I don't understand one of the best year for me turned for the worst. First I have my son. My balance is off but I tell myself it may take time. But it gets no better. But I say give it time. My neck starts getting these funny nerve sensation when I bend my neck to chest. But I think maybe I need to do neck exercises. I am going to therapy doing damn exercises daily waiting on improvement it does some but I want my damn balance. So I half way get that fo see a neurologist who clinically says I have ms but now borderline for a disease I can't spell.sjogrens I think that's it. Now on top of my back hurting already off and on. My body is numb and laser night
And last night my hand starts contacting it scared the **** out of me. My right eye was hurting like I had something in it. I'm only at the beginning what's next. Why do I have to suffer. Having a child is supposed to be a blessing not a curse.
You have every right and reason to be angry. This is such a frustrating disease and to have something else piled onto the diagnosis would really make me pissed, too. BTW, do you know in Britain that word means drunk and not angry?
The problem with MS and most things neurological is it all takes time. Everything seems to move slowly - appointments, tests, therapy, changes in our condition... it is like the clock almost stops.
Keep working at all the things the therapist and doctors have you doing. It does make a difference even if it doesn't feel like it right now.
And be as angry as you want at this damn disease - it takes a while to figure out how to take control and live with it and anger is definitely part of that journey. don't let this disease cheat you out of the happy moments with your son.
we're here to listen - be sure to let us know how you are doing.
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