Member Comments are provided by individuals and reflect their personal opinions only. Under NO circumstances should you act on any advice or opinion posted in this forum.  ALWAYS check with your personal physician before taking any action regarding your health! MedHelp International and our partners, sponsors and affiliates have no obligation to monitor any comments posted on this site, or the content and/or accuracy of such exchanges. MedHelp International does not endorse the views of any user.
 | 

Quix - MS and Naltrexone (I'm Desperate)

by grannyhotwheels, Jul 20, 2007 11:42AM
Quix,

My doctor just called me and she wants to start me on low dose naltrexone asap.  She has used this with several of her MS patients with no side effects and all had significant improvements.

My doctor says that she generally tries this first with all her MS patients and only a few have quit taking it and went to the normal MS treatment.

She feels that this is a wonder drug.  

What do you think?  Am I waisting precious time by taking this drug instead of the avonex or rebif which she had previously mentioned?  She said that within 2 months we would know if this will help me.

Please help me descide what to do.  I'm scared and feel like I'm all alone on this.  I don't know what all this stuff means.  Who do I trust?

Thank you
Carol
Member Comments (7)

by T-lynn, Jul 20, 2007 01:09PM
To: Carol
I would love it if my neuro would try the LDN.

As far as the disease modifying meds LDN can only be used in combination with copaxone.

Many that I know that has used LDN has had great success with it.

I honestly would try the LDN,its one pill a day vs the shots.

by grannyhotwheels, Jul 20, 2007 01:50PM
To: t-lynn
I start tomorrow.  Wish me luck

Carol

by grannyhotwheels, Jul 20, 2007 01:58PM
To: T-Lynn

by T-lynn, Jul 20, 2007 03:24PM
To: Carol
I wish you luck,keep me posted on how it goes and works for you.Wish my neuro was as opened minded.

by Quixotic1, Jul 20, 2007 06:43PM
To: Carol
I'm ignorant about the LDN treatment.  I had heard about it, but thought it might be "fringe" medicine.  Since then I'm not sure at all.  So, it's now on my list of topics (along with chronic Lyme) to research thoroughly.  I know enough about it to know that it won't harm you.  If your doctor is recommending it and she has a good reputation and you have confidence in her, then I say "Go for it!!"  We'll be right beside you and I'll bring along information that I find.

Okay?  I'm glad to see you beginning on something!  Quix

by grannyhotwheels, Jul 20, 2007 06:57PM
To: T-lynn and Quix
Thanks for your comments.  I am glad you all will be by me through this because I am really scared.  

Carol

by Momzilla, Jul 20, 2007 09:44PM
To: Carol
Hi, Carol~

I wanted to wish you luck with your new treatment.  I've been peeking in as my day has allowed.  I know you're apprehensive about it.  Will be thinking about you!

We're behind you!

Chris*
Related discussions
Post Comment
To
Comment
Post Comment
Recent Activity
CheeChee22 commented on Snoring As Your Inter...
10 mins ago
Fluffysmom needs cheering up...
drifter0213 commented on NFL week 11 Results! ...
23 mins ago
choo_choo commented on What You Don't Know A...
44 mins ago
Ufrustrated2 11.24.09:: last night sucked. a lady friend was to dr...
Katie116 commented on How much longer.........
5 hrs ago
Muffett35 is tired of always feeling ill!
LoveMyBostons can't wait to start my vacation!
RSS Expert Activity
What You Don't Know About Breathing...
10 hrs ago by Steven Y Park, MD
Thanksgiving
Nov 23 by Thomas Dock, Vet. Technician
Snoring As Your Internal Smoke Alar...
Nov 22 by Steven Y Park, MD
Community Members