Progressive MS and Dr thinks I have developed Conversion disorder as a result of trauma

Does anyone know where in the world to get info on this????  She has had to consult several specialists outside of the state.  There is no doubt now that I ave progressive MS, but as seizures are not responding to the meds she is wondering if they are [sychogenic in nature.  The experts she consulted with said it is not uncoomon for someone with MS who does a rapid decline to develop CD from the physical trauma. If that is the case where is the research??  Still getting worse. Evoked potentials came back with bad news,,,,,,bed ridden and they just keep increasing meds.

[Sumanadevii]

This is my opinion and ONLY my opinion.

I would get a second opinion.  It seems to me that when doctors run out of ideas to treat patients they then begin to blame it on stress, anxiety, depression and now conversion disorder.  Sorry I ain't buying it.

Keep us updated on your decision.  I am sure others will have words of advice too.

Sumana

[kerrtelli]

The second neuro I went to said I either had MS or depression.

Now I have been seeing a very well respected psychiatrist for about five years for anxiety/ADHD.  When I told him what the neuro said, he actually got angry and said that true conversion disorder is very rare.

I would find a psychiatrist that is well respected and get their opinion.

I was lucky to have been seeing someone already.

Don't let the doctor tell you it's in your head because they can't figure it out.
If you have progressive MS than your seizures can be another symptom of the disease.

I am not not a doctor nor do I play one on TV.  LOL!
But, I do have experience with stupid neuros who say stupid things not realizing that MS is an everyday struggle and until they can walk or roll in your shoes, they cannot pretend to know what you are feeling.

Just my opinion.

Keep looking up!

Kerri

[jensequitur]

Crissy, I agree with everyone - if the doctor thinks you have progressive MS, but that you're faking your seizures, she's out of her mind.  

And you can play this game two ways.  If you have a problem with doctors in your area, and she's the best you can do, then you might consider seeing a psychiatrist about the 'conversion disorder.'

Or you can look for another doctor who is a little more experienced in treating people with MS.  I didn't realize how important this was until I actually started seeing an MS specialist.

I'm curious about these seizures.  How do they present?  (By which I mean how do they feel, do you lose consciousness, etc...)

[Lulu54]

You have gotten some great advice about change of docs and the psychiatric angle.  The seizures puzzle me a bit though, because they are fairly rare in MS - but you could be that lucky person who gets seizures from MS (3-5% of MSers have seizures according to NMSS.

http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/seizures/index.aspx

I find it intersting that they have called this progressive MS, when that form is usually a very slow but steady decline without relapses.  I would find another MS specialist and ask for the second opinion.

sorry you are going through this - stay in touch, ok?
Lulu

[jujuminx]

I am with the gang on this one, get a second opinion pronto!

Julie