I have had MS for 4 years I'm having tingling numbness up my left leg is that the calls of a MS attack , can someone help me or explain it to me I am the only person and my family diagnost with MS.
Sorry - so after my brain, c-spine, & t-spine MRIs, I was dx'd with TM in 04/09 and then MS 07/10.
My first symptoms of spasticity & tightness in my left leg with occassional incontinence & numbness/tingling on my left foot started around Dec 08/Jan 09. They initially thought mine was lumbar related and sent me to a neuro-surgeon. He said my discs were fine. I kept having symptoms so my primary referred me to another neuro. Then I had optic neuritis in Feb 09 and again around Aug/Sept 09. And in Jan 10 my left side of my face was numb/tingling for about 10 days.
Supposedly my brain MRI had been fine all along, so the neuro gave me a low risk for MS, too (I think he said about a 15-20% chance). My LP was negative from the one I decided to have in Feb 10.
Since all my symptoms had continued and I was getting new symptoms, I switched over to an MS Ctr and brought my old MRI scans. They found lesions in my brain & black holes that had been on there all along. So...they diagnosed me with RRMS in July 2010.
I hope you figure out what's going on soon.
Kelly
Thank you for your reply and for the welcome to the forum.
When you say "Those sound particularly like neurologic symptoms" does that mean they are related to MS or TM? Or could they be completely something else?
And yes, I will be contacting the neuro to update the symptoms.
Actually my initial symptoms presented in October 2010.
Thank you for your reply...yes I am new to the forum.
I was just recently dx with TM (June 2011). My initial symptoms presented in October 2009 with numbness and tingling from my outer calf to my inner foot, big toe and ball of foot. Went to an ortho dr thinking it was spine related L4 or L5 (have had back issues since a fall in May 2008). An MRI showed a spot at the base of my conus that needed further evaluation...so I had another spinal MRI with contrast. That led to a referral to a neuro who ordered brain, neck and thoracic MRI's with contrast as well as the evoked potentials and LP. That neuro could not make a confirmed dx and referred me for a second opinion. The second neuro (who is awesome) dx me with transverse myelitis and gives me a low percentage for it to become MS.
These newer symptoms do have me concerned. I will follow up with the neuro so that everything is documented.
How long did you have TM before you were dx with MS?
hi and welcome. Those sound particularly like neurologic symptoms - it would not surprise me if the doctor agrees.
Would you consider calling and letting the neuro know that you are experiencing new symptoms? It should be documented as part of your clinical record.
welcome again,
Lulu
Did you have a complete recovery from the transverse myelitis or have you had ongoing symptoms all along since it started? I am one of those ones that initially presented as transverse myelitis with lesions in my spine (about 2 yrs ago), and then I converted to MS. I have all the symptoms that you describe (and more). They say that recovery can take up to 2 yrs if transverse myelitis is what you actually have going on (and not MS). I'm not sure how long you've had TM.
You probably should talk to your neurologist and let them know about the changes that you are experiencing.
Good luck to you,
Kelly