Obligoclonal bamds

[Mariar15]

So i have a question i was diagnosed with lupus in june i had really strange brain fog dizziness and tingly feelings in my hands and a strange headache i had an mri came back normal they performed a lumbure puncture after i begged them to do it well it came back normal except 4 obligoclonal bands i read stuff on the internet which i should have not im really scared im just hopping someone else has been through something like this

[Mariar15]

Sorry the o bands are only in the csf not the blood

[Mariar15]

Beautiful kids and im scared my life will be cut short i have always been pretty healthy besides smoking cigarettes im in the process of quitting sorry im rambling just nervous

[Mariar15]

Beautiful kids and im scared my life will be cut short i have always been pretty healthy besides smoking cigarettes im in the process of quitting sorry im rambling just nervous

[Mariar15]

Thank you for your respond they are sending me to a ms specialist to rule out ms im just stressed i have had a rough year i had a positive ana and anti dsdna low but positive i just feel like i was giving a death sentence im trying so hard to be positive i have 4 beau

[ConfirmedRachel]

Hi Maria

Glad to see you've already posted to this forum already. My other post to you recommended adding any other tests or symptoms leading to the LP etc which might help people help you with suggested answers.

Chin up!
Nx

[HVAC]

Hi Maria
Do you have 4 bands only in the csf serum or in both the csf and blood serum? What is scaring you? Lupus is one of the illnesses that has o bands. When I had 12 o bands they then tested me for Lupus. I only had bands in the csf and not the blood. I tested positive for ANA but negative to the anti DNA. If the anti DNA was positive they go towards Lupus.

If you are worried you have MS and Lupus because of the o bands I would not worry. If you are worried because of your symptoms. MS and Lupus share many of the same symptoms. That is why they check those going through the MS diagnosis process for Lupus. I had absolutely no symptoms or signs of Lupus but they checked me anyway.

The amount of o bands means little. They are like tree rings. Once you get them they never go away. In my case with 12 and a lifetime of documented neurological damage they said 12 o bands just showed I had had MS a long time. Many illnesses have o bands. Many people with MS have 0 o bands.

Alex