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Quix and friends...Need your advice!!!
HI...Im new to the forums but I am quickly understanding that yall are the ones on this site to get the right answers from. Let me tell you a little about me then give you information about what I have been going thru the last two weeks.
My name is Lisa, I am 42 years old, female, single mother of two daughters (ages 18 and 15) and overall have been fairly healthy most of my life, but looking back over the last 20 years I can also recall small incidences where I have experienced many of the symptoms of MS, but nothing like what I have experienced in the last two weeks and still experiencing. So here is what is going on!!!
Two weeks ago, on a Thursday morning, I got up and went to work as normal as every other day. Thru out that day I began noticing tingling in the back on my left thigh. Pulling my clothing up and down while going to the restroom, caused burning sensations on the skin. It was irritating but I really didn’t pay it a lot of attention until the next afternoon when I noticed it had traveled up the leg into my left buttock, hip and abdomen. That was on Friday. Saturday morning the burning sensation had traveled to the front thigh, inside calf and top of my foot, and was now affecting the back on my upper arm from the shoulder down to the elbow. It was also wrapped around the trunk of my body, my back, side, chest and breast felt something was pushing and squeezing around me. The next day it continued to spread to middle of my back at my spine. My lower back had been hurting from day one, but the middle to upper back near my neck was now very painful. The pain feels like a constant severe sunburn, with no visual redness or rash, and intensifies with touch. Clothing, bed covers, anything with a light touch intensifies the pain. Also it intensifies with cold, air conditioners blowing on me or getting goose bumps is very painful.
I have seen 4 different doctors, 3 ER doctors and a PA at the clinic. They have run several test. The CT head scan came back normal. They tested for Lupus and it was negative, all regular blood work was normal except showing a strep infection somewhere in my body. Results of the rheumatoid arthritis test were negative, Mono spot test negative. These were done on the following Thursday, one week after symptoms arrived. On that Thursday, I noticed some tenderness on the back of the right thigh and thought it was progressing to that side as well. In the ER that day they gave me a shot of Depo-Medrol. The next day there was sensitivity in the back of the thigh, buttock, hip and abdomen on the right side but was short lived and gone the next day.
The following Monday I went to see the PA at the clinic I have gone to for a few years. She did more blood work to test for Lymes Disease, Diabetes, Thyroid. She also noticed I was having difficulty breathing, wheezing and diagnosed bronchitis, also my urine test showed a urinary tract infection and she began asking me questions about my urine/bowel trouble. I explained to her that I have very frequent urination, most of the time every 30 minutes or less. I have always felt this was due to my excessive thirst and constant drinking. The frequent urination does wake me during the night several times but most of the time I fall right back to sleep. I do have trouble going to sleep the majority of the time from restless legs and cramping that includes both legs. During this last two weeks I have also started experiencing constipation which is not normal for me. Also I am experiencing extreme fatigue which is also not normal for me, and have had to take several days off work because of the fatigue and the uncontrollable pain.
As you can imagine, all 4 doctors and myself are concerned and confused as to this neuropathy that is affecting just the left side of my body, all the symptoms on the right were short lived but the left is not showing any improvement at all. The PA has put me on Neurontin, Prednisone, Ceftin and Albuterol. I have been taking these meds for just 24 hours. Early this morning I woke drenched in sweat, in a cold room, with chill bumps on my skin, got up to go to the restroom, turned on the light and stopped in my tracks when I saw my face in the mirror. From my nose and chin all the way to my ear, on the left side of my face, was bright red. No redness was on the right side, but the left looked like had a bad sunburn on my nose, chin, cheek and ear.
The only symptoms I am experiencing now from my knees down to my feet is they fall asleep easily, especially when sitting Indian style with them crossed in front of me, or if sitting with then hanging to the floor in my computer chair. The entire left side of my body feels weaker than the right, including my left hand (but no pain here, more a light weight numbness). But I have noticed in the last few days my typing with my left hand is very off, I will intend to push one letter with one finger and push something completely different. I misspell word from typing the wrong thing. Also I have noticed small things like shutting the refrigerator door with my left hand, what used to come so naturally now takes me several tries to close it, I think im putting enough strength into closing it but it remains open, causing me to trying a second and sometimes even a third time. Also a involuntary twitch in my right thigh close to my knee that you can sit and watch it pulse.
