Aa
Quix or wanna
Hi
having my mri soon and then back to see my consultant i want to take my timeline as i guess if the mri is clear or there not sure i want to show him my timeline so he does not just brush me off.
I posted it under please help! its the 16th post down dated 07/23/07 its a bit messy but do you think it will be ok? (sorry not sure how to do a link straight to a post).I think you have seen it Quix but you didnt say if it was good enough for a consultant to see or not.Know your both busy but would value your opion.
I see others on here have had nerve and muscle testing sometimes before there mri could my GP order that or does that have to be my consultant.
My MRI is on 14th of August but i dont see him untill the 5th of september but this appointment was made before i came down with the numerous muscle spasms and though i have been to see him again since the appoinment has not been changed.
Do you think if he finds something he will bring the appointment forward? Iv heard you should get treatment as soon as possible if it is ms ( bit late i guess as this has been mildly going on since 2000 and maybe before.) Im just worried as i seem to be getting bouts of new sx regularly and still cant get back to work cause of the nerve and muscle pain, i cant help thinking that if he had been more like your consultants in the USA where you seem to be able to talk to them easier that he could of arranged a nerve muscle test or some PT while waiting the 3 months for the MRI but im just left in this limbo land off work in pain and not knowing nothing!!!!
sorry about that moaning just slipped out.
hope your all well
God Bless
having my mri soon and then back to see my consultant i want to take my timeline as i guess if the mri is clear or there not sure i want to show him my timeline so he does not just brush me off.
I posted it under please help! its the 16th post down dated 07/23/07 its a bit messy but do you think it will be ok? (sorry not sure how to do a link straight to a post).I think you have seen it Quix but you didnt say if it was good enough for a consultant to see or not.Know your both busy but would value your opion.
I see others on here have had nerve and muscle testing sometimes before there mri could my GP order that or does that have to be my consultant.
My MRI is on 14th of August but i dont see him untill the 5th of september but this appointment was made before i came down with the numerous muscle spasms and though i have been to see him again since the appoinment has not been changed.
Do you think if he finds something he will bring the appointment forward? Iv heard you should get treatment as soon as possible if it is ms ( bit late i guess as this has been mildly going on since 2000 and maybe before.) Im just worried as i seem to be getting bouts of new sx regularly and still cant get back to work cause of the nerve and muscle pain, i cant help thinking that if he had been more like your consultants in the USA where you seem to be able to talk to them easier that he could of arranged a nerve muscle test or some PT while waiting the 3 months for the MRI but im just left in this limbo land off work in pain and not knowing nothing!!!!
sorry about that moaning just slipped out.
hope your all well
God Bless
Thanks for your replys
Didnt get them till i got back from holiday which was last night (sunday)
Scan tomorrow so just prat it will be fine.
Quix thanks for your answers i didnt read them till now and have posted a fewe new questions about the MRI but i think a few repeat itself so sorry about that.
Hope all you are ok
God Bless.
Didnt get them till i got back from holiday which was last night (sunday)
Scan tomorrow so just prat it will be fine.
Quix thanks for your answers i didnt read them till now and have posted a fewe new questions about the MRI but i think a few repeat itself so sorry about that.
Hope all you are ok
God Bless.
Hi, hopre your holiday was a good one. Your MRI is on the 14th. I want to talk to you about your worry that it will miss what's going on. MS is not usually as hard to diagnose as it seem on this forum. We are a collection of the exceptions, the ones where it is either quite elusive or who have had defective, dufus, and dismissive neurologists. The vast majority of the 300,000 MS patients in the US and dozens of thousands in the UK were diagnosed on the older machines.
We sometimes act like the older machines are useless. That is not true, but in the small percentage, that have especially tiny lesions. Go in with good hope that the test will show whatever it needs to. We're thinking about you!
Quix
We sometimes act like the older machines are useless. That is not true, but in the small percentage, that have especially tiny lesions. Go in with good hope that the test will show whatever it needs to. We're thinking about you!
