Aa
PLEASE HELP
Hello Everyone,
I am very new to this site and I have to say that I have been reading and following the questions for 5 weeks now ever since I researched online, the symptoms I was having. I thank you all for posting on here it has really helped with what I am going through.
I woke up with numbness in my feet about 5 weeks ago and kinda pushed it off as I am a very healthy and fit 30 year old. I honestly thought I pinched my back when I was doing heavy dumbell shrugs the week before. It started to get worse and travel up my legs. I was scared and went to the ER. I was referred to a neurologist.
4 days later the symptoms got worse. My legs were numb all the way around. I went back to the ER. This time I saw a neurologist and he ordered 3 MRI's. First MRI was clean of my lower spin. Second MRI showed a lesion and the third one of my brain was clean. I met with the neurologist today. He says I have transverse myletis which is consistant with MS. My mother has MS and her mother also had MS. I am very scared as I have seen my mom go downhill and my wife who is a nurse works with patients that have MS.
Although my neurologist says I have "possible MS" I think I have it. I want to kill myself but I have twins who are turning 9 in two weeks. I do not want to be a burden on my family. I have seen it with my own mother. My wife suggest a spinal tap but the neuro states that this will not confirm or deney MS. He suggests to wait to see if there is another attack and if not has rescheduled another MRI in a years time.
I have this cloud over my head now for the next year. Bless my wife she is extremely supportive and says we will get through this. I love her so much but do not want to be a burden on her life. This is a cruel debilitating disease that I have seen first hand.
Has anyone had a similar situation? I know it is really difficult to determine as everyone is different but what was the outcome. Can you have a lesion that just goes away and never comes back to haunt you?
I should say that all my symptoms are gone. I have feeling again in my feet and legs and feel normal. I have read alot of things about MS over the years and do not have another other symptoms.
I am lost, worried and sad for my family. I really need help I think.
Thank you for listening to my story.
MKCS
I am very new to this site and I have to say that I have been reading and following the questions for 5 weeks now ever since I researched online, the symptoms I was having. I thank you all for posting on here it has really helped with what I am going through.
I woke up with numbness in my feet about 5 weeks ago and kinda pushed it off as I am a very healthy and fit 30 year old. I honestly thought I pinched my back when I was doing heavy dumbell shrugs the week before. It started to get worse and travel up my legs. I was scared and went to the ER. I was referred to a neurologist.
4 days later the symptoms got worse. My legs were numb all the way around. I went back to the ER. This time I saw a neurologist and he ordered 3 MRI's. First MRI was clean of my lower spin. Second MRI showed a lesion and the third one of my brain was clean. I met with the neurologist today. He says I have transverse myletis which is consistant with MS. My mother has MS and her mother also had MS. I am very scared as I have seen my mom go downhill and my wife who is a nurse works with patients that have MS.
Although my neurologist says I have "possible MS" I think I have it. I want to kill myself but I have twins who are turning 9 in two weeks. I do not want to be a burden on my family. I have seen it with my own mother. My wife suggest a spinal tap but the neuro states that this will not confirm or deney MS. He suggests to wait to see if there is another attack and if not has rescheduled another MRI in a years time.
I have this cloud over my head now for the next year. Bless my wife she is extremely supportive and says we will get through this. I love her so much but do not want to be a burden on her life. This is a cruel debilitating disease that I have seen first hand.
Has anyone had a similar situation? I know it is really difficult to determine as everyone is different but what was the outcome. Can you have a lesion that just goes away and never comes back to haunt you?
I should say that all my symptoms are gone. I have feeling again in my feet and legs and feel normal. I have read alot of things about MS over the years and do not have another other symptoms.
I am lost, worried and sad for my family. I really need help I think.
Thank you for listening to my story.
