Since there are so many possibilities the Mayo clinic is a good place to go. They do not have a stellar track record for diagnosing MS. Like anywhere ther are good and bad doctors. Also understand the diagnosis process can sometimes take years. Neurologists are methodical and like to watch patient every 3 or 6 months. I had a MRI when they were looking for two other things clearly show classic MS.I had five MRIs all together and other tests that showed MS and classic MS symptoms was told I would be diagnosed with MS at some point. It took two years for a diagnosis and 6 neurologists.
What is more important than a diagnosis is to get on some medications to relive symptoms. I thought you would be diagnosed with MS and I would have a doctor who would fix most of my problems. I see my MS specialist every two years now and he just monitors my progression.
He sent me to the pain clinic and they have helped with symptoms. It is the best thing that ever happens.
If you get a funny feeling about a doctor get a second opinion. When I was first diagnosed with cancer I went to a doctor and I just had a funny feeling about him. After the presurgical meeting I never saw him again. Not even the day of surgery. For three months he was on tour with his rock band. They did not give me another doctor for that time. I had a nurse who was an idiot. I was literally dying and oncologist friend said get a new doctor. I switched hospitals and they immediately hospitalized me and saved my life.
I learned you can be in a hospital with a good reputation but get a bad doctor.
Alex
My Primary Care Doctor is referring me to the Mayo Clinic. He is not the doctor that sent me to the Neurologist that did the MRI's in his facility.
My Primary Care Doctor does not refer patients to this particular Neurologist that ordered the MRI's, so that tells me alot and I do not want to go back to him. In the mean time I am worried about what all this means and pray that the Mayo Clinic will finally get to the root of my problems.
I do greatly appreciate the comments from everyone on this board and Thank You so much!
Hi JULDE Welcome to our group.
MS can result in neuropathy. It's not usually the primary presenting symptom.
Your MRI indicates the there is "something" out of the ordinary, but does not specify. Radiologists never do :-) What does the doc say?
Kyle
You have a patchy area of increased signal in the brainstem. This can be either from autoimmune activity, from a small stroke, or from some other action - the radiologist wasn't able to narrow it down.
Lesions in the brainstem are weird - they lead to some strange symptoms. Since it's the way the brain communicates with the rest of the body, it can cause all kinds of things. However, it doesn't usually cause neuropathy. That's either a small nerve problem or a problem with the spine.
What strength was the MRI done at? If the first one was done at a lower resolution and found something, your doctor should go ahead and schedule you for a 3T MRI and see if there's anything else. Especially when imaging the spine - it's very difficult to see lesions on anything but a 3T in the spine.