I have done an enormous amount of research in the last two weeks on neuropathies, polyneuropathies, and can not find anything that the onset is present of just one side of the body. My doctors have mentioned the possibility of Multiple Sclerosis, but I can not find where that presents on one side either.
In past history I have had DVT affecting the entire popliteal artery in my right leg, uncontrolled shaking in my hands, numbness in my feet and legs upon standing, dizziness that comes on suddenly at any given time, and my vision has deteriorated in the last two years to having to wear glasses to read, a tremor in my eyelids that comes and goes, tremors in different places thru the years that come and go, hypoglycemia sometimes dropping to 32 but is controlled by eating something or drinking something with sugar and doesn’t happen very often, numerous infections especially strep throat, and several stomach viruses, with episodes of acid reflux including nausea and vomiting when at their worst. Also a past history of TMJ neuropathy of the right side of my head. The last two weeks I have also experience bouts of fever that comes and goes almost daily.
Do you have any suggestions or ideas what could be causing these symptoms I am experiencing? I am still waiting for the results of the lymes disease, diabetes, and thyroid. But honestly the doctors don’t believe any of these could be causing this.
I'm so happy to find a place where I can talk with others who have gone thru this ordeal. Thanks for all your help!!!!
My name is Lisa, I am 42 years old, female, single mother of two daughters (ages 18 and 15) and overall have been fairly healthy most of my life, but looking back over the last 20 years I can also recall small incidences where I have experienced many of the symptoms of MS, but nothing like what I have experienced in the last two weeks and still experiencing. So here is what is going on!!!
Two weeks ago, on a Thursday morning, I got up and went to work as normal as every other day. Thru out that day I began noticing tingling in the back on my left thigh. Pulling my clothing up and down while going to the restroom, caused burning sensations on the skin. It was irritating but I really didn’t pay it a lot of attention until the next afternoon when I noticed it had traveled up the leg into my left buttock, hip and abdomen. That was on Friday. Saturday morning the burning sensation had traveled to the front thigh, inside calf and top of my foot, and was now affecting the back on my upper arm from the shoulder down to the elbow. It was also wrapped around the trunk of my body, my back, side, chest and breast felt something was pushing and squeezing around me. The next day it continued to spread to middle of my back at my spine. My lower back had been hurting from day one, but the middle to upper back near my neck was now very painful. The pain feels like a constant severe sunburn, with no visual redness or rash, and intensifies with touch. Clothing, bed covers, anything with a light touch intensifies the pain. Also it intensifies with cold, air conditioners blowing on me or getting goose bumps is very painful.
I have seen 4 different doctors, 3 ER doctors and a PA at the clinic. They have run several test. The CT head scan came back normal. They tested for Lupus and it was negative, all regular blood work was normal except showing a strep infection somewhere in my body. Results of the rheumatoid arthritis test were negative, Mono spot test negative. These were done on the following Thursday, one week after symptoms arrived. On that Thursday, I noticed some tenderness on the back of the right thigh and thought it was progressing to that side as well. In the ER that day they gave me a shot of Depo-Medrol. The next day there was sensitivity in the back of the thigh, buttock, hip and abdomen on the right side but was short lived and gone the next day.
The following Monday I went to see the PA at the clinic I have gone to for a few years. She did more blood work to test for Lymes Disease, Diabetes, Thyroid. She also noticed I was having difficulty breathing, wheezing and diagnosed bronchitis, also my urine test showed a urinary tract infection and she began asking me questions about my urine/bowel trouble. I explained to her that I have very frequent urination, most of the time every 30 minutes or less. I have always felt this was due to my excessive thirst and constant drinking. The frequent urination does wake me during the night several times but most of the time I fall right back to sleep. I do have trouble going to sleep the majority of the time from restless legs and cramping that includes both legs. During this last two weeks I have also started experiencing constipation which is not normal for me. Also I am experiencing extreme fatigue which is also not normal for me, and have had to take several days off work because of the fatigue and the uncontrollable pain.