MKCS
My story is rather unique! I've had poor peripheral vision for as long as I can remember and it may be in fact congenital. But I mentioned to my PCP in 1979 that when I took my contacts out at night I had a little double vision. (Turns out it really wasn't double vision, it was my corneas adjusting after taking out the hard lenses.) So he freaked and sent me to a neurologist. I had a CT scan (pretty new in those days) and a lumbar puncture. Both were clear. I had no other symptoms so the neuro just said it could be MS because of the visual deficit, but I really didn't present with enough symptoms. Get some info from the NMSS and basically, have a nice life.
Then I woke up in 1985 with slurred, slow speech. I figured I must have a virus so ignored it for 3 days. Finally went in but my regular doc was out so saw some "kid" who had no idea. Come back in a week if not better. That's when my doc sent me back to the neuro who said yes, this is consistent with MS, even though I didn't have a lot of other symptoms. (they liked you have a certain number, I guess). Yes, it was MS. And like you, all I could think of was being blind and in a wheelchair the rest of my life!
But, with 3 small children, life went on and I ever so conveniently put MS in my lock box of denial. Surely, since nothing else had happened, I didn't have it. So there. Never told any doctors when we moved that this was ever even mentioned. Can you say deep denial!!
In 2002 my opthomolgist was confused by the results of two visual field tests. They should have been consistent, but weren't. He ordered an MRI. I had never had one and actually thought to myself, well, this will show that I don't have MS surely. Not so much! He felt awful having to tell me the radiologist's report that suggested lesions consistent with MS. I just nodded and said OK. So now I know. Now what?
My nurse practitioners office called the next day and wanted me in STAT! She took my hands and looked into my eyes, and said "How are you? Do we need to get you hospitalized with IVs?" You certainly are taking this well! So I had to admit to my state of denial. She set me up with this town's best MS neuro who just happend to have an opening the next week.
Yes, I had a number of lesions and with my history it truly was MS. He did the usual neuro tests and sent me home with info on all the drugs available at this time. Make a decision and let's get going! So I chose Avonex and have been on it for 8 years.
April 1 of this year I awoke feeling OK, but when I looked out the window I felt a little "off", kind of like vertigo, but not really. Kind of staggered down the hall, but managed to go about my day. Just had to be careful going around corners. Left work and started off driving when I was hit with the most horrible double vision! It was like looking through a kaleidoscope! By evening it had gone from not there to progressively worse again and now I needed help walking. Saw the neuro the next day and he declared that I was having a serious attack. Five days of solumedrol, an eye patch and a cane. After only 4 days on treatment I could see again enough to read. Hooray! By three weeks, when I say the neuro again. I was still needing the cane but walking a little better and my eyes seemed almost normal. Right eye still had some nystagmus and I couldn't walk straight without the cane. And the fatigue was crushing!
Yes, I have probably two dozen lesions in my brain. It had been 27 years without an attack. Thankfully the neuro had ordered another MRI just this past September so he had a good recent one to look at. It looked fine. No explanation for such a severe attack while on Avonex, but obviously I couldn't trust it anymore. But keep using it for now - that was my decision.
I see the neuro tomorrow actually and will get the results of the newest MRI. I am really looking forward to this visit. I know my right eye is still a little wonky, but my ataxia is much better.
I have seen him every six months for 8 years, symptoms or not which I am thankful for. He knows me, knows my history. I had seen him once in awhile for what we like to call "background noise" - those little anomalies that really aren't a flare, just an annoyance of some sort that comes and goes quickly, like feeling feathers on your face or something really mild.
Well, I have gone and on haven't I? I was on a sugar free diet for almost two years and lost weight and felt really good. I still adhere pretty closely to it, but am not strict about it like I maybe should be. I was working out three days a week regularly. So, eat healthy, exercise as much as is tolerable and with your doc's OK, get some help, either in counseling and/or drugs. My neuro was quite pleased to know I was already on Paxil, an antidepressant/antianxiety med. He was going to start me on it that day. It is that important!
