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REDO; WHAT THE HECK'S WRONG!!
by ozzy66, Nov 06, 2009 02:00PM
OK GUYS: IM GOING TO REDO THIS WITH YOUR TIPS...THANK U I'LL TRY TO SHORTEN IT AS WELL. IN A NUT SHELL I'VE BEEN EXPERIENCING THE FOLLOWING ON AND OFF SINCE APRIL WHICH IS WHEN IT MADE ITSELF MOST APPEARANT:
EPISODES OF SENSATION IN MY CHEST; NOT PAIN MORE LIKE MOVEMENT IN ESOPH AND THROAT
ARM PAIN, WEAKNESS, TINGLING, BURNING AND HEAVINESS HAD ESOPH DIALATED W/ PROBLEMS SWALLOWING DR SAID IT WAS TWISTED. HAVE PRESSURE NEXT TO ADAMS APPLE
FEELING LIKE MY BODY HAS THE FLU AND IS WEAK, EXTREME EXHAUSTION BOTH SLEEPY AND PHYSICAL. HORRIBLE HEADACHE, SEVERE STIFF NECK X2 WKS, PAIN IN LEGS NOW GOING TO ANKLES AND BOTTOM OF FEET. LEGS HEAVY AND WEAK W/NO STRENGTH LIKE I HAVE TO DRAG THEM INSTEAD OF WALKING.(THE LEG THING HAS BEEN SINCE LAST YEAR.( TORE MY HAMSTRING THIS SUMMER AND HAVE GONE DOWN HILL SINCE)
I'VE ALWAYS BEEN MUSCULAR W/LITTLE EXERCISE,. I HAVE NOTICED I'M LOSING LEG MUSCLE
IN LAST 1 1/2 MOS., SUDDEN BLURRED VISION OUT OF NOWHERE THAT PASSES, DIZZINESS, FOGGY THINKING. STABBING ALMOST ELECTRICAL SENSATION IN HEAD, EARS AND BODY FOR QUITE SOME TIME, LEGS FLOP/JUMP AT NIGHT, GET EXTEMELY COLD
AT ALMOST THE SAME TIME AS ALL OF THIS STARTED BEGAN HAVING CONSTANT BLEEDING FOR 5MOS., HAD UTERINE ABLSION (ANY CONNECTION W/MS AND HORMONES??)
NEWEST SYMPTOM; FOREHEAD BURNING LIKE THERE IS A CHEMICAL BURN PASSES AFTER MINUTES
WOKE UP IN MIDDLE OF NIGHT AND THE BACK OF MY HEAD WAS NUMB
TESTS: COMPLETE HEART WORK UP, CT SCANS OF ABDOMEN/CHEST, ULTRASOUND ABDOMEN, THYROID,
BLOOD (NOT SURE OF ALL), MRI (WHITE MATTER LESIONS FRONTAL LOBE), DO NOT ABSORB B12 GET INJECTIONS, AWAITING SPIANL TAP RESULTS
HOSPITAL STAYS: ABOVE EPISODES x3, HORRIBLE PAIN UNDER RIGHT BREAST AT RIB AS IF BEING CRUSHED X2DAYS, HORRIBLE PAIN IN L BACK SHOULDER BLADE X2DAYS,
HX DX: GALLBLADDER REMOVED RESULTED IN BILE REFLUX, PREV DX OF IRRITABLE BOWEL, HERNIATED DISK IN NECK/LOWER BACK (ANY CONNECTION W/MS AND THIS???),
CURRENT DR BELIEF: NEURO BELIEVES IT'S FIRBRO, SAID LESIONS ARE NOT WHERE YOU WOULD FIND LESIONS CONSISTENT W/MS....HE DID SAY THEY COULD HOWEVER BE A PRECURSOR TO MS???? NOT SURE IF I'M DEALING W/ MS OR FIBRO...........DOES ANY OF THIS LOOK LIKE MS TO YOU GUYS??
YOUR INPUT IS APPRECIATED. THANX
EPISODES OF SENSATION IN MY CHEST; NOT PAIN MORE LIKE MOVEMENT IN ESOPH AND THROAT
ARM PAIN, WEAKNESS, TINGLING, BURNING AND HEAVINESS HAD ESOPH DIALATED W/ PROBLEMS SWALLOWING DR SAID IT WAS TWISTED. HAVE PRESSURE NEXT TO ADAMS APPLE
FEELING LIKE MY BODY HAS THE FLU AND IS WEAK, EXTREME EXHAUSTION BOTH SLEEPY AND PHYSICAL. HORRIBLE HEADACHE, SEVERE STIFF NECK X2 WKS, PAIN IN LEGS NOW GOING TO ANKLES AND BOTTOM OF FEET. LEGS HEAVY AND WEAK W/NO STRENGTH LIKE I HAVE TO DRAG THEM INSTEAD OF WALKING.(THE LEG THING HAS BEEN SINCE LAST YEAR.( TORE MY HAMSTRING THIS SUMMER AND HAVE GONE DOWN HILL SINCE)
I'VE ALWAYS BEEN MUSCULAR W/LITTLE EXERCISE,. I HAVE NOTICED I'M LOSING LEG MUSCLE
IN LAST 1 1/2 MOS., SUDDEN BLURRED VISION OUT OF NOWHERE THAT PASSES, DIZZINESS, FOGGY THINKING. STABBING ALMOST ELECTRICAL SENSATION IN HEAD, EARS AND BODY FOR QUITE SOME TIME, LEGS FLOP/JUMP AT NIGHT, GET EXTEMELY COLD
AT ALMOST THE SAME TIME AS ALL OF THIS STARTED BEGAN HAVING CONSTANT BLEEDING FOR 5MOS., HAD UTERINE ABLSION (ANY CONNECTION W/MS AND HORMONES??)