As you can imagine, all 4 doctors and myself are concerned and confused as to this neuropathy that is affecting just the left side of my body, all the symptoms on the right were short lived but the left is not showing any improvement at all. The PA has put me on Neurontin, Prednisone, Ceftin and Albuterol. I have been taking these meds for just 24 hours. Early this morning I woke drenched in sweat, in a cold room, with chill bumps on my skin, got up to go to the restroom, turned on the light and stopped in my tracks when I saw my face in the mirror. From my nose and chin all the way to my ear, on the left side of my face, was bright red. No redness was on the right side, but the left looked like had a bad sunburn on my nose, chin, cheek and ear.
The only symptoms I am experiencing now from my knees down to my feet is they fall asleep easily, especially when sitting Indian style with them crossed in front of me, or if sitting with then hanging to the floor in my computer chair. The entire left side of my body feels weaker than the right, including my left hand (but no pain here, more a light weight numbness). But I have noticed in the last few days my typing with my left hand is very off, I will intend to push one letter with one finger and push something completely different. I misspell word from typing the wrong thing. Also I have noticed small things like shutting the refrigerator door with my left hand, what used to come so naturally now takes me several tries to close it, I think im putting enough strength into closing it but it remains open, causing me to trying a second and sometimes even a third time. Also a involuntary twitch in my right thigh close to my knee that you can sit and watch it pulse.
I have done an enormous amount of research in the last two weeks on neuropathies, polyneuropathies, and can not find anything that the onset is present of just one side of the body. My doctors have mentioned the possibility of Multiple Sclerosis, but I can not find where that presents on one side either.
In past history I have had DVT affecting the entire popliteal artery in my right leg, uncontrolled shaking in my hands, numbness in my feet and legs upon standing, dizziness that comes on suddenly at any given time, and my vision has deteriorated in the last two years to having to wear glasses to read, a tremor in my eyelids that comes and goes, tremors in different places thru the years that come and go, hypoglycemia sometimes dropping to 32 but is controlled by eating something or drinking something with sugar and doesn’t happen very often, numerous infections especially strep throat, and several stomach viruses, with episodes of acid reflux including nausea and vomiting when at their worst. Also a past history of TMJ neuropathy of the right side of my head. The last two weeks I have also experience bouts of fever that comes and goes almost daily.
Do you have any suggestions or ideas what could be causing these symptoms I am experiencing? I am still waiting for the results of the lymes disease, diabetes, and thyroid. But honestly the doctors don’t believe any of these could be causing this.
I'm so happy to find a place where I can talk with others who have gone thru this ordeal. Thanks for all your help!!!!
I was having many of the same symptoms you are having, numbness & tingling in toes, feet, lets, and it moved up into my hip and back. I became cripple and could only walk with the use of a walker or crutch. Then the strange dizzy spells and severe weakness started, impairing my focus and concentration. My friend with MS said I was having similar symptoms that she experienced.
My neurologist diagnosed me with having nerve damage in my feet and back. After the diagnosis is when is worsened.
I believe two things may have been responsible. China-made sneakers with high levels of chemicals such as chromium used in tanning and softening leather, and caffeine.
I gave up tea, coffee, chocolate, and all caffeine. the numbness started going away and my legs improved, but I'm still not completely steady on my feet. (It took two weeks off the caffeine before I saw a noticeable difference.)
Now, I am experience the symptoms of hypoglycemia, which I'm planning to see a doctor about.
Hope this helps. Blessings to you.
My neurologist diagnosed me with having nerve damage in my feet and back. After the diagnosis is when is worsened.
I believe two things may have been responsible. China-made sneakers with high levels of chemicals such as chromium used in tanning and softening leather, and caffeine.
I gave up tea, coffee, chocolate, and all caffeine. the numbness started going away and my legs improved, but I'm still not completely steady on my feet. (It took two weeks off the caffeine before I saw a noticeable difference.)
Now, I am experience the symptoms of hypoglycemia, which I'm planning to see a doctor about.
Hope this helps. Blessings to you.
Thanks you for your information. I have read about transverse myelitis and mentioned that to my doctor yesterday, of course she just said that is out of her field and i need to discuss that with the neuro. She also told me that the MRI's that i needed to have done would cost approximately $6000 dollars, and made the comment that i was to expensive for someone with out insurance. I agree that would be very expensive, but i ask her "How expensive is that really when you can prevent total parralilis if it caught early?" "How much would you be willing to pay if you could have your normal life back again and not have this hanging over your head?".