Quix
Hi UK2 hope you has a good break with your kids?
I posted a reply to you some time ago, I think just as you were going away. As we are both ib the UK.
Hope everything is ok.
Take care
Em
I posted a reply to you some time ago, I think just as you were going away. As we are both ib the UK.
Hope everything is ok.
Take care
Em
It definitely sounds like MS to me. They need to try and get you in to dr sooner. Have you tried to get a sooner apt? I don't know how things go in UK, but do thet have a waiting list you can be put on, to get in sooner. Wish you well and some answers soon too. Karina
You are welcome! Let us know when you come home, and how your trip was.
Travel safely,
Wanna
Travel safely,
Wanna
Thanks
Looking forward to my trip. I will look at it again when i get back.
Thanks so much for your input into my posts and finding the time to help with my time-line its people like you and Quix and others that make this site so special you are all so lovely.
take care
Looking forward to my trip. I will look at it again when i get back.
Thanks so much for your input into my posts and finding the time to help with my time-line its people like you and Quix and others that make this site so special you are all so lovely.
take care
Enjoy your trip! I hope your rest does some good.
Your time line looks much better and more concise. Good work! After your trip, take a look at it again and see if you need to make any changes. (I found mistakes in mine after I had put it away for awhile.)
Again, enjoy yourself.
Wanna
Your time line looks much better and more concise. Good work! After your trip, take a look at it again and see if you need to make any changes. (I found mistakes in mine after I had put it away for awhile.)
Again, enjoy yourself.
Wanna
Re done time line what do you think?
Time line
1995
Glandular fever lasted one year
1996
Problems with constipation seek doctor’s advice diagnosed with IBS prescribed firbergel, which relieved problems.
1997
Pregnant with first child had problems with:
High blood pressure
1998
C- section as breech.
Spinal block was hard to put in and wore off half way through procedure so put me under general.
1998
6 months on bladder problems unable to release bladder fully constant UTI had test done at hospital diagnosed with an unstable bladder.
1999
In Jan my appointment comes through for a lascospany they find addisions from
c-section and that the bladder has healed to my womb they clear this at the same time as the lascopany stay in overnight.
1999
Pregnant with second child had problems with;
symphysis pubis dysfunction could not walk by the end a lot of pain.
Had strange rash appear on legs after being in the sun went in to hospital nothing found.
2000
Went 16 days over due only dilated to 3cm
C-section again spinal block hard to get in but works ok this time
Pins and needles felt over stomach and feet and hands with extreme fatigue
2000
Pregnant again with third child had problems with;
Sickness went into hospital twice with it put on drip lost one and half stone.
Symphysis pubis dysfunction again lots of pain.
Went to hospital with awful stabbing pain around the ribs scanned for kidney stones nothing found put it down to pulled muscle due to being sick all the time.
2001
C-section spinal block hard to get in again but worked fine.
Same fatigue pins and needles went to doctors this time prescribed anti-depressants.
2002
Contracted genital herpes go to std clinic prescribe aclovir last two weeks.
2002
Suffer from mood swings very emotional memory problems prescribed go to doctors they prescribed Prozac.
2003
Genital herpes aclovir prescribed last one week.
2003
Left shoulder pain with numb patch on back feels like running water down my back. Doctor prescribes anti inflammory.
Pain around ribs last for one week.
Come off anti depressants as not helping.
2004
Gastro problems pain in centre of chest reflux
Start to have problems swallowing food as it sticks
Go in for gastro examine camera down to see if any problems
They find inflammation can’t find reason why prescribed ranitidine 150mg stay on these for a while pain goes this problem still comes and goes now.
Ringing in my ears starts.
2005 take up running as feel so fatigue all the time think exercise will help.
After six months of running start to have knee and hip pain.
2006
After normal bloods doctor referred me to a rheumatologist diagnosed as having weakness in my thigh muscle allowing the thighbone to drop onto the patella bone and cause grating.
