I cannot understand that children are not on the priority list for the vaccine here in the UK.
When these lists were first being talked about I know that children were going to be a priority, I have no idea why this changed It seems quite ridiculous to me, I, as I said, will be having the vaccine but it doesn't feel good to know that I will be protected and my grandchildren will not. The only way I can look at it is that I will be one less person for them to risk catching it from.
Mand
Yes, I think they are off-base.
It is true that the vast majority of people (including children) who get the flu recover completely. However here are the numbers for the US pediatric deaths (85) since the beginning of this flu season on Sept. 1st.
In the last week alone there have been 15 pediatric deaths.
98% of all reports of typed flu being reported are from H1N1
There have been 124 pediatric deaths from H1N1 since its appearance last summer.
There have been 85 US pediatric (0-18 years) deaths in the last 10 weeks. (Note that about 13 of these were Influenza A, but the subtype was not determined. Since 98% of known flu inflections currently are H1N1, then problably all the 10 were also).
< 2 yrs - 12
2 - 4 yrs - 9
5 - 11 yrs - 30
12 - 17 yrs - 34
This shows a fairly balanced risk among the age groups, except that the numbers are shockingly high for the 5 - 17 group, who do not usually suffer this kind of death rate from the typical yearly flu.
The flu - all types - remain sensitive to the typical anti-viral meds.
I don't have the deaths in the other age groups. They are not reported as quickly as the pediatric ones. The number for this flu season (September 1 to October 31), was about 675.
Again I should point out that the numbers of people who have had the flu are in the many millions. The flu level continues at an epidemic rate.
Quix
Hi shell
I have double checked an NHS website and this is the info I have come up with.
"While children are disproportionately affected by swine flu, the majority make a full recovery. Therefore the experts do not advise that children (other than those in at-risk groups) should be vaccinated initially"
Doesn't make a lot of sense to me, hopefully they will re-think and add children to the priority list.
Cheers
Mand
Hey Mand,
In the states, 24 and under are the priority. Not sure what guidelines they are following in the UK, but definitely check into it for the granchildren unless they are above that.
Proud of your decision, I'm sure it was hard. Hope your relapse continues to improve.
-shell
Thank you for all the information.
I have decided to phone my GP on Monday to arrange to get it. I was having doubts, it was a completely personal thing, to with being vegetarian, however after lots of soul searching I have decided to go ahead.
One of my daughters and all of my Grandchildren are not on the priority list and will not be offered the vaccine any time soon. My other daughter is on that list and has made her appointment for next week.
It would be wrong of me not to get the vaccine when I have the chance to and risk catching the flu and passing it on to any of my family.
I also have been going through the "Mother of all relapses" and am now starting to recover, on a purely selfish note I do not want to go through that again if it is caused by something that I could have avoided.
Thanks again Quix, Lulu et al for all the good advice.
Mand
I am appalled that an "expert" of any kind, medical or non-medical, would advise someone to pass on the H1N1 vaccine "if they 'felt' they could survive the actual infection." What?? I'm sure that the 25 year old athlete that Portland lost on Wednesday and the young police officer that Lu mentioned would have scoffed at the thought that the flu might kill them.
Using your own judgment about how well you think you would fare with this flu as the reason for not vaccinating??? That's as brainless as saying "I don't think I could ever get cancer. I think I will play with benzene or dioxin."
Quix
today I asked three MS experts - two neuros and one MS nurse - about the vaccines for MS patients. It was not only unanimous, but also emphatic from all three that MS patients should have the seasonal and the H1N1 vaccines UNLESS there is some other underlying condition that would dictate otherwise.
Their reasoning is what quix said above - getting either variety of the flu would likely cause the mother of all relapses because of the fever and fighting the germs. That relapse could very well cause new PERMANENT disabilities among us.
It is interesting how the MS neuros have conflicting opinions - for me I would rather not risk any more damage. I will take the H1N1 when it becomes available and I have already had my seasonal vaccine.
Meaganj, I hope that you are well now. So sorry you encountered this nasty bug.
BTW, the latest H1N1 death close to me was a 38 year old healthy Police officer. First responders (police and medical folks) are in that first wave of people eligible for the vaccine, but there has to be vaccine available. Here's hoping the production glitches will be corrected soon.
my best,
Lulu
I would definitely suggest anyone that is at higher risk for complications get the H1N1 vaccine and the regular flu vaccine I got the swine flu earlier this fall and while it wasn't any different than any other flu i've had in my life, I had a fever of over 100 for 8 days which raised my body temp and started me into a relapse. No Fun!!!