She is setting up an appointment with the neurologist and until then I just need to keep quiet about any symptoms I am having and try to continue life. I am very discouraged right now. Three weeks into this and I am finding out that there are some very important people in my life who think I am being to obsessive trying to read, research and look for answers. My fiance told me last night that i have been obsessed for too long. He said someone once told him this when he wasnt feeling well and it really helped him and he thinks i needed to hear it......Just face it, Your body is finally falling apart, Its all down hill from here!!!! WELL...maybe that helped him pull himself out of the gutter he was in at the time....BUT he has no idea just how true that statement can be for someone who is facing a possible MS diagnosis. I realized with that statement from him, that this is something you deal with on your own, there is no way others can understand. I know I am just blowing off steam here...but damn I am so glad to have somewhere that I can. So I decided last night that from now on, no matter how i feel...when someone ask...the only answer they will get is "EVERYTHING IS OK". "I'M OK" or something like that. Oh my...I just thought of something....maybe i should change my screen name on here to....FALLING APART IN TEXAS....(LOL)
She is setting up an appointment with the neurologist and until then I just need to keep quiet about any symptoms I am having and try to continue life. I am very discouraged right now. Three weeks into this and I am finding out that there are some very important people in my life who think I am being to obsessive trying to read, research and look for answers. My fiance told me last night that i have been obsessed for too long. He said someone once told him this when he wasnt feeling well and it really helped him and he thinks i needed to hear it......Just face it, Your body is finally falling apart, Its all down hill from here!!!! WELL...maybe that helped him pull himself out of the gutter he was in at the time....BUT he has no idea just how true that statement can be for someone who is facing a possible MS diagnosis. I realized with that statement from him, that this is something you deal with on your own, there is no way others can understand. I know I am just blowing off steam here...but damn I am so glad to have somewhere that I can. So I decided last night that from now on, no matter how i feel...when someone ask...the only answer they will get is "EVERYTHING IS OK". "I'M OK" or something like that. Oh my...I just thought of something....maybe i should change my screen name on here to....FALLING APART IN TEXAS....(LOL)
I have heard some ADEM and also transverse myelitis can cause the band effect (as well as being cause by MS). The rash seems to indicate infection. Infection can can myelitis.. Sometimes transverse myelitis is only partial and just primarily affects one side of the body. The Depro-Med is considered my many to be a treatment of choice in myelitis. An MRI of your spine (particularly the cervical and thoracic) with and without contrast could help significantly in your diagnosis. If there is one or more lesions and their location and whether they enhance could be significant. Also, if there is a fairly large lesion the size and location can help determine if this is MS or a form of myelitis. I would try to also get a brain MRI as well with and w/o contrast. The treatment will vary according to diagnosis. Many feel the Depro-Med is the way to go because it will help several conditions where sometimes giving the MS meds when it is myelitis is not as effective. The amount of Depro-Med and the number of days given is also sometimes predicated by the timing of the onset of symptoms and when the dose is given---at least in very severe cases. At least this is what I have read. I am not a doctor, however. Hope this may help...
P.S. I have experienced such banding myself. It can be from hyperinflated lungs when it is in the chest (due to disease, allergic reaction or asthma, etc.) as well as a symptom in myelitis.
P.S. I have experienced such banding myself. It can be from hyperinflated lungs when it is in the chest (due to disease, allergic reaction or asthma, etc.) as well as a symptom in myelitis.
Thank you for writing and for the information. I did go to that site and my rash or red flushing was not like that. I did see my doctor today and talked to her about it and she seems to think it was from taking the neurontin or possibly the prednisone, but really had no idea what it was from and why just on the left side.OH well, just one of those things that will probably never have an answer, and so far has not come back again since the third time it appeared.
My blood work reports were back and everything was normal. NO lymes disease, NO thyroid problems...my liver enzymes she said was a little off but nothing there to worry about. She also repeated the neuro exam and noticed that my left side is "remarkably" weaker than the right now, when just one week ago they were the same. So she has refered me to a Neurologist, Ill find out tomorrow when I get to see him. She agrees with Quix that an MRI as soon as possible is the best thing. The problem with that is I dont have insurance that will cover it and from what i am hearing and reading, they are very expensive. Today my lungs were still compromised so she sent me to have xrays done of my lungs and a Lumbar with 5 views, so we can rule out any large mass pressing my lungs and spine, or maybe find out why my back is hurting so much. She is confused about the "binding" around my ribs, chest and back.
