ON?? or need glasses?

[Wobbly]

Hi everyone, just a question here to see what you think.  I have been having Blurry/double vision for a few years.  I'm Dx with PPMS or SPMS... I have had a few VEP which are normal.. and field vision tests...normal.  

I've had problems lately with my vision and have seen optomotrist, who referred me to an Opthomologist, my Neuro Opthomologist is away for awhile.  So I saw the Optho who first looked at the back of my right eye...(which I had the problem with at the time).. Pain behind the eye and very blurry.  She said the Optic Nerve look off?  and sent me for the tests.

I went back for the results and she said the VEP etc are normal, so you don't have double vision, you need glasses.

I have been to many eye dr and they say my vision is fine and the blurry/double vision is neuro..I do not have blurry vision everyday... it happens every few months.

I told the Optho that the blurry eyes change and the optomotrist can't presc glasses when my vision changes so much,   She said to go back to the optomotrist and get glasses, it could help 30% of the time????

has anyone have this issue?  I'm not sure if I should get glasses and use them when I can and when I get blurry vision again...not where them??   by the way my left eye was the blurry one when I saw her last and said how come your right eye was bad last time??

any ideas?
thanks
wobbly

[Wobbly]

thanks for the answers and I will contact the MS clinic and say I would like to see a Neuro Opthomologist and write things down to communicate better... I also will say it take me a few minutes to get my mind in the right frame to answer the questions...so dn't rush me.

thanks again and I'll keep you updated with this..  I willl not be buying glasses till I get the completed correctly..

I also called the office and asked for copies of all the test results as well as her letter that she will be sending out to everyone.

take care and thanks again
wobbly

[Quixotic1]

I remember reading that the blurriness of optic neuritis cannot be corrected with glasses.  this makes sense, as people are always saying that they went for glasses and the glasses did not help with their blurry vision.

I do agree with sticking with a neuro-ophtho.

Wobbly - IF you can, anytime you - or anyone - feel rushed to answer, try to speak up and request that you not be rushed.  Just say that being rushed to answer a question makes it harder to think and to express yourself.  You don't think as fast nor as clearly as you used to.

Pressuring some to answer quickly is rude and unprofessional.

Quix

[Audrey_M]

I think Jean619 had the best answer so far with seeing a Neuro Opthamologist. A good one should be able to separate eye issues from neuro issues.

Glasses can be very expensive and unless you are confident of the problem/solution, I would not throw several hundred bucks or more out the window.

I wear progressive glasses and have had problems with double vision for several years now. I do have prisms in my scrip, but still suffer from bouts of blurred or double vision. Normal eye exams do not shed any light on this problem. I have had field vision tests (2), but no VEP tests.

My vision problems usually tend to be more with distance (while driving, unable to read signs, lights are double or halo during daylight hours and I have to continually shift my eyes from near to close to keep things in focus). There have been some occasions where my near vision is affected as well, but this is not as common as the distance vision. Amazing how the brain does (or doesn't) work!

For me, there is one definite trigger and that is sudden changes in light intensity. If the sky suddenly darkens with an oncoming storm, it can throw my vision off. Likewise, today there was blindingly bright sunlight and with the trees casting dark shadows, my vision went haywire. Here in New England, I've noticed this happens more in the fall; in the spring when the sun is so bright, the leaves are not out in full bloom on the trees yet.

Good luck finding your answers. I can definitely sympathize.

Audrey

[jean_619]

Are you able to get into see a Neuro Opthomologist now?  I would go to one of those instead of just a general Opthomologist.  My neuro specifically wanted me to see a neuro opthomologist and not just a general one.

I just went to one yesterday who treats all of my neuro's MS patients -- and he knows a lot about MS because that is his main focus.  He was able separate the eye issues from the MS issues to figure out what was going on.  For me, my normal vision isn't poor enough to get glasses and my double vision only happens once every few weeks -- so it wasn't going to be helpful for me to get prism glasses.  Instead I'm going to go back in 6 months for a check up, and in the mean time try to track stress / lack of sleep / etc. to see if there is anything specific that triggers my double vision.  If I can figure that out, then I might not have additional problems.

[Wobbly]

I know exactly how you both feel... but do you think I could explain that to the Optho... no not me.. I wish I could get my husband to speak for me...hahahaha... but then he would know what to say.

I will keep track of this and talk to my Neuro next time I see him and see what he thinks?

thanks
wobbly

[HVAC]

My double vision changes so much glasses do a little but not a great deal. When I am tired or hot it gets worse. Some days I can drive others it is to hard to focus. I really can't predict it. My VEP was off and I have seen all the eye specialists. The Neurologists have said since I was little it is a problem which can't be corrected. I have tried eye patches and they make me sick to oy stomach. Sometimes I wear glasses sometimes I do not. I have never had ON and my Optic nerves are fine.

I also have PPMS and do not know what to tell you. I am not sure if my problem is similar it is hard to say. Different eyes are rolling out at different times. Toady I notice my right eyelid was drooping which is my good side. It is a weird disease.

Alex

[COBOB]

I pretty much gave up on the idea of eye glasses,  My vision changes day to day and I can't seem to get used to new glasses.  I have even used progressives in the past since I can kind of tweak in my vision as needed.  Not sure what would work best for you.  I guess the best thing is to experiment.  Don't spend a fortune for glasses that may not work.  That would be my best advise.

Bob

[Wobbly]

Hi Bob... I use +1.50 reading glasses for the computer and reading.  It helps with that part. I have such a hard time when a Dr says so how have you been doing? I always feel I didn't explain myself like I wanted too.. I feel like I have to hurry and not bother them so much???

when she asked about my double vision... she was so quick with her questions, I got confused and feel like I didn't answer her the way I should have explained it.. if you know what I mean.

I sure felt like I was just wasting her time...she got me out of there quickly and told me get glasses??  Maybe I should go back to the optomotrist and see what they say now?

thanks bob
wobbly

[COBOB]

I bought some of the +2.00 diopter "reading glasses" for about $12.  Much of the time I don't need them, but when I can't see the computer of paperwork they are a godsend.  They won't help with astigmatism, but for near work they are great.  Most of the time, my distance vision is pretty good.  Sometime,  I have issues with road signs.  It is one of those things I just deal with,  I have an abnormal VEP, so there is a certain portion of my poor vision that it neurologically based.

Bob