Pins and needles in hands and pain
X-rayed my knees and hands, hands clear never got result of knees.
Diagnosed hands as rhaynauds syndrome.
2006
Nov car accident at 40 mph.
X-ray at private chiropractor next day he diagnoses whiplash and low back
pain 3 month treatment. X-ray also showed slight deterioration in neck and slight curve to spine. Stopped treatment as cost too much.
Hot baths start making me weak and the pins and needles in my hands.
2007 Jan
Over sensitive type pain spreads to side of trunk of body unable to touch the area as very painful also the same around the top of my left leg.
Went to doctor she prescribed aclovir and takes blood work up all normal.
Suffer at time with constipation again with pain cleared with senna this problem comes and goes.
Stay on senna as a regular way of clearing problems.
2007 March/April
Heat makes my legs very weak the pins and needles in my hands feet and worse causes pins and needles across my stomach.
Hot weather does the same and even when I have a hot meal and hot drink the same happens.
Over heat easily.
Floaters in eyes getting worse
Blurred vision
2007 March/April
Went to a private chiropractor for;
Balance problems
Numbness on back
Pins and needles in hands and feet
Over sensitive nerve type pain on left leg and trunk of right body by my ribs.
Face pain
Pain in eyes over shooting of left eye jerky eyes
Memory problems
Word problems
Reduced sensation in private parts.
Bladder problems
She treated me and asked my doctor to refer me to a neurologist, as she could not treat the problems she done an eye test and reflexes.
2007 May
After seeing consultant who orders a MRI my doctor orders a sinus x-ray comes back with impacted sinuses prescribed nasal spray.
2007 May 14th
Come down with muscle aches and fatigue.
Next day wake up with relentless muscle spasms in my legs,feet,hands,face stomach could not walk or even feed myself stay like that for one week.
See consultant prescribes amitripline 10mg
Comes back two weeks later not as bad
See doctor prescribed lyrica and increased over a short time to 300mg.
June/July 2007
Balance problems still there
. Constipation constant, relief with senna getting less.
Rib pain on and off.
Tight band feeling around my limbs and arms.
Sharp electric type pain in head when bending my head forward.
Muscle spasm only occasional
Muscle twitches in bottom base of spine
Muscle twitches in legs.
Flashes of white light in front of eyes wake me up at night happened twice along with electric type pains in legs and body electric type pain last for two hours.
Floaters in eyes and a film like feeling over my right eye.
Time line
1995
Glandular fever lasted one year
1996
Problems with constipation seek doctor’s advice diagnosed with IBS prescribed firbergel, which relieved problems.
1997
Pregnant with first child had problems with:
High blood pressure
1998
C- section as breech.
Spinal block was hard to put in and wore off half way through procedure so put me under general.
1998
6 months on bladder problems unable to release bladder fully constant UTI had test done at hospital diagnosed with an unstable bladder.
1999
In Jan my appointment comes through for a lascospany they find addisions from
c-section and that the bladder has healed to my womb they clear this at the same time as the lascopany stay in overnight.
1999
Pregnant with second child had problems with;
symphysis pubis dysfunction could not walk by the end a lot of pain.
Had strange rash appear on legs after being in the sun went in to hospital nothing found.
2000
Went 16 days over due only dilated to 3cm
C-section again spinal block hard to get in but works ok this time
Pins and needles felt over stomach and feet and hands with extreme fatigue
2000
Pregnant again with third child had problems with;
Sickness went into hospital twice with it put on drip lost one and half stone.
Symphysis pubis dysfunction again lots of pain.
Went to hospital with awful stabbing pain around the ribs scanned for kidney stones nothing found put it down to pulled muscle due to being sick all the time.
2001
C-section spinal block hard to get in again but worked fine.
Same fatigue pins and needles went to doctors this time prescribed anti-depressants.
2002
Contracted genital herpes go to std clinic prescribe aclovir last two weeks.
