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294596 tn?1193449425

Q...What is this buisness about faking symptoms???

Yeah that's right...medical professionals work so hard to get their degrees...you know staying up all night for exams and preparing for clinical rotations and such just to FAKE symptoms of an illness as debilitating as MS and all for what.....a disability check!!  Not....I would much rather make my 60.00 an hour doing what I love. Give me a break.  I get the whole we don't take care of ourselves but faking symptoms, come on.  Most nurses I know are work a holics just like myself.  I ust to jump at the chance to work doubles here in Cali due to the time and half past 8 and double past 12.  I never left money on the table if I could help it.  Very rarely would I pass up the chance.  And when I was Cath Lab, I was on call 2 weekends a month and 2 days a week.  Yeah...they figured me out.  This infuriates me!!!!  If anything, I run the risk of loosing my job if I'm diagnosed.   What is this all about?????
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Avatar universal
  Yeah, I was in a hurry and really didn't mean anything about education levels.

  I think that any post that helps bring some activity is good as long as it isn't offensive. If I offended anyone by my post I certainly apoligize for it. This thread certainly invigorated the forum and brought some discussion that may have been beneficial, it could also easily have offended and I will try to chose my words a little more politacally correct in the future.

  It isn't always easy to convey what you are thinking or exactly what you mean. By the time I got back to read the thread of my original post it was a little to late to correct things, and so I just had to sit back and take it on the chin.

  And I really believe that there are many avenues to obtain an education. Some are formal, some are not. I have know highly educated people that never went to college. I work with engineers that have no degree. They learned their trade while it was being invented and so they are recognized as experts in their field. And I have know some that went for 4-6 years and were still idiots. I myself am well read. I love to read, its a passion. I don't read any non-fiction except for a few Robert Ludlum novels. I just browse the library and bring home the oddest stuff to read. I find it stimulating. Would I say I'm well educated? No. Well read? Yes. As someone I work with likes to say, "I know stuff".

  Time to go back to work, everyone have a good night!

  Johnny

  So if I was faking my symptoms, now that we are on this subject, anyone have any good advice?



  JUST KIDDING!
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Avatar universal
All of this talk about "faking it" . . . you know there have been many times that I've questioned myself.  It is just so hard to believe you had symptoms after they've subsided, especially the weird stuff: tingling, banding, a cold/hot spot, the sensation of water.  I have questioned if I had only imagined something.  On several occasions, I have reassured myself because I had the symptom before I read about its connection to MS.  I've even neglected to tell the doctor things, because it sounded like I had been reading up on MS.  I hope I'm not alone in this.  My running joke was "One way or the other . . . it's all in my head!"

Sherry
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Avatar universal
lo like the sitting up on the handicapped section oooooh!! whoopee ! I got an nhs wheelchair that doesnt go anyware lol Sense of humour does help bigtime ! Wont hug you again just in case I squash you lol xxx chris
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251222 tn?1270936117
Good grief, the brain again.  Hadn't read the post directly above mine, I mean, sorry.

Jazzy
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251222 tn?1270936117
Thank you Chris, hugs back atcha!!!
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251222 tn?1270936117
Hi Quix and Johnny,

Thank you for putting the extra information to that sentence. It originally had my stomach sickened. ;-)  So it definitely tee'd me off. (big smile)
I can understand how people who have knowledge of the medical field could more readily 'fake' it. And maybe, some of them have 'aches and pains' unexplained, and because they are accustomed to seeing people with these illnesses, they start thinking this is what is going on with them. I dont' know, just pondering.
I dont' know about anyone else, but I'm sure not going to ever be living the high life on disability. lol  The only perk I've found so far, is I get to bring in a chair, for the amount of time I can sit at a football game. Ooo and I can sit up on the 'handicapped section' oh joy. Can't do bleachers! Hehe somehow I think I got the short end of that trade.

Johnny and I were writing at the same time, so I hadn't read the post directly below mine. Quix I will have to look up flooging. LOL

Hugs all

The fizzle
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147426 tn?1317265632
Personally I think your presence here on the forum has enlivened it, excited people (nooooo, not that way!  Down, girls!) and elevated it.  There is so much information flowing, and you are definitely a big part of it, that we are all delving into deeper discussions.  Thank you, and I'm sorry I forced you into a late night search for something that wasn't important.  