So again, back to ruling out the possibilities, and my fiance thinks every negative report we get is "good news". He just doesnt understand that the more we rule out, the closer we get to the "possibility" of something more serious.
Against my doctors better judgement I am discontinueing the neurontin for now. She is afraid i will find myself in alot of pain again, and she is probably right. But I know the neurontin is covering up my symptoms and I cant tell if its getting better or worse, and I want to know. I want to know if its spread to my right side as well, since i could feel it there on sunday, or if the symptoms on that side are gone now. My last dose was at 7am this morning, 14 hours ago, and I am again in pain, but so far its not unbearable. We will see what morning brings!!!
My blood work reports were back and everything was normal. NO lymes disease, NO thyroid problems...my liver enzymes she said was a little off but nothing there to worry about. She also repeated the neuro exam and noticed that my left side is "remarkably" weaker than the right now, when just one week ago they were the same. So she has refered me to a Neurologist, Ill find out tomorrow when I get to see him. She agrees with Quix that an MRI as soon as possible is the best thing. The problem with that is I dont have insurance that will cover it and from what i am hearing and reading, they are very expensive. Today my lungs were still compromised so she sent me to have xrays done of my lungs and a Lumbar with 5 views, so we can rule out any large mass pressing my lungs and spine, or maybe find out why my back is hurting so much. She is confused about the "binding" around my ribs, chest and back.
So again, back to ruling out the possibilities, and my fiance thinks every negative report we get is "good news". He just doesnt understand that the more we rule out, the closer we get to the "possibility" of something more serious.
Against my doctors better judgement I am discontinueing the neurontin for now. She is afraid i will find myself in alot of pain again, and she is probably right. But I know the neurontin is covering up my symptoms and I cant tell if its getting better or worse, and I want to know. I want to know if its spread to my right side as well, since i could feel it there on sunday, or if the symptoms on that side are gone now. My last dose was at 7am this morning, 14 hours ago, and I am again in pain, but so far its not unbearable. We will see what morning brings!!!
Your symptoms are so broad but the rash you got made me think of something I saw on a episode of "Mystery Diagnosis". It is called Dermatomyositis and it has alot of the same symptoms that you are experiencing. Here is a link to read about it and see what you think:
http://www.ninds.nih.gov/disorders/dermatomyositis/dermatomyositis.htm
I hope this helps or that you are able to find some answers soon! Welcome to the Forum and I look forward to finding out what is causing all your symptoms!!
Take care!
Kristin
http://www.ninds.nih.gov/disorders/dermatomyositis/dermatomyositis.htm
I hope this helps or that you are able to find some answers soon! Welcome to the Forum and I look forward to finding out what is causing all your symptoms!!
Take care!
Kristin
I have a question reguarding the Depo-medrol. Could it have slowed the progress or spreading of what ever this is? Keeping it from spreading to my right side quickly? I know the day they gave me the shot of Depo-Medrol I was feeling the pain on the back of my right thight and hips, the same hip they gave me the shot in. But that pain went away. And until just yesterday i have had no symptoms on my right side. That was a week and three days symptom free on that side. Just wondering if the steriods could be responsible for slowing the symptoms!!!!
Thank you for responding. Yes I am in the US...in Texas. The TMJ pain was the same as the pain i feel on my left side (although since I wrote this it has spread to include some of my right side as well). With the TMJ the pain was on the entire right side of my head, very sinsitive to touch and shooting pains like electrical currents running from where the jaws connect thrumy ear and head. The worse part was not being able to touch my head. my hair touching my skin hurt, and a hairbrush or comb was very irritating. I have read recently about Trigeminal Neuralgia and the symptoms I had back then were the same. I have not had this problem for about 10 years now.
As for the redness on my face, I can really describe it as a rash, no visible bumps or whelps or anything, just my face feeling flushed and turning red, but only on the left side. The onesidedness was what drew me away from thinking it was medication causing it.
I should be getting the rest of the results from my blood work tomorrow and will post them as soon as possible.