2002
Suffer from mood swings very emotional memory problems prescribed go to doctors they prescribed Prozac.
2003
Genital herpes aclovir prescribed last one week.
2003
Left shoulder pain with numb patch on back feels like running water down my back. Doctor prescribes anti inflammory.
Pain around ribs last for one week.
Come off anti depressants as not helping.
2004
Gastro problems pain in centre of chest reflux
Start to have problems swallowing food as it sticks
Go in for gastro examine camera down to see if any problems
They find inflammation can’t find reason why prescribed ranitidine 150mg stay on these for a while pain goes this problem still comes and goes now.
Ringing in my ears starts.
2005 take up running as feel so fatigue all the time think exercise will help.
After six months of running start to have knee and hip pain.
2006
After normal bloods doctor referred me to a rheumatologist diagnosed as having weakness in my thigh muscle allowing the thighbone to drop onto the patella bone and cause grating.
Pins and needles in hands and pain
X-rayed my knees and hands, hands clear never got result of knees.
Diagnosed hands as rhaynauds syndrome.
2006
Nov car accident at 40 mph.
X-ray at private chiropractor next day he diagnoses whiplash and low back
pain 3 month treatment. X-ray also showed slight deterioration in neck and slight curve to spine. Stopped treatment as cost too much.
Hot baths start making me weak and the pins and needles in my hands.
2007 Jan
Over sensitive type pain spreads to side of trunk of body unable to touch the area as very painful also the same around the top of my left leg.
Went to doctor she prescribed aclovir and takes blood work up all normal.
Suffer at time with constipation again with pain cleared with senna this problem comes and goes.
Stay on senna as a regular way of clearing problems.
2007 March/April
Heat makes my legs very weak the pins and needles in my hands feet and worse causes pins and needles across my stomach.
Hot weather does the same and even when I have a hot meal and hot drink the same happens.
Over heat easily.
Floaters in eyes getting worse
Blurred vision
2007 March/April
Went to a private chiropractor for;
Balance problems
Numbness on back
Pins and needles in hands and feet
Over sensitive nerve type pain on left leg and trunk of right body by my ribs.
Face pain
Pain in eyes over shooting of left eye jerky eyes
Memory problems
Word problems
Reduced sensation in private parts.
Bladder problems
She treated me and asked my doctor to refer me to a neurologist, as she could not treat the problems she done an eye test and reflexes.
2007 May
After seeing consultant who orders a MRI my doctor orders a sinus x-ray comes back with impacted sinuses prescribed nasal spray.
2007 May 14th
Come down with muscle aches and fatigue.
Next day wake up with relentless muscle spasms in my legs,feet,hands,face stomach could not walk or even feed myself stay like that for one week.
See consultant prescribes amitripline 10mg
Comes back two weeks later not as bad
See doctor prescribed lyrica and increased over a short time to 300mg.
June/July 2007
Balance problems still there
. Constipation constant, relief with senna getting less.
Rib pain on and off.
Tight band feeling around my limbs and arms.
Sharp electric type pain in head when bending my head forward.
Muscle spasm only occasional
Muscle twitches in bottom base of spine
Muscle twitches in legs.
Flashes of white light in front of eyes wake me up at night happened twice along with electric type pains in legs and body electric type pain last for two hours.
Floaters in eyes and a film like feeling over my right eye.
Thanks so much on spending time on that i will go back over it today and might post it back up today if i get time. Im going to Cornwall (i live near london) for 8 days to be with my husbands parents as im finding it hard to cope with kids at moment so it will be a nice break. So if you dont here from me for a while thats why. I hope your PT and bloods went ok. It is good news that you are on your way to getting help from from recent posting.
God Bless
God Bless
Hi uk2…here are some ideas for your time line…
In 1996, did firbregel help?
In 1998, what were your test results and what happened?
