Not to leave those with an MS Diagnosis out....

[Heather3418]

Good Morning Everyone!

I just tried to get an overall count on those that come to our Forum that are still in Limbo Land.  Now I need to get a current idea, how many HAVE a diagnosis of MS.  With our membership growing so quickly, I am afraid that I have lost count.  So maybe you can help me out.

Could you let me know when you were diagnosed?

Example:  Heather- 1995

Thanks all, this will really help me to get a better understanding of how the Forum is made up.  We have 50+ members in the Land of Limbo category.  Now I would like to get an idea of how many that actually have a diagnosis.  Please keep the numbers to ACTUAL diagnosis.

Have a great day all,
Heather

[Lulu54]

that newbie must be me - thanks Jo for bumping this up.

Everyone who didn't read all my posts this week - its official, as of 9/25/08, I have RRMs.  Will start copax as soon as SS folks call me.

BTW - I've decided I'm going to change my name and you're the first to know.  My parents names me Laura, but I'm going to be Lulu from now on.... short story behind that I will post separately.
As always,
Lulu

[debral09]

#23  May 2006  will be starting Copaxone again after having baby 7 months ago!

Debra

[Sam1106]

Sam1106- dx 2006- Rebif

[cjacks]

dx.d   two days ago    7-2-08
         will start Copaxone today   -    July 4th      -       with a bang !

Jo  

[jensequitur]

Jensequitur - Diagnosed March 07, on Copaxone

[wyfrog]

Hey.  
Dx 12/07
Symptoms as early as 2000.
Started on Copaxone for 3 months and then stopped taking due to side effects.
karen

[TLC_31]

I was diagnosed in March 2004 (but symptoms as early as 1994). -- Tim

[Barbie51]

I was dx April 2002.

Barb

[Mand125]

mand125  1994

[grannyhotwheels]

August 2007

PRMS
(Progressive Relapsing Multiple Sclerosis)

(Where the symptoms comes and goes but the nerve damage steadily gets worse)

[thiagirl]

# 13 (I think I am # 13 )   Cindi - Oct 2007- Avonex

It took only a few months to get my Dx but I had problems that dated back to 1992. I became a diabetic in 95 and although I suspected MS I had more on my plate then I was ready for. Sept 2006 I started to limp and noticed a coldness in my left foot that never went away, I decided it was time to get answers so from start to finish it was about 8 months until a was Dx.

[Cosmobirdy]

Rita - Dx Feb. 2008 - on Rebif

[Quixotic1]

Diagnosed 3/07 after idiot neuro kept me in limbo for two years.

RRMS - (5/07) Avonetrix

Birdie - your story of quick and appropriate diagnosis give hope to all.  I cherish your presence, both for what you give and the important knowledge that diagnosis doesn't have to be hard.  

Quix - Dx 03/07 - RRMS - Avonex

[Birdie75]

I agree.  I was wondering and waiting for only a couple of months and that seemed like forever to me.  My heart really goes out to anyone who exists in limboland for a long time.  Or someone like Rena who has a diag but moronic doctors who won't give her meds.  It makes me realize how lucky I am.  Even on the days I don't feel so lucky!  LOL.

[Amyloo]

#11  Amy, diagnosed RRMS 12/07.  "Copaxonator".  (Thats a great word!)  

Birdie, I am like you. I have fibromyaglia but as soon as I ended up in a wheelchair, I had my diagnosis and meds within two months.  (I was in a chair for six weeks and can walk again.)  We were blessed, and now maybe we can help with others that are still hanging on, waiting. The disease stinks but it is definately better knowing.  I can truly feel for all the limbo-ers.  

[Rena705]

#10...not sure if I count, diagnosed in 1993 and 2007 but disease is "inactive"...sorry Heather...yes I am bitter and facetious but I had to put my name down because I have not only been diagnosed once, but TWICE!!  tee hee

Being treated with nothing....

Rena

[shoshin]

#9 shoshin November 2007

[Birdie75]

#8

Diagnosed last month. Currently titrating my way up on Betaseron.

I lurk mostly, and have posted on occasion - mostly selfishly with questions.  

To be completely honest, sometimes I feel guilty posting since I was diagnosed so quickly.  I've seen so many here in limbo that it makes me feel like, in comparison, I didn't "earn my stripes" so to speak. Strange, huh?  As if this diagnosis is a good thing!  LOL.

[LATW]

#7   LA- February 2008
Avonex

[young at heart]

#6   T-LYNN

ACTUALLY DIAGNOSED 1998

REDIAGNOSED JANUARY 2007

SPMS   AND ADHESIVE ARACHNOIDITIS 2008

REBIF

[MCBCON]

I

[doublevision1]

#4 - db1 - Oct 2007 - Rebif

[Deb61]

#3 Deb61.  February 08  Copaxonator

[michael1028]

Mike - NO DX YET

Thank you Heather. I would be interested in your findings.