I just havent read anywhere that MS could present this was on just one side, but just yesterday the banding that i feel in my chest and ribs spread to my right side, and also the pain across my back, shoulders and arms is now on the right side as well. Althought today has been a really good day for me, almost no pain, but i can tell its still there just being covered by the meds. I am seriously thinking about asking my doctor if i can discontinue the neurontin tuesday night since I am off work wednesday, that way i can see just how much it has spread, or how much improvement I am making. But I am also afraid I will have to much pain and have to start over with the Neurontin and wait till it builds back up, but I want to know just how much is being controlled by meds. I guess like everyone else on here, I am experiencing good days and bad days, Today was a good day!!!!
My doctor is trying to rule out other possibilities before she refers me to a Neurologist, but Im sure that will be the next step if this blood work shows nothing tomorrow.
Again I thank you for your information, and hope you are feeling better soon!!!
As for the redness on my face, I can really describe it as a rash, no visible bumps or whelps or anything, just my face feeling flushed and turning red, but only on the left side. The onesidedness was what drew me away from thinking it was medication causing it.
I should be getting the rest of the results from my blood work tomorrow and will post them as soon as possible.
I just havent read anywhere that MS could present this was on just one side, but just yesterday the banding that i feel in my chest and ribs spread to my right side, and also the pain across my back, shoulders and arms is now on the right side as well. Althought today has been a really good day for me, almost no pain, but i can tell its still there just being covered by the meds. I am seriously thinking about asking my doctor if i can discontinue the neurontin tuesday night since I am off work wednesday, that way i can see just how much it has spread, or how much improvement I am making. But I am also afraid I will have to much pain and have to start over with the Neurontin and wait till it builds back up, but I want to know just how much is being controlled by meds. I guess like everyone else on here, I am experiencing good days and bad days, Today was a good day!!!!
My doctor is trying to rule out other possibilities before she refers me to a Neurologist, but Im sure that will be the next step if this blood work shows nothing tomorrow.
Again I thank you for your information, and hope you are feeling better soon!!!
Hi, you deserve a much longer response than I can give tonight. Your symptoms are suspicious for a neurologic problem and I would wonder about the inflammation being in the spinal cord. MS can present this way and can certainly be just one sided. The rash, though does not sound, like MS and suggests an infection or drug reaction.
The TMJ neuropathy - could you actually be describing Trigeminal Neuralgia? What was that pain like?
Twitching in the muscles is common with anything that disturbs the nerves and/or muscles.
I think it is quite urgent that you get an MRI of your brain and entire spinal cord (cervical and thoracic). Are you in the US?
Quix
The TMJ neuropathy - could you actually be describing Trigeminal Neuralgia? What was that pain like?
Twitching in the muscles is common with anything that disturbs the nerves and/or muscles.
I think it is quite urgent that you get an MRI of your brain and entire spinal cord (cervical and thoracic). Are you in the US?
Quix
Hi
yes mine are all right side with the nerve pain that wraps around i have it again today i have not had it for two weeks since being on a different med but it started again thursday evening and has got worse, it builds till i cant bare it!! I cant wear a bra as i already feel like im being hugged today it is more around my right thigh hip and feet and hands today and less round the rib area, i do get it on my right side but only on my arm and foot yet my left side is the weak one for walking as my left foot has spasms and cramp in it and my left hip hurts when i walk.
I get a flush that goes over my face and nose just like a butterfly rash but not as bad as the sunburn thing your describing and i was tested for lupus but it was negative iv now just thought it must be to do with my sinuses as there always inpacted so the xrays say and i have a steroid spray but iv ended up with another sinus infection again today and nerve pain all along my left face.
Let us know when your results come back?
God Bless
Samantha
yes mine are all right side with the nerve pain that wraps around i have it again today i have not had it for two weeks since being on a different med but it started again thursday evening and has got worse, it builds till i cant bare it!! I cant wear a bra as i already feel like im being hugged today it is more around my right thigh hip and feet and hands today and less round the rib area, i do get it on my right side but only on my arm and foot yet my left side is the weak one for walking as my left foot has spasms and cramp in it and my left hip hurts when i walk.
I get a flush that goes over my face and nose just like a butterfly rash but not as bad as the sunburn thing your describing and i was tested for lupus but it was negative iv now just thought it must be to do with my sinuses as there always inpacted so the xrays say and i have a steroid spray but iv ended up with another sinus infection again today and nerve pain all along my left face.
Let us know when your results come back?