In 2000, try to bullet your symptoms like:
• Experienced pins and needles in hands/across tummy
• Pregnant with 3rd child and was…
Explain what your sickness was when you were pregnant.
In 2002 and 2003, again, bullet your symptoms.
In 2002, it might be better to say something like “suffered from mood swings, having memory difficulties and was prescribed Prozac.” And again, use bullets.
In 2005, how long did you try to exercise before you had knee and hip pain?
“May 14th come down with relentless muscle spasm after a day of muscle aches and fatigue” Explain where the muscle spasm was and what was aching.
As the years go forward, continue to bullet your symptoms, and whenever you were given a test, what was the outcome?
When you state "for a while hot baths had made me weak now it was making symptoms worst also hot weather making it worst. Sometimes a hot cup of tea would effect me too have problem with over heating easily" again, state what symptoms are being effected.
You are clearly showing a progression of your symptoms. You just need to tighten it up a bit and make it a little easier for the doctor to read. I have difficulty reading, so I judged my time line by my readability…how easy was it for the reader to follow. I figured if I could get through it, the doctor should be able to.
I had posted my Time Line as an example…it is posted under TIME LINE- Wanna and TIME LINE Part 2- Wanna and they were posted on 7/27…I also reposted the time line instructions and I just bumped it up to the first page.
I hope this helps you. See what you can do. I hope what I have said makes sense. I'll check back later to see if you need more help.
Wann
In 1996, did firbregel help?
In 1998, what were your test results and what happened?
In 2000, try to bullet your symptoms like:
• Experienced pins and needles in hands/across tummy
• Pregnant with 3rd child and was…
Explain what your sickness was when you were pregnant.
In 2002 and 2003, again, bullet your symptoms.
In 2002, it might be better to say something like “suffered from mood swings, having memory difficulties and was prescribed Prozac.” And again, use bullets.
In 2005, how long did you try to exercise before you had knee and hip pain?
“May 14th come down with relentless muscle spasm after a day of muscle aches and fatigue” Explain where the muscle spasm was and what was aching.
As the years go forward, continue to bullet your symptoms, and whenever you were given a test, what was the outcome?
When you state "for a while hot baths had made me weak now it was making symptoms worst also hot weather making it worst. Sometimes a hot cup of tea would effect me too have problem with over heating easily" again, state what symptoms are being effected.
You are clearly showing a progression of your symptoms. You just need to tighten it up a bit and make it a little easier for the doctor to read. I have difficulty reading, so I judged my time line by my readability…how easy was it for the reader to follow. I figured if I could get through it, the doctor should be able to.
I had posted my Time Line as an example…it is posted under TIME LINE- Wanna and TIME LINE Part 2- Wanna and they were posted on 7/27…I also reposted the time line instructions and I just bumped it up to the first page.
I hope this helps you. See what you can do. I hope what I have said makes sense. I'll check back later to see if you need more help.
Wann
Thanks hun your a gem!!
ill check in later tonight but dont worry if you dont have time. Good luck with bloods and PT. And Have a great day.
ill check in later tonight but dont worry if you dont have time. Good luck with bloods and PT. And Have a great day.
Thanks!
It's not really that long, so stop apologizing! I have PT and blood work this morning and I am going to my sister-in-law's today, but I will print this out and work on it. I like having things in my hands to work on or read...I take books with me wherever I go.
I can probably get back to you this evening, okay?
Have a good one...
Wanna
It's not really that long, so stop apologizing! I have PT and blood work this morning and I am going to my sister-in-law's today, but I will print this out and work on it. I like having things in my hands to work on or read...I take books with me wherever I go.
I can probably get back to you this evening, okay?
Have a good one...
Wanna
Hope that helps its very long and abit messy but i think everything is in there. Forgot to post it to you but i hope you see it on here.
Thanks
Thanks
Time line
1995 Glandular fever lasted one year
1996 problems with constipation prescribed firbregel and dx IBS
1998 Pregnant with first child put on a lot of weight had high blood pressure at end had c section as breech. Spinal block was hard to put in and wore off half way through procedure so put me under general.