M
This is actually Quix on my sister's computer.
It seems that some of us have reasons to believe that we will be harmed by this vaccine. If we are advised by our doctors that it is not a good idea, then we should respect that. If we believe that we would be far better off getting the infection over receiving the vaccine and nothing will change that - then discussion is moot.
Plateletgal - If you believe that this vaccine is likely to harm you permanently, then by all means give it a pass and take your chances with the infection itself. I really don't think that anyone here will work to convince you otherwise.
For those of you that are still seeking information, not having a preconceived idea about the vaccine's safety, then that is what we are presenting.
Khiba - a couple people have been told by their neurologists to avoid the vaccine. It would be very nice to hear their reasoning. I believe you should comply with the advice given by the medical provider that you have chose to trust. However, I believe than that you should, then, make extra efforts to avoid the infection, including urging those around you to get vaccinated to avoid exposing you. And, if you get the H1N1 flu, then move heaven and earth to avoid giving it to others, especially those in a high-risk group.
The actual infection of the flu can stimulate the mother of all relapses in people who are sensitive to stimulation of the immune system. Remember that an actual infection stimulates the immune system for far longer, and to a much greater degree, than a vaccine does. The effect of the infection itself should be a large part of what we consider when we look at the vaccine. This means not only looking at what the infection will do to us, but also looking at who else we might infect if we get infected. I'm not sure that I could live with myself if I caught the flu and gave it to someone who then died of it.
In the end, it may be out of our hands, for a while. With the supply of H1N1 vaccine being delayed and in short supply, and with the new info that children will need two doses to develop full immunity, it may be months before we (as a second-line high risk group) can get access to it.
This strain of the flu will likely be with us for at least the next year and a half. Pandemics don't respect the yearly cycle like seasonal flu seems to. That means that even if the vaccine arrives for us some months down the line, we should still receive it.
Also, everyone should know that there are two different flu vaccines to receive: the normal seasonal vaccine (yearly flu shot) and the H1N1. So if you got your regular flu shot, you will likely have protection from the seasonal flu, which is not yet making the rounds in full force. You still need to receive the H1N1 shot (not nasal mist) UNLESS of course, you are a person with a definite reason not to or you refuse to. This is still all voluntary.
I have to say that, given the many dozens of millions of doses already given of the H1N1 vaccine worldwide, that a couple/several deaths in one country (Sweden) are what is being used to warn us that this vaccine is likely to be horribly unsafe (see above for the discussion of possible serious or fatal reactions). Given the kinds of terrifying warnings that are sweeping the internet we should already be seeing hundreds of these reactions and deaths here in this country. Approximately 20 million doses have been given out here. Yet all I am seeing are reports of deaths in previously healthy children and yound adults and pregnant women from the H1N1 infection itself.
Quix
I asked my Neurologist on Wednesday if I should get the H1N1 vaccine and the answer was emphatically NO. I didn't get a why not though.
Platelet Gal...I think you must have misread something. I'm agreeing with you in my post. I completely understand what you're saying. My point is that the rest of us should be vaccinated if possible just to protect populations, like yours, that cannot be.
The only two deaths I can find in Sweden were two elderly people--one in their 70s and one who was 90--who had severe chronic conditions and who died a few days after receiving a flu vaccination. That's not causative or even plausible as a link given their age and condition.
Bio
The majority of people can tolerate vaccinations. But for those of us who cannot, it is horrible what we experience and I, and some of my physicians agree, that if I continue to get vaccinations that harm me, then it could hurt my overall health. There are some CFS patients who are now bedridden because of vaccinations. So although most people don't understand.... the fibro/CFS experts do. You might want to check out my concerns that I posted months ago to Prof. Garth Nicolson.
http://www.medhelp.org/posts/Autoimmune-Disorders/Swine-Flu-Concerns/show/1024327
I think I will ask Prof. Nicolson again about the safety of this vaccination and especially about the deaths in Europe. We all need to make an informed decision and especially people like me who cannot tolerate some vaccinations. For those people who are in the same boat that I'm in.... they understand.
I have a relatively mild allergy to eggs, so I discussed whether I should get flu shots with my PCP. She told me that the benefits (for me) far outweigh any risks. My neurologist's office also stressed the importance of me getting my flu shots.
As I said before, as soon as I can find them, I'll get them.
