well, Kathy so many of your symptoms sound just like mine...even the bobble head...movement from side to side...not always, just at certain times. Dizziness after a shower.. legs shaky at time when I try to stand up from sitting.
I can't seem to get a confirm Dx... lesions all over the place...just not a Dx... even in the Corpus Callosum... ?
but then my LP, VEP, bladder ultrasound were all Neg... so maybe that is why...maybe my neuro exams doesn't show anything? I know how frustrating this can be... I think if one of us get a Dx...it's a step forward.
take care
wobbly
undx
Kathy in PT doing balance exercises I was told to stand on one leg for 30 seconds then reverse and do the other. 5 times each. In the beginning I couldn't do the exercise...to wobbly. After a few months I got pretty good at it. I was taught to find a point in front of me but not down and concentrate.
Then when I thought I have this down, the PT came over and talked with me while I was trying to do the exercise. I was as bad as I was in the beginning. I just can't get it with other stimuli that I have to concentrate on. He says it is that brain.
Anyways still can't do it and I cannot even imagine trying to do it under the conditions you described.
terry
Oh, I wish I had a neuro or neuro-radiologist that mentioned where my lesions were located! Just the neuro-ophtha that noted the lesion on my pons...
All three neuro's I've had so far were pretty set on a diagnosis of small vessel ischemic disease for me, though since my new 3T MRIs, that should be thrown out of my differential diagnosis. I don't think it ever should have been there; no predisposing factors.
Anyway, I'm undiagnosed, and trying to understand my symptoms.
My right leg got really weak and shaky when I was concentrating on keeping my balance with intense visual stimulation.
Otherwise, it has only shown the weak shakiness when I'm trying to balance on that one leg, or when I'm in a flare of symptoms and I seem to get muscle fatigue quickly.
Thanks for all the input! I'm glad my shower has a grab bar, mostly because of dizziness, but if my leg started getting shaky in the shower, say if I tried shaving a leg while standing (sounds crazy to me!), then the grab bar would be realllly important! :o)
Linda, I only have a bobble head when my tremors are really bad, and then it shakes from side to side.
jensequitur, I hope my new neuro will tell me where my (significant) lesions are. Quix said he does very thorough neuro exams. Keeping my fingers and toes crossed...
Kathy
Sometimes I get right leg weakness. My leg feels shaky, and my knee wobbly - it'll bounce back and forth. When the neuro tests it, it bounces against his hand. I have a lesion in my right cerebellum, so it's not surprising.
hi
I have terrible weakness in my legs so bad they are shaking when i stand
When i shower and wash my hair with me eyes closed i
shake unbeleivable. My husband has to stay with me because i fear i will
collaspe. I do have a shower chair but it a bit on a pain for husband, I told my neuro
and he knew exactly what i was telling him, but did not go into the reason. At the time
we had so many issues to dicuss..Legs shake so bad, head bobbles. I feel like a Bobble head, lol hope you find out what is going on Linda DX"ed avonex
Well, I am not yet Dx but am definitely in Limboland, but for the past week or so, my balance AND strength of my legs have been VERY VERY off. The way you describe it is exactly how I describe it..definitely very shaky, and I HAVE to make sure that when I am standing up completely straight with no movement, that my feet are FAR apart, or else I just start swaying all over the place, and my legs feel like jello...its very odd. I go see the neuro. next week (2nd neuro). I do show right leg weakness in my neuro exam that my neuro. chiropractor assessed in me. He didn't assess this by making me push my knee into his hand, he had me lay down, and stood in front of me and tried to keep my leg from pushing his hand out of the way on my leg..both in and out directional wise, but the last quack neuro. I saw didn't seem to care...I have positive rombergs sign, left sided hyperreflexia, right sided leg weakness, and pupil defects when I am asked to follow the object with my eyes...
Anyways, I can relate...
bump; anyone else?
Thanks, Chrisy
I would be interested to hear what everyone has to say about this! Very interesting!!
Chrisy