Hi Everyone,
First I just want to say that I appreciate this forum and I almost feel bad to post this since I know that I might not even have an illness, but I am having a really bad day and well, this is where I could think of to turn.
Despite my doctors telling me "not to worry," I am just finding it impossible to carry on normally while waiting to learn what, if anything, is causing my symptoms. What is just really making me feel awful is that my work is being so adversly affected. I don't know if it is a primary or secondary sypmtom, or a little 'o both, but I just can not concentrate and stay focused. Sometimes I think this is due to my symptoms making me uncomforatble, other times I think I am distracted by concerns, but the bottom line is I am feeling so annoyed that I have not found a way to get myself out of this state of low productivity.
I was feeling better for a couple of weeks, but the last several days I've gotten back to feeling almost as bad as I did during my last episode. My face is burning/tingling, and I have paresthesias, twitching, and tightening in my arms/hand legs/feet as well. I also get tingling inside my head, and that is a real concentration buster.
I feel so dissapointed that I can't just will myself to work through this. I know I just need to wait and see. There is not much more that the docs can do for me right now, so I need to just try and be patient and take care of myself. (I had clear MRI's in Feb and go back to my neurologist in July.)
Sorry for the vent, but I really needed it. I was starting to get a bit mistly eyed (embarrassing at work!) but I think I'm under control now.
Does anyone have any tips or advice for how to stay focused through all of this? ("This" for me = symtoms, the unknown, the frustration!)
Thanks!