God Bless
Samantha
I'm sorry to hear of all your problems. I'm not diagnosed myself with anything but do know understand the process you are going through. A MRI is a really good idea. They really need to see if something is going on.
When you talked of your redness and sweats, that it seemed to be right after you took the meds. Did they say anything about allergic reactions?
I hope you get answers and that you get feeling better soon.
Moki
When you talked of your redness and sweats, that it seemed to be right after you took the meds. Did they say anything about allergic reactions?
I hope you get answers and that you get feeling better soon.
Moki
No, have not had a MRI yet. Im in the process of trying to get an appointment with the Neurology clinic. This has all happened just in the last two weeks so im still in the process of elimination. Thanks for Bumping me back up and especially for your prayers!!!
Your symptoms could very well be MS or diabetes or Lyme or etc.... Have you had an MRI of the brain and spine? If not I would think that you need to get one and quickly. It seems that most of the diseases out there with these symptoms requires the process of elimination. Sorry I can't be of any help but by bumping you up maybe someone else will know something.
I'll be praying,
Carol
I'll be praying,
Carol
The bright red marks on my face were stricktly on one side...the left side as all the other symptoms have been. My nose and chin were red and it continues all the way to my left ear. I looked like i had fallen asleep in the sun with the right side of my face down. Also I have read the information on sticky blood syndrome and other than the DVT in the past I have no other symptoms of it, that i can tell except it tying in with MS. I should have the results of the lyme disease, diabetes, and thyroid back sometime today and will update my post with those results. I have had a lupus test and it was negative. I am interested in how your outcome is with your testing, especially since you are experiencing the same wrap around symtoms i am having. I do have a question as to whether yours is one-sided as well or bilateral on both sides. I feel that the left side of my chest and lung are constantly being compressed and breathing on that side is much more difficult. Its a very had thing to explain to someone who has never experienced this feeling. please keep me posted on your text results...Thanks!!
Hi,
Im not dx yet either and have had a clear MRI brain and spine and waiting tests of my spinal tap and nreve testing im also having a pelvic MRI in two weeks.
I first went to my doctor with a simular experience burning sensitive pain wraped round my thigh and going up to my rib area round the side it was unbearable to have clothes touch it they thought i had shingles at first and treated me for that but it came and went and then i had balance issues along with the fact that id had pins in needles in my hands and feet for nearly two years i got refered to a neuro i was still working up untill may when i came down with full body muscle spasms and iv not worked since iv been on all sorts of meds but am not too bad pain wise at the moment but cant walk far or stand for long. I have three children and its hard not knowing whats wrong its been 11 months since this all started and im still no further on knowing.
They seem to of done a good blood and scan work up on you with the referal to the burn like mark was it just one side and not like a butterfly across your nose as i would wonder lupus did they test you for that?
And with your history of DVT there is a condition called hughs syndrome (sticky blood)
It does all sound MS but then your constant thirst and urination would indicate diabetes and the cold fever sweats would indicate thyroid and all the other sx tie in with MS and lymes so i guess its a waiting game till you get those results.
Im sorry your feeling so poorly i know how you feel.
God Bless
Im not dx yet either and have had a clear MRI brain and spine and waiting tests of my spinal tap and nreve testing im also having a pelvic MRI in two weeks.
I first went to my doctor with a simular experience burning sensitive pain wraped round my thigh and going up to my rib area round the side it was unbearable to have clothes touch it they thought i had shingles at first and treated me for that but it came and went and then i had balance issues along with the fact that id had pins in needles in my hands and feet for nearly two years i got refered to a neuro i was still working up untill may when i came down with full body muscle spasms and iv not worked since iv been on all sorts of meds but am not too bad pain wise at the moment but cant walk far or stand for long. I have three children and its hard not knowing whats wrong its been 11 months since this all started and im still no further on knowing.
They seem to of done a good blood and scan work up on you with the referal to the burn like mark was it just one side and not like a butterfly across your nose as i would wonder lupus did they test you for that?
And with your history of DVT there is a condition called hughs syndrome (sticky blood)
It does all sound MS but then your constant thirst and urination would indicate diabetes and the cold fever sweats would indicate thyroid and all the other sx tie in with MS and lymes so i guess its a waiting game till you get those results.
Im sorry your feeling so poorly i know how you feel.
God Bless
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