arms is mostly whilst lying down which would suggest a different cause than MS. If you get numbness & tingling in MS is really shouldn't matter what position your body is in it is just there regardless.
All of this information is useful to the neurologist so keep a journal of your symptoms including duration, dates & brief explanations of the symptom itself.
If you have ANS problems it's probably a good thing you didn't end up having an ablation because this can cause more problems in Dysautonomia. I know the docs were looking at POTS or postural orthostatic tachycardia syndrome with my heart rate at one stage which is one form of Dysautonomia.
I hope this helps.
Karry.
I think that research suggests that one in three people in the population actually have low vitamin d levels so this can happen with or without MS. I was told before my dx of MS that I have some ANS problems but this can be a stand alone dx as well. I think the common term for this is now called "Dysautonomia" which covers a wide variety of ANS problems.
I think it is wise to go to the Neurologist with an open mind & they will probably order some testing such as an MRI, EMG, NCS etc. You have mentioned that your tingling in your arms is mostly whilst lying down which would suggest a different cause than MS. If you get numbness & tingling in MS is really shouldn't matter what position your body is in it is just there regardless.
All of this information is useful to the neurologist so keep a journal of your symptoms including duration, dates & brief explanations of the symptom itself.
If you have ANS problems it's probably a good thing you didn't end up having an ablation because this can cause more problems in Dysautonomia. I know the docs were looking at POTS or postural orthostatic tachycardia syndrome with my heart rate at one stage which is one form of Dysautonomia.
I hope this helps.
Karry.
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There are studies about the level of Vitamin D in people with MS. I'm participating in two of them, in fact. Low Vitamin D is not used as a diagnostic criterium for MS, its currently a correlation that's being studied.
It sounds like you had a fairly serious cardiac procedure done just a couple of months ago. If you have a history of cardiac issues and arrhythmia, it sounds like many of your symptoms should also be brought up to your cardiologist to exclude the aforementioned potential autonomic issues. I have no idea why your family doctor would be sending you to a neurologist based on the history you've mentioned.