1998 8 months on bladder problems unable to release bladder fully constant UTI had test done at hospital unstable bladder, pain in pelvic area continues.
1999 go into hospital for lascosany( cant spell) to clear addisions from csection they find bladder has healed to womb problem cleared.
1999 pregnant with second child suffer with symphysis pubis dysfunction could not walk by the end a lot of pain.Had strange rash appear on legs after being in the sun went in to hospital nothing found.
2000 went 16 days over due only dilated to 3cm c section again spinal block hard to get in but works ok this time.
2000 experience pins and needles in my hands and across my tummy put down to anxiety anti depressants prescribed made no difference pins and needles went from tummy but came and went from hands.
2000 fell pregnant again with third child suffered awful sickness went into hospital twice with it put on drip lost one and half stone. Spd again lots of pain. Went to hospital with awful stabbing pain around the ribs scanned for kidney stones nothing found put it down to pulled muscle due to being sick all the time.
2001 c section spinal block hard again but worked again. Same fatigue pins and needles anti depressants again.
2002 genital herpes aclovir last two weeks
2002 suffer from mood swings very emotional memory problems prescribed Prozac as said depressed again!!!
2003 genital herpes aclovir prescribed last one week.
2003 left shoulder pain with numb patch on back feels like running water down my back. Doctor prescribes anti inflammory. Pain around ribs again for a week goes off again. Come off anti depressants as not helping.
2004 Gastro problems pain in centre of chest reflux start to have problems swallowing food as it sticks go in for gastro examine camera down to see if any problems just inflammation cant find reason why prescribed ranitidine 150mg stay on these for a while pain goes this problem still comes and goes now.
Also ringing In ears starts.
2005 take up running as feel so fatigue all the time think exercise will help.start to have knee and hip pain.
2006 referred to a rheumatologist she says I have weakness in my thigh muscle leading the thigh bone to drop onto the patella bone and cause grating. Also had pins and needles in hands and pain she x-rayed my knees and hands, hands clear never got result of knees. Dx hands rhaynauds syndrome.
2006 Nov car accident at 40 mph. don’t have x-ray till next day whiplash low back
pain 3 month treatment. X-ray showed slight deterioration in neck and slight curve to spine. Stopped treatment.
2007 Jan over sensitive type pain spreads to side of trunk of body unable to touch very painful also around top of leg prescribed aclovir went after a week kept coming back. Suffer at time with constipation again with pain cleared with senna this problem comes and goes.
2007 for a while hot baths had made me weak now it was making symptoms worst also hot weather making it worst. Sometimes a hot cup of tea would effect me too have problem with over heating easily.
March 2007 went to chrio for balance problems, numbness on back, pins and needles in hands, feet over sensitive type nerve pain, face pain pain in eyes over shooting of left eye jerky eyes, memory problems word problems reduced sensation in private parts bladder problems, she treated me and asked my doctor to refer me to a neuro doc as problems she could not treat done eye test and reflexes.
May 2nd see neuro doc order blood test and mri. Suggest sinus x-ray come backed completely blocked prescribed sinus spray.
May 14th come down with relentless muscle spasm after a day of muscle aches and fatigue like that till Thursday see consultant again prescribes amitripline which is increased then changed to lyrica and increased over a short time to 300mg.
June/july bladder problems still present with loss of sensations in private parts, balance problems, painfull feet with changes to shape of foot, eyes jerky again constipation awfull.reflux, rib pain on and off. Tight band feeling around my limbs and arms. Sharp electric type pain in head when bending my head forward. Muscle spasm only occasional muscle twitches in bottom base of spine muscle twitches in legs. Flashes of white light in front of eyes wake me up at night happened twice in july along with electric type pains in legs and body electric type pain last for two hours.