The American Lung Association has a vaccine clinic finder web page, so you can try to find a flu vaccine clinic in your area. You just type in your zip code, and voila!
Kathy
Platelet Gal, for people in a situation in which they are better off not getting vaccinated--always something to discuss with your *doctor*--the rest of us have yet another reason to do it. We confer herd immunity that protects people who cannot be vaccinated. And the vaccination guidelines clearly state that certain populations should NOT receive the vaccine or should NOT receive the nasal vaccine. I'm not sure how anyone can predict whether or not they can survive the flu, which ordinarily kills between 30000 and 50000 people in the US alone (I'm actually sure that no one can predict their response to the infection), but I'm absolutely sure that those death numbers are far far higher than the zero deaths attributable to seasonal flu vaccines.
Safety testing of this vaccine formulation has been longstanding and has clearly shown the overwhelming safety. The only thing different in this formulation is the virus, and that's different every year in the flu vax. If a person has gotten flu vaccines in the past without incident, this should be no different for the vast majority of people.
I have multiple problems involving autoimmunity, and I get the seasonal flu vaccine yearly with no problems, as do my three children and my husband. We have all gotten our seasonal flu vaccines this year, and my children have also received a first does of the nasal H1N1 with absolutely no problems whatsoever. Meanwhile, healthy children in our community have died from H1N1 infection.
Bio
I agree... we must all look at the ENTIRE picture to make an informed decision. We must also weigh our risks, etc. It is just heartbreaking though for people, such as myself, who cannot tolerate some vaccinations. I know one CFS expert says that if you think you can survive the flu, then don't get the flu shot.
It is an agonizing decision for someone like me and other chronically ill patients who cannot tolerate some vaccinations. It also makes me question the safety of these vaccinations. Honestly.. if I were healthy..... knowing what I know now, I would refuse all flu shots.
I am taking important steps to boost my immune system, which includes eliminating sugar completely from my diet. I may get the vaccination after ALL of the safety tests have been completed and I will be watching adverse reaction reports closely. One other report that came out today was that the German Medical Association is now warning that the Swine flu vaccine is "unsuitable" for patients suffering from environmental diseases and other chronic multi-system illnesses. (google and you will find the article) So I'm getting ALL of the information and carefully reviewing it, so that I can make an informed decision.
As my friend, who is an attorney with CFS, says, "My gut says to live with the consequences and so I will either live with or die with the consequences. Choices."
I wish everyone here the best and pray that none of us will catch either the regular flu or the H1N1 flu.
Wish that this vaccine were more widely available - I would be happy to take it to go with my seasonal vaccine which I have already received.
Where I work is an incubator of all things germy and especially this flu. College campuses and dormitories are breeding grounds for every contagious germ imagineable.
The H1N1 is rampant now on campus - students and faculty alike are coming down with it. My coworker went home sick with it this week too. Hand disinfectant and obsessive hand washing are the order of the day. Our emergency isolation houses are full and there is talk of taking over a much larger space in our recreation complex to house sick students.
Two weeks ago a local kindergarten child died from H1N1 - this past week a 26 year old woman died. Both of these people were healthy before becoming infected with the H1N1.
Am I overly worried about this disease? Not really, because I am old enough to put this in historical perspective with other pandemic waves. But I am smart enough to recognize that this virus has the potential to create havoc in an unusual proportion of numbers.
Influenza deaths occur every year - but normally those deaths are among the population that is already compromised with their health. That isn't the case with the H1N1.
The risk from vaccines is considerably less than the risk from contracting this flu or any other influenza.
It saddens me that we live in a time where there is such mistrust in our government and also the ease at which many will disseminate false information about the dangers of the vaccines.
I realize that there are several different themes in my words here - there are so many angles to this story that it is hard to focus on just one.
And Meg, your symptoms sound just like those of the people I know working through the H1N1. Just watch for the signs that the cough has turned into something more serious.
stay healthy everyone - don't forget to scrub your hands often!
L
Thank you for this Quix.
I read up on the history of the 76 swine because it was started down the road from me all those yrs ago. It's an excellent history lesson if anyone is interested. Said (if I'm remembering correctly) that 43 mil people were vaccinated and when 500 were said to have GBS they pulled it. Of that 500 25 died.
http://www.cdc.gov/ncidod/EID/vol12no01/05-0965.htm
No disrespect to the families whom it undoubtedly affected - and who may be affected currently by vaccines and our future ones. Especially you Supermum who we cherish here on our forum. The viruses we are fighting to prevent are deadly.