These early days are confusing and we tend to see only the worst. I'd like to say that I am proof that there is life after MS! (Even if in my own mind I didn't have it!) I've been truly blessed to have so many "normal" years, and yes, I am back to facing uncertainty and the what if's. But at 60 I'm not so freaked out. If this is as good as it gets, then I will learn to adapt to it. If I have other attacks, then we will get through those too!
May you find peace of mind and joy in living.
Jo
Then I woke up in 1985 with slurred, slow speech. I figured I must have a virus so ignored it for 3 days. Finally went in but my regular doc was out so saw some "kid" who had no idea. Come back in a week if not better. That's when my doc sent me back to the neuro who said yes, this is consistent with MS, even though I didn't have a lot of other symptoms. (they liked you have a certain number, I guess). Yes, it was MS. And like you, all I could think of was being blind and in a wheelchair the rest of my life!
But, with 3 small children, life went on and I ever so conveniently put MS in my lock box of denial. Surely, since nothing else had happened, I didn't have it. So there. Never told any doctors when we moved that this was ever even mentioned. Can you say deep denial!!
In 2002 my opthomolgist was confused by the results of two visual field tests. They should have been consistent, but weren't. He ordered an MRI. I had never had one and actually thought to myself, well, this will show that I don't have MS surely. Not so much! He felt awful having to tell me the radiologist's report that suggested lesions consistent with MS. I just nodded and said OK. So now I know. Now what?
My nurse practitioners office called the next day and wanted me in STAT! She took my hands and looked into my eyes, and said "How are you? Do we need to get you hospitalized with IVs?" You certainly are taking this well! So I had to admit to my state of denial. She set me up with this town's best MS neuro who just happend to have an opening the next week.
Yes, I had a number of lesions and with my history it truly was MS. He did the usual neuro tests and sent me home with info on all the drugs available at this time. Make a decision and let's get going! So I chose Avonex and have been on it for 8 years.
April 1 of this year I awoke feeling OK, but when I looked out the window I felt a little "off", kind of like vertigo, but not really. Kind of staggered down the hall, but managed to go about my day. Just had to be careful going around corners. Left work and started off driving when I was hit with the most horrible double vision! It was like looking through a kaleidoscope! By evening it had gone from not there to progressively worse again and now I needed help walking. Saw the neuro the next day and he declared that I was having a serious attack. Five days of solumedrol, an eye patch and a cane. After only 4 days on treatment I could see again enough to read. Hooray! By three weeks, when I say the neuro again. I was still needing the cane but walking a little better and my eyes seemed almost normal. Right eye still had some nystagmus and I couldn't walk straight without the cane. And the fatigue was crushing!
Yes, I have probably two dozen lesions in my brain. It had been 27 years without an attack. Thankfully the neuro had ordered another MRI just this past September so he had a good recent one to look at. It looked fine. No explanation for such a severe attack while on Avonex, but obviously I couldn't trust it anymore. But keep using it for now - that was my decision.
I see the neuro tomorrow actually and will get the results of the newest MRI. I am really looking forward to this visit. I know my right eye is still a little wonky, but my ataxia is much better.
I have seen him every six months for 8 years, symptoms or not which I am thankful for. He knows me, knows my history. I had seen him once in awhile for what we like to call "background noise" - those little anomalies that really aren't a flare, just an annoyance of some sort that comes and goes quickly, like feeling feathers on your face or something really mild.
Well, I have gone and on haven't I? I was on a sugar free diet for almost two years and lost weight and felt really good. I still adhere pretty closely to it, but am not strict about it like I maybe should be. I was working out three days a week regularly. So, eat healthy, exercise as much as is tolerable and with your doc's OK, get some help, either in counseling and/or drugs. My neuro was quite pleased to know I was already on Paxil, an antidepressant/antianxiety med. He was going to start me on it that day. It is that important!
These early days are confusing and we tend to see only the worst. I'd like to say that I am proof that there is life after MS! (Even if in my own mind I didn't have it!) I've been truly blessed to have so many "normal" years, and yes, I am back to facing uncertainty and the what if's. But at 60 I'm not so freaked out. If this is as good as it gets, then I will learn to adapt to it. If I have other attacks, then we will get through those too!
