Hey people, I have a quick question...well no I guess that's not true...do I ever have a quick question? hehe
I am in severe pain here and not sure if it's MS related or not.
I have been keeping busy with life but I have suddenly had the brakes put on for me.
I got out of the shower yesterday with a pain across the mid section of my back. It seemed to stay fairly constant until after supper time. I was laying on the couch when it seemed that the pain started to travel. It went into my legs with a vengeance and even moving my arms was excrutiating. This went on for about 4 hours. I went to bed and about 1 hour after laying down, the pain became centralized in my left hip and it is excrutiating. I have been fairly lucky in that pain doesn't generally wake me up but this pain is horrible and woke me up several times during the night.
I have had a lumbar strain in the past but this doesn't feel the same. I have had sciatica and this is definitely not the same. I am wondering if anyone thinks this may be some sort of MS Hugs or if it may be MS pain? I took a couple of Extra Strength Tylenol but so far no result. I am going to wait another hour or so to see if the Tylenol helps at all but I need some relief soon...this is horrible! I hope someone can let me know if they have experienced this at all and what they did about it.
Hey you two...I am really considering that this may be related to that horrible word "Fibromyalgia". The pain went throughout my body and today...a little sore but nothing like I had on Sunday night!
It wasn’t until about four o’clock on December 3rd that the pain began to subside and by about 8 p.m. the pain was pretty much gone.
I was tested for Fibromyalgia a few years back and I had 6 of the 18 tender spots that the doctor told me are indicative for Fibromyalgia. I had a throat biopsy done last year and the doctor that did the pre-op medical checked these spots again and he said I should be seen by a specialist because he said that I had a whole lot more than 6 tender spots. I just assumed he was in training but perhaps he was on to something??? I hope to he** that he was just a foolish doctor that didn't know what he was talking about! I do have a lot of the "18 areas" that the doctor's talk about...more than just the 6 I had in the past that's for sure!
All I know guys is that it hurt like he** and I don't know what brought it on and I am a little worried about getting in the shower again...but that's something that I can do nothing about I guess. I will let you know if I find out anything new...but what do you two think?
Hey hun, I just don't know enough about fibro to speak to it, but it's definitely worth a re-check to see if that is the type of pain you are experiencing. A good thorough doc will be able to distinguish, like a pain doc willing to do a good physical? I just don't know.
I'm sorry you are hurting so badly. Can you sponge bath, and then the old head in the sink for hair? Just a thought. I dreaded the shower too during a drug allergic reaction, even the water lumped and swelled me up. So painful. Hey - on that thought, you haven't changed up any meds lately have you?
If it was me, I'd get back in the shower and see if it happens again, I know, easy for me to say. If id does (I really hope not) I'd try to determine if it's the water pressure or the temperature.
I know a few people with fibro, but I just realised I really know very little about it. Sitting in a vehicle for a long time triggers pain in my sister in laws back and legs, which she atributes to her fibro.
I'm just babbling and not saying anything very useful, so I'll just close by saying I hope you figure this one out, and I hope it's not going to be an ongoing issue for you.
Well I put in a question to Dr. Garth Nicholson from the autoimmune forum and the following is what he answered:
Your pain sounds like fibromyalgia, and you should look into this. So, what possible linkage could there be between progressive MS, asthma, COPD and fibromyalgia?
One possible link is that all of these conditions show a very high prevalence of chronic infections. Let’s just consider one type of chronic infection (Since I know quite a bit about this infection, I will use it as an example, but it is only one example of the type of chronic infection(s) that could be at the bottom of your problems). For example, if we consider positive systemic Mycoplasma infections, fibromyalgia (~70%), progressive MS (~50%), asthma (~40%), and COPD (% not established, but significant)—all of these conditions show some evidence of chronic infection(s).
In our experience all of the infection-positive chronic illness patients benefited from anti-infective therapies. Thus this is something that you should look into.
Hmmm..interesting. At the risk of sounding out to lunch...what exactly are anti-infective therapies?
I guess first you'd have to determine if you have a chronic infection of any type...or wait...maybe you should first look into fibro, then infections...or .. ohh..I'm getting confused. (no disrespect to Dr. Nicolson, who was kind enough to respond to your question)
Which brings me to my original thoughts to your post, a vist to your GP is in order, me thinks.
Hey you! Well I hope you are doing well...I of course haven't been here for a while but it's sooooo nice to know that there is always someone that I know to help out! Thank you!
Yes Mike, I have to agree..."anti-infective therapies"? What the heck is that?!!! As usual, a doctor is good enough to answer but we can't understand what he is trying to say! I looked back at some of his other answers to people...all his reponses contain a reference to "anti-infective therapies" with no further explanation.
Lisa...I haven't been having any spasm's anywhere else but the pain that I had was not like spasms at all. It was a slowly moving throbbing ache type pain that was slowly crawling throughout my body and it was not nice. I took some extra strength tylenol which eventually seemed to relieve it but then again, how do I know if it was the tylenol that helped? It slowly disappeared but I also spent the whole next day in my jammies sleeping on the couch. This is all so confusing! I will be sure to let you know if it happens again but in the meantime thank you for responding...both of you!
OMG Lisa...CA really isn't that far from Alberta is it?! hehe I would love nothing more than to come and have a try at em'!!!
"anti-infective therapies" must be treatments for infections. You can have infections with bacteria - so antibiotics, or a virus - so anti-virals, or fungus - so anti-fungals etc. You have to know what's causing the infection and go from there. The most common treatment is antibiotics, because although viruses are thought to be behind many illnesses - we don't have very effective treatments for viruses. I wish we did. There's a lot more we have to learn.
Speaking of fibro, which I don't have (one of the few illnesses I don't have), it's very difficult to know for sure whether someone has it. And doctors don't have an easier time. The diagnosis is still mostly one of exclusion, meaning no other explanation can be found for your pain. If doing blood work, MRIs, spinal taps, x-rays, cultures, etc. nothing shows up that gives the doctor the criteria necessary for a known diagnosis, yet a patient has persistent pain in a predictable pattern and of a predictable type, then fibromyalgia is the diagnosis. It means pain in the muscle and/or connective fibers. People usually report that pain is worse with touch, and there is a great deal of the pain in the upper body - arms, neck, shoulders, and there usually isn't specific joint pain, swelling, redness, or heat in the area.
Of course there are exceptions, but those are some general statements about fibro. Doctors will often misdiagnose a number of autoimmune diseases as fibro before objective lab and imaging tests reveal the true diagnosis. One thing doctors can't do is know how we're feeling, and there are so many illnesses that don't have nice and neat diagnostic clues.
Hope you figure it out. Pain is always unpleasant. I have plenty of it and sympathize with you greatly. Jan
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