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Progression? Let me fill you in...
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Progression? Let me fill you in...

Hello. I'm back. So I believe it's been since last weekend that I was here. Let me fill you in.

I did go to my primary yesterday and he ordered an MRI with gad. I told him about some things I had pieced together in hind-sight. Starting last summer I started with hand tingling, but thoughht it was related to my new job which is 99% typing. It went up my arms to my feet, then legs, tongue and head. Then in February the real noticeable prickly tingles set in that were getting more uncomfortable. Again I thought I was working too much, but March was really strange.

I completely lost my appetite for three weeks, and at the same time had a golfball sized lump feeling in my throat. It was a little hard to swallow. After losing 15 pounds in three weeks (Bonus!), my appetite came back, the lump went away, and then I noticed when I swallowed I could only feel one side of my throat muscles. Again, I was just over-reacting.

Then I had that electric shock which caused me to post last time. About then I noticed my ears were ringing more often and I kept looking for new reading glasses. I had a few muscle jerks, and didn't think anything more.

At the beginning of May, my shrink , said he didn't think my antidepressant had caused that shock and I hadn't changed any dosing. He thought it was MS.

So two weeks ago, I nearly passed out three times at home and once at yoga class. I described it as complete blackness with a faint feeling. Each time was a few 3-5 seconds. I thought I needed to drink more water and take better care of myself. At that yoga class I noticed when we were lying flat on our mats on the floor, I was leaning far to the left and could't use the top of my left leg muscles to push myself back to centered. It was an eerie feeling and I thought stroke ?, ignored it and moved on.

This past week the muscle jerking is uncomfortable and inconvient. My left knee doesn't want to lock. My primary yesterday had me stand with my eyes closed and I kept falling back. I fell flat on my face, after bouncing once, at the state capitol. And out of no where this last week a tiny bit of month long ocassional lightheadedness is all of the time and I keep having to hold onto things around my home. When I turn to quickly, I have to take a side-step to keep from falling over.

Sometime in the past two weeks, I've started to feel like I'm standing on a wire and have really intense sensory feelings on my head, arms, and legs. It got to be so uncomfortable that I'm up every day at 4 am and this past week, I had a bowl of oatmeal on Tuesday (halejuah to easy weight loss!). And yes I know that's not healthy weight loss. Now, however, it is either going away or I'm getting used to it.

All of a sudden I feel like there is a band of numbness that starts at my left hip and travels straight down to my toes. My left foot hasn't been wanting to pick up as easy.

Now I'm waiting for pre-approval for the MRI andwondering what you all think. How long does it take for MRI results to come back, and is it possible to feel SO different SO quick?

Thanks,
Marell
11 Comments Post a Comment
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Avatar_f_tn
I think it different for everyone.  I woke up one morning and my legs felt like they were asleep from hips to toes.  They would kinda wake up but never completely.  Then it moved into my hands and arms.  I would get shooting pain down my spine and legs if I looked down.  With in 6 months they had me diagnosed.
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Avatar_f_tn
nothing wrong with oatmeal...keep at it
MRI results were back in 3-4 days, probably depends on the facility, be sure and ask when you go, usually the tech will know, not the front desk!

while you are there, ask that they burn you a copy and a copy of the report, you may have to come back to medical records for this, depends again on the facility.  

good luck and remember to hold real still during the MRI.......
that's important.
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2190999_tn?1397182731
Good info to have. Appreciated. I was surprised last night by the first episode of extreme leg weakness after a shower. I turned the AC on low-low and feel better this am. I have decided the sensory issues are as bad as the weakness.

However, I have two kids, each with a special need, and they don't complain every day. Just every now and then, so I will to.

I know I'll have more questions.
Thanks, Marell
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2190999_tn?1397182731
Yes, the progression in the past one week has me concerned, but resting and feeling better. Moving forward and not waiting around. I feel like I have left foot drop now and should pick up a cane today. This is so weird!

Marell
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2190999_tn?1397182731
Good morning-
I had my first episode of extreme weakness after a shower yesterday. When I tried to step out of the shower, my left leg leg felt numb and I had left foot drop. My right leg felt like jelly at the same time. When I could get downstairs, I turned up the air conditioning and took a 6 hour nap.
Do you ever need steroids for something like this? I have read how many people have experienced this as well.
Thanks, Marell
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2190999_tn?1397182731
Thanks for responding. I really appreciate talking with people who understand this. Stay in touch. :)
Marell
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2190999_tn?1397182731
Big LOL! I just sent the last post to myself. SarahL2491, that was meant for you. Gonna be a long day.
Marell
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Avatar_f_tn
save the steroids for LONG attacks, check with your neuro first.
many of the little naggy things are just pseudo-flares and we just
have to live with those

too many steroids are not a good thing and have their own basket of side effects.

get you some literature, plenty on here, on the right side of page, go to MS web page and start reading.  You will pick up lots of hints there and can understand what you have much better.  Knowledge is power.
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2063887_tn?1337833346
The results came back the same day when I was diagnosed.  I'm not sure how that happened though because it normally takes a few business days. You posted that you had extreme weakness after a shower.  I am very heat sensitive and cool showers actually help me feel better.  I used to love a nice long hot bath.  I'm afraid those are a thing of the past! LOL!

Best wishes!
Chris
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198419_tn?1360245956
Hi Midijane,

Did your primary order testing for thyroid? Some of what you describe sound alot like thyroid problems.

Hope your doc is willing to look at all possibilities, and get to the bottom of this so you can feel well again.
-shell
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2190999_tn?1397182731
Thanks for putting things into perspective Sarah. It's strange thinking about these symptoms without fitting yourself into any box. But I am definitely keeping an open mind about whatever this is, and I am planning on posting on the lyme disease forum as well.

Shell, my thyroid was checked with a few other basics in January and everything was fine.

And Chris, take care of yourself :)

Thanks, Marell
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