May you find peace of mind and joy in living.
Jo
Hi,
Like yourself, I was an active 30 yr old who was dx with MS just over a month ago. I express the same sentiments and concerns of Granny, Lulu and RedFlame. It's harder for you because you have first hand experience with seeing your Mom go through the same thing, but as Lulu said, advances are being made everyday, so MS is not as questionable a disease as it was 5, 10 yrs ago.
Don't judge yourself based on mistakes that others in your life made. You are your own person. I'm sure that your wife and kids love you much and don't view you as a burden and never think of yourself as a burden. What keeps me going is that 1) MS is not a death sentence, as Lulu said things can be worse, 2) Prayer and 3) Keeping a positive disposition on everything, everyday. I take things one day at time.
Be strong, and you have alot of support here.
Smile :-)
~Landa~
Like yourself, I was an active 30 yr old who was dx with MS just over a month ago. I express the same sentiments and concerns of Granny, Lulu and RedFlame. It's harder for you because you have first hand experience with seeing your Mom go through the same thing, but as Lulu said, advances are being made everyday, so MS is not as questionable a disease as it was 5, 10 yrs ago.
Don't judge yourself based on mistakes that others in your life made. You are your own person. I'm sure that your wife and kids love you much and don't view you as a burden and never think of yourself as a burden. What keeps me going is that 1) MS is not a death sentence, as Lulu said things can be worse, 2) Prayer and 3) Keeping a positive disposition on everything, everyday. I take things one day at time.
Be strong, and you have alot of support here.
Smile :-)
~Landa~
Thank you both for your words. It is always great to see a different perspective.
I am worried and scared. I am bascially living with a cloud over my head until my next attack to confirm MS or another MRI in a years time to see more lesions.
Is there a chance that this could evolve into nothing? My neuro says that he expects with a 70% chance that I will have MS.
I hear what you are saying about my family. I look at my own mother who has MS and is still here. I would be devastated without her. And you are right I do enjoy my life with her having MS then not having her at all.
My wife lost her father to a very tragic accident 10 months ago. She has told me that she wishes her dad had MS and could still be here.
The reason I want to remove myself from life is I have seen first hand what MS does to a family. It put alot of strain on me caring for my mom and I did not live a normal life. It has made me resent my other siblings who did not care for her and went off to university and lived their lives. I just do not want to put the same demands on my children. It is hard, my mother was very demanding and made me feel guilty when I was dating and leaving the house at night. Perhaps though I need to seek help in getting my feelings out.
So what does TM mean really. What are the chances that it will not go to MS and if it doesn't does TM mean a different type of disease? Is there any diet out there to follow?
Can TM go away and never come back?
Can this one lesion on my spine cause MS?
Thank you again for your words and thoughts. My twins are a boy and a girl and I am so thankful to have started a family at such a young age. My wife is an RN who is the Director of Nursing at a long term care facility. (Thank god for her amazing drug plan should I need it.) She is truly a beautiful lady who is extremely supportive. I feel bad for her in loosing her father and now having her deal with me. I feel guilty to stricken her life in the future. I just ask myself, who am I to do that to her. I guess I should mention that my dad had an affair on my mother. Perhaps my mentality is where this stems from I am not sure. I guess I am just one confused person.
Thank you again for listening and responding. No post is too long. I throughly enjoy reading about what each one of you have to say as well as your experiences and suggestions.
Keep well
MKCS
I am worried and scared. I am bascially living with a cloud over my head until my next attack to confirm MS or another MRI in a years time to see more lesions.
Is there a chance that this could evolve into nothing? My neuro says that he expects with a 70% chance that I will have MS.
I hear what you are saying about my family. I look at my own mother who has MS and is still here. I would be devastated without her. And you are right I do enjoy my life with her having MS then not having her at all.
My wife lost her father to a very tragic accident 10 months ago. She has told me that she wishes her dad had MS and could still be here.