Thank God for the Gardisil vaccine and those it's pretecting from the cancer causing virus. We've come a long way where womens health is concerned and this vaccine is just one proof of advancement. I've read recently where it will be given to men too - which I hope becomes more publicized.
Thank you Doc Q for the continuing education. Think we've become complacent where "flu" in general is concerned. This is very much a wake up call... wishing all health through this flu season.
-shell
Re: relapses. Yes, an immunization may cause relapses in those people who are susceptible. HOWEVER it is very shortsighted to avoid the vaccine for this reason. The infection itself is SO MUCH MORE LIKELY TO CAUSE A SEVERE RELAPSE THAN THE VACCINE FOR IT.
It is always someone's personal choice, but please look at the WHOLE picture first.
Meg - I'm so sorry you caught the flu. There are few worse feelings in the world. And, you're right. It matters little, when you feel so bad, which strain it is. The only strain of the flu that is actually active right now is H1N1, so that is far and away the most likely. If you are still within the window of 48 hours or so please call your doctor to get on an anti-viral. They can help so much.
Quix
The Sweden story was something written by a nonjournalist on a nonjournalism Website. There is no confirmation of these claims.
The mercury in the non-nasal version of the flu vaccine is a preservative called thimerosal, which is about 50% ethylmercury. That form of mercury differs in activity and toxicity from the scarier form, methylmercury. If you are concerned about mercury exposure, nasal vaccinations are not preserved with thimerosal, and neither are single-dose shots--thimerosal is used for multi-dose vials. If you have a concern, talk to your doctor about it. Please do not rely on information from unconfirmed sources (including me) about any of this. Here is a link to a Q&A from the CDC regarding flu vax and thimerosal: http://www.cdc.gov/Flu/about/qa/thimerosal.htm
If that breaks, it's cdc(dot)gov/Flu/about/qa/thimerosal(dot)htm
Please do what is best for you (and for the people around you), but do it with good information.
Bio
I have a flu now, a cold has never put me down like this. Dont know what kind of flu, I dont know if it makes a difference what kind of flu it is. And since iy has kicked up my MS symptoms also, it is difficult to figure out what is what. But it has gone into my lungs and I have asthma so the dr did call in a antibiotic for me. My cog issues are worse right now so i can not think well or type well, so I am going closing this note..
stay well,
meg
I called my inturnests office. They took my request, will determine if I am elligable to recieve one of the few precious shots. I reminded them that I haveMS and that we are going to try to conceive in January. I am still waiting to hear.
Oh great... I check out the social forum to get away from health matters and there is a post about H1N1 vaccination deaths in Sweden. I did a google search and sure enough... there are articles about this. = (
http://www.medhelp.org/posts/MedHelp-Social/H1N1-Vaccine-Side-Effects-Will-you-risk-it-now/show/1086459
Good discussion.
I would actually like to get the H1N1 vaccination, but only after all of the safety tests have been conducted. The problem with me and many other CFS and even fibromyalgia patients is that vaccinations often put us in a relapse. I've had several reactions to vaccations in the past.
According to the CDC, the majority of flu vaccines contain thimerosal. Some contain as much as 25 mcg of mercury per dose. This means that it may contain more than 250 times the Environmental Protection Agency’s safety limit for mercury. That is yet another concern of mine in regards to vaccinations.
I haven't heard of any reported severe reactions to the H1N1 vaccination yet, but there have been reports of severe reactions to the H1N1 nasal mist. You might want to google, "Woman Suffers Severe Reaction To H1N1 Mist" for one testimonial. A woman in Oregon was hospitalized after receiving the mist. So given my health and my reactions to some vaccinations in the past..... reports like this obviously concern me a great deal. And not to mention... the Gardasil vaccionation. You know how many young women are now chronically ill due to that vaccine ? I guess the best thing we can do is just keep informed and do our research. I do know that some of the information on the anti-H1N1 vaccination (not all vaccines) websites is inaccurate or does not back up their claims with research. But do I trust the CDC ? No way ! ; ^)
Oh, yeah, wouldn't an MS vaccine be nice!
My MS nurse said that the H1N1 will keep rolling around like it has been, and that it won't be too late to get a shot when the vaccine becomes more widely available.
It is so widespread around here, they have had tents set up in some hospital parking lots to triage the possible flu patients coming in, to avoid giving it to other ED patients.
Take care, everyone, and stay well.
Kathy