1995 Glandular fever lasted one year
1996 problems with constipation prescribed firbregel and dx IBS
1998 Pregnant with first child put on a lot of weight had high blood pressure at end had c section as breech. Spinal block was hard to put in and wore off half way through procedure so put me under general.
1998 8 months on bladder problems unable to release bladder fully constant UTI had test done at hospital unstable bladder, pain in pelvic area continues.
1999 go into hospital for lascosany( cant spell) to clear addisions from csection they find bladder has healed to womb problem cleared.
1999 pregnant with second child suffer with symphysis pubis dysfunction could not walk by the end a lot of pain.Had strange rash appear on legs after being in the sun went in to hospital nothing found.
2000 went 16 days over due only dilated to 3cm c section again spinal block hard to get in but works ok this time.
2000 experience pins and needles in my hands and across my tummy put down to anxiety anti depressants prescribed made no difference pins and needles went from tummy but came and went from hands.
2000 fell pregnant again with third child suffered awful sickness went into hospital twice with it put on drip lost one and half stone. Spd again lots of pain. Went to hospital with awful stabbing pain around the ribs scanned for kidney stones nothing found put it down to pulled muscle due to being sick all the time.
2001 c section spinal block hard again but worked again. Same fatigue pins and needles anti depressants again.
2002 genital herpes aclovir last two weeks
2002 suffer from mood swings very emotional memory problems prescribed Prozac as said depressed again!!!
2003 genital herpes aclovir prescribed last one week.
2003 left shoulder pain with numb patch on back feels like running water down my back. Doctor prescribes anti inflammory. Pain around ribs again for a week goes off again. Come off anti depressants as not helping.
2004 Gastro problems pain in centre of chest reflux start to have problems swallowing food as it sticks go in for gastro examine camera down to see if any problems just inflammation cant find reason why prescribed ranitidine 150mg stay on these for a while pain goes this problem still comes and goes now.
Also ringing In ears starts.
2005 take up running as feel so fatigue all the time think exercise will help.start to have knee and hip pain.
2006 referred to a rheumatologist she says I have weakness in my thigh muscle leading the thigh bone to drop onto the patella bone and cause grating. Also had pins and needles in hands and pain she x-rayed my knees and hands, hands clear never got result of knees. Dx hands rhaynauds syndrome.
2006 Nov car accident at 40 mph. don’t have x-ray till next day whiplash low back
pain 3 month treatment. X-ray showed slight deterioration in neck and slight curve to spine. Stopped treatment.
2007 Jan over sensitive type pain spreads to side of trunk of body unable to touch very painful also around top of leg prescribed aclovir went after a week kept coming back. Suffer at time with constipation again with pain cleared with senna this problem comes and goes.
2007 for a while hot baths had made me weak now it was making symptoms worst also hot weather making it worst. Sometimes a hot cup of tea would effect me too have problem with over heating easily.
March 2007 went to chrio for balance problems, numbness on back, pins and needles in hands, feet over sensitive type nerve pain, face pain pain in eyes over shooting of left eye jerky eyes, memory problems word problems reduced sensation in private parts bladder problems, she treated me and asked my doctor to refer me to a neuro doc as problems she could not treat done eye test and reflexes.
May 2nd see neuro doc order blood test and mri. Suggest sinus x-ray come backed completely blocked prescribed sinus spray.
May 14th come down with relentless muscle spasm after a day of muscle aches and fatigue like that till Thursday see consultant again prescribes amitripline which is increased then changed to lyrica and increased over a short time to 300mg.
June/july bladder problems still present with loss of sensations in private parts, balance problems, painfull feet with changes to shape of foot, eyes jerky again constipation awfull.reflux, rib pain on and off. Tight band feeling around my limbs and arms. Sharp electric type pain in head when bending my head forward. Muscle spasm only occasional muscle twitches in bottom base of spine muscle twitches in legs. Flashes of white light in front of eyes wake me up at night happened twice in july along with electric type pains in legs and body electric type pain last for two hours.