The reason I want to remove myself from life is I have seen first hand what MS does to a family. It put alot of strain on me caring for my mom and I did not live a normal life. It has made me resent my other siblings who did not care for her and went off to university and lived their lives. I just do not want to put the same demands on my children. It is hard, my mother was very demanding and made me feel guilty when I was dating and leaving the house at night. Perhaps though I need to seek help in getting my feelings out.
So what does TM mean really. What are the chances that it will not go to MS and if it doesn't does TM mean a different type of disease? Is there any diet out there to follow?
Can TM go away and never come back?
Can this one lesion on my spine cause MS?
Thank you again for your words and thoughts. My twins are a boy and a girl and I am so thankful to have started a family at such a young age. My wife is an RN who is the Director of Nursing at a long term care facility. (Thank god for her amazing drug plan should I need it.) She is truly a beautiful lady who is extremely supportive. I feel bad for her in loosing her father and now having her deal with me. I feel guilty to stricken her life in the future. I just ask myself, who am I to do that to her. I guess I should mention that my dad had an affair on my mother. Perhaps my mentality is where this stems from I am not sure. I guess I am just one confused person.
Thank you again for listening and responding. No post is too long. I throughly enjoy reading about what each one of you have to say as well as your experiences and suggestions.
Keep well
MKCS
hi MCKS, I'm so glad you found your way here and are able to express all of your concerns in such an honest way. I am also sorry that you have TM and may be headed into MS.
But please keep in mind that there are a lot of diseases that could be a lot worse.
there have been amazing advances in treatment for MS - these have all occured in the past 20 years or so, and I guess this was after your relatives were diagnosed.
Multiple Sclerosis is no longer the disease your mother or your grandmother had - or at least not the face of the typical MS patient. The statistics are in our favor if we get treatment, and remain compliant to a therapy our disease progression can be virtually stopped for a long period of time.
Living with MS no longer means we are guaranteed to be in a wheelchair eventually. Just the opposite - i keep finding statistics that put the number of people with MS around 80% who will continue to NOT need an aid for mobility for their entire life. No wheelchair sounds good to me. How about you?
The life span of people with MS used to be shortened on average by 7 years - that is no longer the case and most of us will live out our lives as long as our peers.
People with MS are everywhere - you just probably don't realize it because most of us live our day to day lives without complications from having MS.
Once we get this dx, it is a mental strain wondering what is coming next. I have to admit I find myself thinking the same thing, and have to remind myself of the statistics that paint a much better picture.
now to your question - yes, lesions do disappear. Our body isa pretty amazing machine and is constantly working at making repairs to damage. Think of skinned knees - they heal. Broken bones knit back together. Myelin damge where those lesions are visible can also get patched.
The areas (lesions) where the myelin is damaged is never going to be as good as the original - thnk of patching a hole in a tire. We can fix that tire and continue to drive on ith. the same is true for our nervous system. the patch in our system allows us to keep moving, but it can be responsible for degraded signals.
As for our brain - we only use about 10% - the rest is vacant real estate waiting to be needed. Our brain is constantly being rewired to correct for problems. I continue to be impressed with the human anatomy and what it is capable of doing.
There are down sides to having MS - but for most of us this disease is manageable. The big trick here is to not let the MS consume us. We are still who we were before we were dx'd. We just also happen to have MS.
Twins? that has to be fun and a joy. Are they identicals ? I'm so glad you understand the devastation they would experience and the lifelong damage they would suffer from if their dad isn't around for a long time to come.
Not to sound simplistic, but this is an excellent opportunity for you to teach your children that life isn't always fair, it isn't even always fun. sometimes it can downright stink, but we still make the most of each and every day and work at not squandering any of the time we have here.
if this feeling of loss and despair continue, please ask your doctor for assistance. Depression is a very real part of this disease - it can come from our clinical problems or the situational mess we perceive our lives to be. Either way, sometimes it is too hard to get a grip on depression on our own. There are excellent resources to help and I hope you will seek them out if you need them.