Jazzy - Johnny was referring specifically to comments I made about the health care industry and a uncommon syndrome that is most typical of people in that field (becasue I had talked about it), but usually they are more peripherally a part of it.  He accidentally mistated the "education" part. No, none of us feel that people who fake problems are those without an education.  In fact, on the Munchhausen's Syndrome that I was speaking of on another thread, studies show that it is most often people with access to a lot of medical info and who are of "above average intelligence."  The gain is a pathological need for attention, not disability money.

This disease has robbed many of us of the life we had or had planned.  Your career was as precious to you as mine was to me.  I understand your agony at losing it.

Johnny is right.  This whole thing mushroomed from a comment made by someone unknown in writing to the outrage that all of us would feel if that accusation had been leveled at us.  But, it WASN"T.  It was just a part of a discussion in general.  But, it is notable how painful it is when we perceive that our physicians think that of us.  And some have endured the actual accusations of faking.  When we are ill and in pain, such things cut to the bone.

Quix
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Avatar universal
sorry didnt see your post im that slow at typing xx totally agree with every word you said there
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Avatar universal
Personally I would like to say to johnny that the statement didnt offend irritate or p*** me off ! I think its really hard to convey the right meaning of what your saying when typing on the net .
I know sometimes I post something and then think OMG that doesnt sound right or sympathetic and then I stress about it . Dont know about other people maybe its to do with lack of concentration on my part unintentionally !
Jazzy huggs!!!! if you look at my reply  on uk2s post 2 worlds I truly kno what you mean I live in a different world now and yes my life does not resemble what it used to be !! xx chris
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147426 tn?1317265632
But when you're at work we have no one to floog.  You do really that becasue of your protests we downgraded all punishment to flooging.  Siddy will testify to this.  Sorry I was so hard on you.  I also confuse things I've read and where I read them.  I don't know why I got so upset, it was a minor detail and is definitely something that some authors would make a point of.  It really doesn't matter.  Sorry.  Q

Folks, the reality is that people do fake things.  Some people.  And sometimes it may appear to the doctor (especially if they are already skeptical) that someone is faking.  This happened to me with my old neuro and I'm sure is one of the reasons he never believed me.  He was checking my knee reflexes and they were shooting out like a rocket.  For me this is very uncomfortable, I was already jumpy and once I anticipated the strike and my leg jerked.  He had laid his hand above my knee and I think this actually was enough to cause the kick, but he apparently didn't.  I wasn't faking, I was nervous and upset as I always was when he was evaluating me.

Overall, I do believe that neurologists are far too quick to dismiss as imagined, feigned or exaggerated symptoms that "don't fit together."  With MS, because the damage does a hop, skip and a jump around, the symptoms are all over the map.  If you are unlucky enough to have a set of symptoms that don't immediately suggest MS, then it may sound like foolishness - to a general practitioner especially.  Neurologist are paid the "Big Bucks" to make sense of the weird stuff.  The ones that will only recognize classic presentations are the ones who become dismissive, defensive and disdainful.  For they are most likely to miss the diagnosis. Then, because they see so many people who they can't diagnose, they begin to assume that it all must be due to depression, hypochondria, or anxiety or even faking.  Then, I think, they begin to believe their own rationalizations.

I see a neuropsychologist.  These are PhD Clinical Psychologists with very advanced work in neuropsychology.  They do testing mostly on the request of neruologists, with whom they have to work closely.  He stated outright that the most arrogant group of physicians, in his experience of 30+ years) are neurologists.

Those of us who are or have been undiagnosed have to walk a fine line between really needing for the doctor to see our problem and the possible tendency to exaggerate it.  Or the natural tendency of most people to "soldier it through" and minimize things so we don't sound like whiny crocks.  That's why we often get flustered.  If something isn't bothering you now, how do you describe in sufficient detail for the doctor to "get" how severe it was?

Quix
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251222 tn?1270936117
Guess I forgot to say that I was in an entirely different field of work - the landscape and greenhouse industry before I became ill. I had the world to lose, just as much so as someone in the medical field. And of course, I lost all of it.


Jazzy
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251222 tn?1270936117
The comment of  'not doctors, nurses and highly educated individuals that have little to gain from a falst report' .. um that sort of sits uneasy with me.
Do you believe that 'non highly educated' people have alot to gain by faking symptoms?  


