Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum. ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
Our Patient-to-Patient MS Forum is where you can communicate with other people who share your interest in Multiple Sclerosis. This forum is not monitored by medical professionals.
When I lay down at night to sleep, my right leg twitches/jerks. Like I am kicking a soccer goal! It is just my right leg - the rest of my body is still and not affected. (I've tried to duplicate it but I can't) My body just does that.
Any one else experiece anything similar?
I'm a limbolander. I've been around this site for over a year.
Hi Jules
I've had twitches/jerks since 05. I tried to explain problem to my Thyroid consultant and GP but they just fobbed me off and looked at me as if I'd just landed from Mars!
When these twitches and jerks happen {in bed or just sat down) I feel like a puppet. Like something else is controlling my limbs and not me. It's really wierd!.
Still trying to find out what causing this problem
I'm a limbolander too. New to this site. HELP! HELP! does anybody know?
Hope we find the answer. OllyOil x
This looks like what I experience too - it's from Wikipedia:
MyoclonusRestless leg syndrome (pronounced /maɪˈɒklənəs/) is brief, involuntary twitching of a muscle or a group of muscles. It describes a medical sign and, generally, is not a diagnosis of a disease. The myoclonic twitches are usually caused by sudden muscle contractions; they also can result from brief lapses of contraction. Contractions are called positive myoclonus; relaxations are called negative myoclonus. The most common time for people to encounter them is while falling asleep (hypnic jerk), but myoclonic jerks are also a sign of a number of neurological disorders. Hiccups are also a kind of myoclonic jerk specifically affecting the diaphragm. Also when a spasm is caused by another person it is known as a "provoked spasm".
Myoclonic jerks may occur alone or in sequence, in a pattern or without pattern. They may occur infrequently or many times each minute. Most often, myoclonus is one of several signs in a wide variety of nervous system disorders such as multiple sclerosis, Parkinson's disease, Alzheimer's disease, Subacute sclerosing panencephalitis and Creutzfeldt-Jakob disease (CJD) and some forms of epilepsy.
In almost all instances in which myoclonus is caused by Central Nervous System (CNS) disease it is preceded by other symptoms; for instance, in CJD it is generally a late-stage clinical feature that appears after the patient has already started to exhibit gross neurological deficits.
Anatomically, myoclonus may originate from lesions of the cortex, subcortex or spinal cord. The presence of myoclonus above the foramen magnum effectively excludes spinal myoclonus, but further localisation relies on further investigation with electromyography (EMG) and electroencephalography (EEG).
I have that too, but it is an entirely different sensation. Restless legs is more of a constant need to shake, move or stretch. These jerks (at least for me) are as simple as they sound, and my shoulder or hip simply move on their own will, not mine. It's weird.
That is the best description of what I experience just about every night. The information from Wikipedia is a great description. One that I can understand and relate to. Finally - information I understand. Yeah.
My limbs move a lot, especially my feet, i didnt find out until i had a sleep study. Its not RLS, that would keep me awake. I do know they move when i am awake. Now I am told my eyes do the same thing, i didnt know that.
I've had twitches/jerks since 05. I tried to explain problem to my Thyroid consultant and GP but they just fobbed me off and looked at me as if I'd just landed from Mars!
When these twitches and jerks happen {in bed or just sat down) I feel like a puppet. Like something else is controlling my limbs and not me. It's really wierd!.
Still trying to find out what causing this problem
I'm a limbolander too. New to this site. HELP! HELP! does anybody know?
Hope we find the answer. OllyOil x
I started experiencing this a year ago. It's especially bad in the mornings, in bed. I'll wake up, and decide to start getting out of bed. When I first start to move my right leg, it'll start jerking back and forth rhythmically. As soon as I stop trying to move the leg, it'll stop.
Myoclonus (pronounced /maɪˈɒklənəs/) is brief, involuntary twitching of a muscle or a group of muscles. It describes a medical sign and, generally, is not a diagnosis of a disease. The myoclonic twitches are usually caused by sudden muscle contractions; they also can result from brief lapses of contraction. Contractions are called positive myoclonus; relaxations are called negative myoclonus. The most common time for people to encounter them is while falling asleep (hypnic jerk), but myoclonic jerks are also a sign of a number of neurological disorders. Hiccups are also a kind of myoclonic jerk specifically affecting the diaphragm. Also when a spasm is caused by another person it is known as a "provoked spasm".
Myoclonic jerks may occur alone or in sequence, in a pattern or without pattern. They may occur infrequently or many times each minute. Most often, myoclonus is one of several signs in a wide variety of nervous system disorders such as multiple sclerosis, Parkinson's disease, Alzheimer's disease, Subacute sclerosing panencephalitis and Creutzfeldt-Jakob disease (CJD) and some forms of epilepsy.
In almost all instances in which myoclonus is caused by Central Nervous System (CNS) disease it is preceded by other symptoms; for instance, in CJD it is generally a late-stage clinical feature that appears after the patient has already started to exhibit gross neurological deficits.
Anatomically, myoclonus may originate from lesions of the cortex, subcortex or spinal cord. The presence of myoclonus above the foramen magnum effectively excludes spinal myoclonus, but further localisation relies on further investigation with electromyography (EMG) and electroencephalography (EEG).
ess
That is the best description of what I experience just about every night. The information from Wikipedia is a great description. One that I can understand and relate to. Finally - information I understand. Yeah.
I think my mind does the same..lol
i am exhausted....off to bed for me.
hugs, meg