On friday I visited my neurologist because I am having a hard time lately...
In Greece it has been very cold and I am filling quite bad.
I cannot stand temperature and environtmental changes anymore. My legs are getting really cold and I cannot get back to normal easily. The spasticity is severe after the temperature change.
The doctor pointed out , again, that I seem to be having peripheral neuropathy in both lower and upper extremities, apart from the MS. It feels as I am wearing a glove or shock.
Last May I was tested for almost everything and only SACE was slightly positive for sarcoidosis.
I was under steroids so he cannot really tell if the tests' results are positive.
So right now I will be tested again for Lupus, rheumatoid arthritis, sarcoidosis...
I am very confused.
Please tell me whether anyone of you is having the same symptoms.
I have peripheral neuropathy (axonal). It is symptom and not a diagnosis. EMG result confirmed the neuropathy and type. They are trying to figure it out. I am currently being treated for lyme even thugh all my lymes test have been negative. My neuro said that people I don't have MS because people with MS do not get peripheral neuropathy...sigh.
I know that peripheral neuropathy is a symptom, not a disease. I am diagnosed with secondary progressive MS but I had some signs of peripheral neuropathy too. So I was tested for many many different things. My EMG was fine so were most of my tests as I have already written.
Things are getting worse and worse. My legs freeze increasing my spasticity. I cannot stand even minor enviropmental changes. As you understand I am not treated for anything, apart from MS, as we don't know what it is. Just some steroids hoping that they could help MS and the "X" peripheral neuropathy.
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