J.
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Avatar universal
  OK, lets put this to rest. I went to shower and it suddenly popped into my head where I found it. I was reading the handbook and came across the paragraph that had to do with other possible causes. I did a search on the Internet for something I didn't understand and it was at that web page that I ran across the statement. It was not targeted at MS patients but at those that may report false symptoms. When I get home I will try to find that web page. There is a reason I couldn't find it again, I wasn't in the right place.

  I haven't reread my original post but I'm not sure I ever even mentioned false symptoms and specifically MS or just made a general statement that I found it interesting.

  Sorry if anyone was offended, pissed off, mad, or irritated with me.

  If it makes you feel any better I still love you all, for all the wonderful things you do, especially when you find room to excuse an individual that makes a comment that is very misinterpreted.


  Johnny
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Avatar universal
  I read it before work yesterday, I got home and tried to find it, I spent two hours before going to sleep reviewing the sections I had read or skimmed over. I will continue to look for it, it was contained in a single paragraph and made mention of the reasons some people might fake symptoms to include attention getting and claims. I did a search and still couldn't find it but to be honest the search feature for the electronic pdf file I have is pretty crude.

  I was looking at Chapter 6, Clinical Features, Chapter 7 MRI Techniques, Chapter 8 Biomarkers, Chapter 9 Evoked Potentials, and lastly Chapter 10 Managing Symptoms.

  I am sorry if at the moment I can't find the specific reference, I am working, 3 on 3 off, 12-hr shifts with an hour commute each way so I don't have a lot of time to search for it at the moment. I would certainly NEVER make such a statement without some way to back it up, and again it was only made it to shed some light on some of the things a neuro has to consider when examining a patient and in the case of MS, often times with normal test results or no clinical evidence.

  It wasn't a jab at the health care profession, and I certainly believe as you have stated it probably deals mostly with those on the fringes of that industry, not doctors, nurses, and highly educated individuals that have little to gain from a false report of symptoms. Nor was I even slightly implying that anyone here would ever fake symptoms. I am in the same boat as most of you, none dx'ed and trying to find out whats going on, if I'm faking my symptoms then it's the damn voices in my head telling me to. So many cracks to avoid.

  It's entirely possible I read it in another manual that I recent downloaded. Memory recall is not my strongest suit right now.

  Now if everyone is done flogging me I'm going to work...
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147426 tn?1317265632
Hi, all, I just got up and saw the discussion.  I have been reading this book for a couple months now and I have never seen any comment even approaching the one that Johnny refers to.  Johnny, please tell me the Chapter title and subheading that you found this in.  I need to see it to understand how it would fit in this book - its context.  Quix
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294596 tn?1193449425
Thank you Roxie.  I know I have to face it but I am afraid of what they will find.  I know that might sound crazy but I don't want my life to change.  Don't want to take meds.  

What kind of nursing did you do?  I've done Telemetry, Cath Lab, Electrophysiology Lab and now ER.  I love helping people and have always had a hard time asking for help.  I think that is what is really driving me nuts.  

Angel
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266400 tn?1193634481
I can SOO relate to you!  I went to a MS doc not to long ago (mind you, I was dx 7 yrs ago by a ms doc in another sate). now with lesion on MRI gone from 7 yrs ago. this doc doesn't think I have MS).. so he says to me "since you're a nurse, you prob know too much and quit reading on the internet!".. I was speechless... for a second.. then I said to him "if you were dx with MS or a disease, you wouldn't research it".. he didn't answer me!!    HUGS TO YOU!!  It's hard, I know.. I had to quit my nursing job 3 yrs ago and got on disability.. not that I WANTED to, but took me over a year to realize I SHOULD!
Hugs again!
Roxanne
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294596 tn?1193449425
Sorry for all the confusion guys.  I think I am just feeling a little overwhelmed and scared at the same time.  Johnny........I did not mean to point a finger at you. I did understand that you read it in the book.  Sorry that it may have felt like that.  I am extremely stressed out right now with all this.  :(
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Avatar universal
I am feeling extremely blessed to have the neuro I have!!!

She is amazing!  I was told by my primary that my symptoms are rarely found together and could be indicative of MS.  I had a dillusional understanding of the disease, freaked out and immediately went home to research it.  