Sorry that I have gone on and on here - I hope something I have said makes sense of the bigger picture for you.
Please come through often - we really are good listeners and there is complete immunity for anything you want to vent about. Take care and I'll watch for you!
be well, Lulu
But please keep in mind that there are a lot of diseases that could be a lot worse.
there have been amazing advances in treatment for MS - these have all occured in the past 20 years or so, and I guess this was after your relatives were diagnosed.
Multiple Sclerosis is no longer the disease your mother or your grandmother had - or at least not the face of the typical MS patient. The statistics are in our favor if we get treatment, and remain compliant to a therapy our disease progression can be virtually stopped for a long period of time.
Living with MS no longer means we are guaranteed to be in a wheelchair eventually. Just the opposite - i keep finding statistics that put the number of people with MS around 80% who will continue to NOT need an aid for mobility for their entire life. No wheelchair sounds good to me. How about you?
The life span of people with MS used to be shortened on average by 7 years - that is no longer the case and most of us will live out our lives as long as our peers.
People with MS are everywhere - you just probably don't realize it because most of us live our day to day lives without complications from having MS.
Once we get this dx, it is a mental strain wondering what is coming next. I have to admit I find myself thinking the same thing, and have to remind myself of the statistics that paint a much better picture.
now to your question - yes, lesions do disappear. Our body isa pretty amazing machine and is constantly working at making repairs to damage. Think of skinned knees - they heal. Broken bones knit back together. Myelin damge where those lesions are visible can also get patched.
The areas (lesions) where the myelin is damaged is never going to be as good as the original - thnk of patching a hole in a tire. We can fix that tire and continue to drive on ith. the same is true for our nervous system. the patch in our system allows us to keep moving, but it can be responsible for degraded signals.
As for our brain - we only use about 10% - the rest is vacant real estate waiting to be needed. Our brain is constantly being rewired to correct for problems. I continue to be impressed with the human anatomy and what it is capable of doing.
There are down sides to having MS - but for most of us this disease is manageable. The big trick here is to not let the MS consume us. We are still who we were before we were dx'd. We just also happen to have MS.
Twins? that has to be fun and a joy. Are they identicals ? I'm so glad you understand the devastation they would experience and the lifelong damage they would suffer from if their dad isn't around for a long time to come.
Not to sound simplistic, but this is an excellent opportunity for you to teach your children that life isn't always fair, it isn't even always fun. sometimes it can downright stink, but we still make the most of each and every day and work at not squandering any of the time we have here.
if this feeling of loss and despair continue, please ask your doctor for assistance. Depression is a very real part of this disease - it can come from our clinical problems or the situational mess we perceive our lives to be. Either way, sometimes it is too hard to get a grip on depression on our own. There are excellent resources to help and I hope you will seek them out if you need them.
Sorry that I have gone on and on here - I hope something I have said makes sense of the bigger picture for you.
Please come through often - we really are good listeners and there is complete immunity for anything you want to vent about. Take care and I'll watch for you!
be well, Lulu
I know you are feeling devastated, worried and hopeless. Please take a deep breath and think about how incredibly loved and needed you are.
You have a wife that loves you and two beautiful children that both love and need you. The absolute worse/horrible thing to have happen to your family would be the loss of you to suicide. They would truly never be the same, they would blame themselves forever. Believe me, they would much rather have a father who has MS than a father who is dead.
I am really sorry that you are having a difficult time and that you may have MS. Life hands each of us some good things and some bad things. Persevere.
You are not alone! You can lean on the support here, journal and keep track of your symptoms. It's not going to be perfect I know. But you won't be alone.
I know it's easy to say and hard to do----sometimes it really is taking it one minute at a time
take care,
You have a wife that loves you and two beautiful children that both love and need you. The absolute worse/horrible thing to have happen to your family would be the loss of you to suicide. They would truly never be the same, they would blame themselves forever. Believe me, they would much rather have a father who has MS than a father who is dead.
