Thanks for putting things into perspective Sarah. It's strange thinking about these symptoms without fitting yourself into any box. But I am definitely keeping an open mind about whatever this is, and I am planning on posting on the lyme disease forum as well.
Shell, my thyroid was checked with a few other basics in January and everything was fine.
And Chris, take care of yourself :)
Thanks, Marell
Hi Midijane,
Did your primary order testing for thyroid? Some of what you describe sound alot like thyroid problems.
Hope your doc is willing to look at all possibilities, and get to the bottom of this so you can feel well again.
-shell
The results came back the same day when I was diagnosed. I'm not sure how that happened though because it normally takes a few business days. You posted that you had extreme weakness after a shower. I am very heat sensitive and cool showers actually help me feel better. I used to love a nice long hot bath. I'm afraid those are a thing of the past! LOL!
Best wishes!
Chris
save the steroids for LONG attacks, check with your neuro first.
many of the little naggy things are just pseudo-flares and we just
have to live with those
too many steroids are not a good thing and have their own basket of side effects.
get you some literature, plenty on here, on the right side of page, go to MS web page and start reading. You will pick up lots of hints there and can understand what you have much better. Knowledge is power.
Big LOL! I just sent the last post to myself. SarahL2491, that was meant for you. Gonna be a long day.
Marell
Thanks for responding. I really appreciate talking with people who understand this. Stay in touch. :)
Marell
Good morning-
I had my first episode of extreme weakness after a shower yesterday. When I tried to step out of the shower, my left leg leg felt numb and I had left foot drop. My right leg felt like jelly at the same time. When I could get downstairs, I turned up the air conditioning and took a 6 hour nap.
Do you ever need steroids for something like this? I have read how many people have experienced this as well.
Thanks, Marell
Yes, the progression in the past one week has me concerned, but resting and feeling better. Moving forward and not waiting around. I feel like I have left foot drop now and should pick up a cane today. This is so weird!
Marell
Good info to have. Appreciated. I was surprised last night by the first episode of extreme leg weakness after a shower. I turned the AC on low-low and feel better this am. I have decided the sensory issues are as bad as the weakness.
However, I have two kids, each with a special need, and they don't complain every day. Just every now and then, so I will to.
I know I'll have more questions.
Thanks, Marell
nothing wrong with oatmeal...keep at it
MRI results were back in 3-4 days, probably depends on the facility, be sure and ask when you go, usually the tech will know, not the front desk!
while you are there, ask that they burn you a copy and a copy of the report, you may have to come back to medical records for this, depends again on the facility.
good luck and remember to hold real still during the MRI.......
that's important.
I think it different for everyone. I woke up one morning and my legs felt like they were asleep from hips to toes. They would kinda wake up but never completely. Then it moved into my hands and arms. I would get shooting pain down my spine and legs if I looked down. With in 6 months they had me diagnosed.