I can't seem to locate your time line. Could you copy and paste it into this thread?
Thanks...
Wanna
Thanks...
Wanna
Hi,
Thanks for getting back to me so soon and offering to help with my timeline your a gem. Your last post made me laugh we should all be haooy!! all the time lol.
Iv not been worried about getting things sorted till now most of my sx have always gone maybe to revisit later but have gone the only thing i had all the time was the pins and needles unpleasant but liveable. I guess since i cant seem to get past this stage and i seem to have bouts every few weeks at the moment i feel i should be doing somthing to stop it insteading of waitng i guess its nature when your body screams out in pain to try and fix it and frustrating when you cant.
Sorry your so weak today and thank you even though you were not well found Quix post for me, thats what is so speical about this site so many special people.
Hope your well soon
Thanks for getting back to me so soon and offering to help with my timeline your a gem. Your last post made me laugh we should all be haooy!! all the time lol.
Iv not been worried about getting things sorted till now most of my sx have always gone maybe to revisit later but have gone the only thing i had all the time was the pins and needles unpleasant but liveable. I guess since i cant seem to get past this stage and i seem to have bouts every few weeks at the moment i feel i should be doing somthing to stop it insteading of waitng i guess its nature when your body screams out in pain to try and fix it and frustrating when you cant.
Sorry your so weak today and thank you even though you were not well found Quix post for me, thats what is so speical about this site so many special people.
Hope your well soon
This is what Quix wrote:
"I need to clarify something. What several of you said about the urgency of beginning treatment is not wrong, even though I seemed to contradict it in my post. Whether the need to begin treatment is urgent depends on the clinical status of the person. If they are stable and between relapses, as I was, when diagnosed, taking a reasonable amount of time to adjust and look at the therapies makes a lot of sense. However, it the symptoms are worsening, the person is unstable or has active optic nerve inflammation occurring, then there is an urgency to begin appropriate treatment. I just didn't want any of you to think I was changing my recommendations mid-stream."
I hope this helps you.
Wanna
"I need to clarify something. What several of you said about the urgency of beginning treatment is not wrong, even though I seemed to contradict it in my post. Whether the need to begin treatment is urgent depends on the clinical status of the person. If they are stable and between relapses, as I was, when diagnosed, taking a reasonable amount of time to adjust and look at the therapies makes a lot of sense. However, it the symptoms are worsening, the person is unstable or has active optic nerve inflammation occurring, then there is an urgency to begin appropriate treatment. I just didn't want any of you to think I was changing my recommendations mid-stream."
I hope this helps you.
Wanna
Hi...I'd be haooy to help you with your time line, but I probbly will not get to it today. Feeling really weak today. Would tomorrow be okay?
Quix just posted something (within a day or two) about getting quick treatment but I cannot remember under what thread. Please try to find that and I believe it will answer your question about getting quick treatment.
I didn't have my nerve testing until after my brain scan. I don't really know if there is an exact protcol that is followed as to what is done when. Any one else have a better idea of this?
Moan away...even though you weren't really moaning. Your concerns are like so many others and that't what makes this forum so great. We understand one another!
Sorry this is so short..I will check in tomorrow and help with your time line.
And do look for that posting from Quix. I think it will ease your mind a bit.
Wanna
Quix just posted something (within a day or two) about getting quick treatment but I cannot remember under what thread. Please try to find that and I believe it will answer your question about getting quick treatment.
I didn't have my nerve testing until after my brain scan. I don't really know if there is an exact protcol that is followed as to what is done when. Any one else have a better idea of this?
Moan away...even though you weren't really moaning. Your concerns are like so many others and that't what makes this forum so great. We understand one another!
Sorry this is so short..I will check in tomorrow and help with your time line.
And do look for that posting from Quix. I think it will ease your mind a bit.
Wanna
I would not only be "happy" to help you, but apparently I would also be "haooy" to help you. LOL
Have a good day...
Wann
Have a good day...
Wann
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