I am really sorry that you are having a difficult time and that you may have MS. Life hands each of us some good things and some bad things. Persevere.
You are not alone! You can lean on the support here, journal and keep track of your symptoms. It's not going to be perfect I know. But you won't be alone.
I know it's easy to say and hard to do----sometimes it really is taking it one minute at a time
take care,
Hi Jo,
Thanks for the encouraging words.
I just can't seem to shake the idea of having this disease. Life was so perfect before this devastating blow. Just to think or entertain the idea of having such a disease really makes me feel cheated in life. I mean it has attacked so much of my family why can't it just leave us alone now.
Anyhow it is not concrete just yet but possible MS and having a history of it makes me think it is.
You said that you have not had an attack in decades? How were you disagnosed?
Did they find many lesions on your MRI's? Do you follow a special diet or take any medications? What were your symptoms?
Sorry for all the questions.
Thanks again for your kind words.
MKCS
Thanks for the encouraging words.
I just can't seem to shake the idea of having this disease. Life was so perfect before this devastating blow. Just to think or entertain the idea of having such a disease really makes me feel cheated in life. I mean it has attacked so much of my family why can't it just leave us alone now.
Anyhow it is not concrete just yet but possible MS and having a history of it makes me think it is.
You said that you have not had an attack in decades? How were you disagnosed?
Did they find many lesions on your MRI's? Do you follow a special diet or take any medications? What were your symptoms?
Sorry for all the questions.
Thanks again for your kind words.
MKCS
First, welcome to the forum officially now! I'm glad you've been getting some help reading the posts here. Everyone is very friendly and ready to help out as best we can with our shared pool of information.
MS can be a cruel and debilitating disease and having seen in it family members must really hit you hard.
You have a wife who is a nurse an has direct contact with MS patients? I'd say you are truly blessed!
As she has probably told you, there are several forms of MS and sometimes you have an episode and don't have another for years - well, in my case, decades!
Depression is very common in people with MS and I suspect with others who have life long diseases. Don't be afraid to ask your doc for something for depression/anxiety. It is perfectly normal.
I have learned you just have to take one day at a time. Live your life as normally as possible, accept the love and support of your wife and I'm sure adorable twins! (Well, at age nine, maybe not so much?!) You have a lot to live for. My motto, as well as others is something like "I have MS but it does not have me"!
My husband is not the prince of mercy, but he has been with me this whole last two months of an exacerbation and offers support like crazy. He says he doesn't know really know how, but he is willing to do whatever I need and he constantly tells me he loves me and we are in this together. We've been married for almost 40 years so I think he means it!
I know this is long, and thank you for bearing with me. Take good care of yourself - you are going to be OK, no matter if it is MS or not. We are here as a sounding board and friends.
Jo (truly, a grandmother of 6!)
MS can be a cruel and debilitating disease and having seen in it family members must really hit you hard.
You have a wife who is a nurse an has direct contact with MS patients? I'd say you are truly blessed!
As she has probably told you, there are several forms of MS and sometimes you have an episode and don't have another for years - well, in my case, decades!
Depression is very common in people with MS and I suspect with others who have life long diseases. Don't be afraid to ask your doc for something for depression/anxiety. It is perfectly normal.
I have learned you just have to take one day at a time. Live your life as normally as possible, accept the love and support of your wife and I'm sure adorable twins! (Well, at age nine, maybe not so much?!) You have a lot to live for. My motto, as well as others is something like "I have MS but it does not have me"!
My husband is not the prince of mercy, but he has been with me this whole last two months of an exacerbation and offers support like crazy. He says he doesn't know really know how, but he is willing to do whatever I need and he constantly tells me he loves me and we are in this together. We've been married for almost 40 years so I think he means it!
I know this is long, and thank you for bearing with me. Take good care of yourself - you are going to be OK, no matter if it is MS or not. We are here as a sounding board and friends.
Jo (truly, a grandmother of 6!)
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