When I went to my neuro, before anything else I told her, "Here's what happened: went to dr. I listed off most of what I was experiencing (left out ON that had been diagnosed by my opthamologist because I didn't think there was a connection and the bladder too at first)  he ran tests, ruled out blah blah and blah, then he asked questions about eyes, bladder, etc. said possible MS, so after run-around with a few other docs I am here.  I looked up MS because I thought you just got paralysed and died so I freaked out and needed answers.  I don't want it anyway so, I hope I have a slipped disc or something, if that even could do all this.  I just want a Dr. that will listen to me and believe me."  

And she did!  She did a bunch or coordination tests, reflex tests and flashed a light in my eyes a few times.  She saw a few muscle twitches going on in my arm and face.  She told me she believed me because that was her job.  She immediately ordered MRIs and then she herself gave me a pamplet on MS.  She said, "knowledge is power, so don't be afraid of it.  I am not saying you have MS, but there is a chance.  You need to know what you are facing here, at least so you can be extremely thankful if you find out you don't have it."
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Avatar universal
I think its to do with having clinical evidence  and fitting in a particular box which ticks xyz symptoms for disorders, . People who fake can do something about it and they may gain in monetary terms , eg benefits But also neuros dx a lot of people as having as zilla said on another post conversion disorder eg people who have ms type symptoms which are really psychological but manifest as physical !  They basically cannot stop the symptoms as its an underlying emotional trauma which is causing the physical symptoms . Hope this makes sense
chris uk
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Avatar universal
I'm a little confused about this post, so if this response doesn't fit . . .OOPS!  

1.  I do wonder why it seems that most neuros are dismissive.  Is it possible that there are so many "fakers" that everyone is looked at with skepticism?

2.  What would the advantages be to "fake" MS?  I'm not seeing any perks at this point :-)

Sherry
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Avatar universal
I know my neurologist told me that I shouldnt look on the imnternet as it wasnt constructive. I can understand how some people may gain from faking it in the case of claims for accidents etc Rearending as you call it johnny is  a classic example in the uk for insurance claims. Cant really see how it relates to ms though your hardly likely to display ms symptoms in respect of insurance claims although you may for disability benefits I suppose . I dont think there are many who do for benefits in the uk I dont know about the us though !
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Avatar universal
  The book is "Handbook of Multiple Sclerosis" Fourth Edition, Edited by Stuart D. Cook. 22 chapters, 546 pages, the same book Quix referred to yesterday in one of her posts.

  I'm not sure I agree with you regarding people doing their own research. Remember that opinions are like a**holes, we all have one and ... I for one had been trying to find an answer for a long time but didn't search the Internet for a disease. I sometimes searched for symptoms and what might cause them, but not specific diseases.

  I was once in an auto accident where I gently hit the back of a van at about 4 mph. No visible damage to either vehicle, no one injured. The individual driving the van said he would like to settle on the spot and wanted a few hundred dollars. I said I don't usually carry a few hundred dollars expecting to rear-end someone. I said maybe we should call the police and file a report, I am insured for that.

  By the time the police arrived and took his statement, he had gone from saying he was not injured and had no pain to I have to sit down, I can't move anymore. The cop actually looked at me and said "I am noting that he had no injury and believe him to be faking his condition", the cop requested that he be transported by ambulance and he declined and drove away. Later I got an estimate for $2500 in damages including an entire new paint job and work to repair a long dent on the side of his van. Our bumpers were the only thing that even touched and that was at an extremely slow speed. Turns out he was a minister of a local church. My insurance company refused to pay and told me over the phone that people of the church, those with titles, are the ones that they have the most problems with regarding fraud. They expect that no one will question their claim.

  That story just illustrates what I was saying about what was contained in this handbook. Much of it is very good, some of it you have to read and understand that there are people that will use a diagnosis for illegitimate means, not for a disability check (although some might) but more likely for a lawsuit or for damages. A physician has to consider those things because of the world we live in.

  I was not poking a finger at anyone here or of that profession.

  Johnny
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305544 tn?1197997610
Hello, what is the book called?  I think most people who come to the neurologist's office stating that they "think" they may have MS has probably done their research.  Like me, I could not figure out what was wrong, so many conflicting symptoms as far as I knew at the time.  Besides the doctors seem to take so long to give out a diagnosis.  Please let me know the name of the book, if you know it as I would like to be prepared to fake it Tuesday at my next Dr. apt. LOL.
Cheers, Terrie
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