NEWEST SYMPTOM; FOREHEAD BURNING LIKE THERE IS A CHEMICAL BURN PASSES AFTER MINUTES
WOKE UP IN MIDDLE OF NIGHT AND THE BACK OF MY HEAD WAS NUMB
TESTS: COMPLETE HEART WORK UP, CT SCANS OF ABDOMEN/CHEST, ULTRASOUND ABDOMEN, THYROID,
BLOOD (NOT SURE OF ALL), MRI (WHITE MATTER LESIONS FRONTAL LOBE), DO NOT ABSORB B12 GET INJECTIONS, AWAITING SPIANL TAP RESULTS
HOSPITAL STAYS: ABOVE EPISODES x3, HORRIBLE PAIN UNDER RIGHT BREAST AT RIB AS IF BEING CRUSHED X2DAYS, HORRIBLE PAIN IN L BACK SHOULDER BLADE X2DAYS,
HX DX: GALLBLADDER REMOVED RESULTED IN BILE REFLUX, PREV DX OF IRRITABLE BOWEL, HERNIATED DISK IN NECK/LOWER BACK (ANY CONNECTION W/MS AND THIS???),
CURRENT DR BELIEF: NEURO BELIEVES IT'S FIRBRO, SAID LESIONS ARE NOT WHERE YOU WOULD FIND LESIONS CONSISTENT W/MS....HE DID SAY THEY COULD HOWEVER BE A PRECURSOR TO MS???? NOT SURE IF I'M DEALING W/ MS OR FIBRO...........DOES ANY OF THIS LOOK LIKE MS TO YOU GUYS??
YOUR INPUT IS APPRECIATED. THANX
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It does sound as if you may have some severe muscle spasms going on. I, too, have had to go to the ER for extremely painful episode in my ribs. Crushing pain that caused me to have to take very deep breaths because it felt as if my lungs were not expanding.
MS does cause weakness in limbs and extreme fatigue. It sounds as if you did have a spinal tap. I'd be interested in seeing what it shows.
I'm guessing you are having muscle spasms in your neck that is causing the headaches. Headaches that I know of are not a sign of MS however, I have bad spasms in my neck that cause headaches.
Do you have any tingling, numbness, pin ***** sensations in any of your limbs?
I'm not much help here but, wanted to validate some of your symptoms as I've also experienced some of them. I have never heard of a lesion being a precursor to MS. I hope some others can help you more.
Thank you for responding....when I first went to the nuerologist in July I believe, the tingling burning needles in my arms were horrible! They lasted for a few weeks but have now left.
I had my spinal tap 1wk ago, still waiting anxiously for the call.........Trust me, I will post the results.
Again, thank you for responding...it is so great when you get them!
You can call the facility that did your spinal tap and get a copy from them. Some of the things they test for on the tap take a little bit to come in so, if you go pick up the results, not all of them may be on there.
I definitely would recommend you seeking the opinion of another neuro once you get all your results in and this neuro cannot tell you anything. Again, be compiling ALL your medical records that you possibly can, including those from optometrist, opthamologist, etc.
Will look forward to seeing what your Dr. says.
you know the story right!
I will post the results, promise!
let us know what the results will be... relax on the weekend even if you have to wait till next week. LP results mostly the test for "O" bands can take some time..
take care
wobbly
dx
I think they should have to go through some tests their anxious to receive and see how it feels to wait!
A little cranky, can ya tell!
Have a great weekend everyone and thank you!
I am right there with you and know how you feel.I was dx with TM and am now heading towards an MS dx. All these issues are sooo damn scary.
Among all my other neurological weirdness I too get horrible migraines with aura.But I get daily annoying headaches too. I also get really bad neck pain . I do have brain lesions and the neuro believes thats a huge factor in my headaches. My neuro also it's common for people withTM/ MS to have headaches.
Seems that all we do is wait. We wait for test results.We wait to get in to the doctor. We wait to get a dx.We wait for somthing/nothing to happen. WAITING *****!!!!
What is TM? I'm not up on all the lingo yet...sorry!
Where are your lesions? Yesterday and today have been my best so far in weeks! I think the waiting and your mind wondering is the absolute worst and many of you have been at it for much longer than me!
Thank you for responding....I appreciate when I actually get one....I hope you have a great weekend