Multiple Sclerosis Community
Restless Legs
About This Community:

Our Patient-to-Patient MS Forum is where you can communicate with other people who share your interest in Multiple Sclerosis. This forum is not monitored by medical professionals.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Restless Legs

OK, Is it possible that the Restless Leg Syndrome I was diagnosed with from a sleep study several years ago might have been an early symptom of my maybe possible MS?  

It recently occured to me that I list RLS as a neurological symptom on medical forms, and that as far as I know there is no real know cause for RLS.  Low iron has aggravated it, but it wasn't low when I was tested for RLS.  My symptoms weren't just my jerking legs at night, it sometimes felt like an army of ants was marching under my skin.  A few years back, I noticed that it was affecting my arms, and my PCP increased my Neurontin dose.  

Is it possible that I had taken Neurontin for years (I switched to Lyrica last year) and my "RLS" has been coming and going but I didn't know it because of the meds?  I guess I can't answer that question without stopping the Lyrica, and I think it may help with my nerve pain some, so I suppose I don't want to try it.

Just another episode of Body - Crime Scene Investigation! :o)
Related Discussions
10 Comments Post a Comment
Blank
429700_tn?1308011423
Do that hurt at night?  Mine hurt when they are spastic.  Spasticity, as you know, is related to MS.  

Deb
Blank
405614_tn?1329147714
No, mine rarely hurt at night.  They do sometimes cramp in the calves and feet, but usually when they are very cold, and not very often.

Restless Legs have an uncomfortable feeling in the legs, sometimes described like water running under the skin, that makes you want to get up and move around.  At night, it can keep you from sleeping soundly.  I have a hard time sitting with my legs or arms in one position, they do feel like they are hurting, but it's more of a trapped feeling, like they should be moving.  The Lyrica I take helps a lot, unless my iron gets low.

Is spasticity an ongoing issue, or can it happen occasionally.  I have had several instances where my right foot (sometimes up into the calf) will cramp up so tight that one of my toes pulls under the one next to it, and it hurts a lot.  My calves and feet had started cramping when I would go to my water aerobics class, before I got too much fatigue to go.

Kathy
Blank
398059_tn?1312888668
Yes.
Blank
195469_tn?1388326488
I was told by my Neurologist that RLS is very common among those with MS.  But she also told me that it is also very common in the general population.

I have had RLS and Restless Arms also, for many years.  I have tried all kinds of medications, but if it is going to act up, it acts up, no matter what I take to try to prevent it.

The past two nights were especially bothersome episodes.  The crawling sensation in my arms actually makes me squeeze my arms or even bite my arms (I know, weird) just trying to get the crawling sensations to stop.

I understand that RLS gets worse as we get older and gets harder and harder to control.  It also seems to run in families, from what I am told.  Doctor's do not really understand the cause.  All I know, is that is drives me NUTS. I am already a little on the nuts side, so I don't have much further to go, to completely get there.

I am currently on Klonopin at night for the RLS.  It may or may not work.  All I know, is if I am going to have a "spell" of it, it happens whether I take the medication or not.  It's one of those disorders that literally drives you up the wall.  To think of how much sleep I have lost over the years...WOW!

If you find something that works, please pass it along to me.  It seems that I have tried everything on the market with no success.  To think that it's going to get worse as I get older, drives me further towards the looney bin...

Heather  
Blank
427279_tn?1210923421
hi,how ya doin?...i have bad rls oh my i tell you i have tried every thing and the only thing that gives me relief is mirapex ...its a god send

many many nites i would be moving my legs so bad i would cry ...but not anymore thank god....take care of yourself....((((((hugs)))))....deb
Blank
195469_tn?1388326488
Mirapex huh?  That's one I have not tried.  It's that an anti-seizure medication?  Or do you know.  Is your RLS totally gone?

This would be a good suggestion to my doctor.  Don't know why she hasn't tried it yet.  I am looking for SOMETHING to get a handle on this unpleasant condition.  It really inteferes with sleep, as you know.  It's not usual now that it affects my arms, for me to pop my sweetheart in the face, during one of my "episodes."  Poor guy, here he is sound asleep and my arms are jerking all over the place and wham, he gets it right in the kisser.

Heather
Blank
427279_tn?1210923421
hi,
im not sure if its a seizure med or not all i know is it works...i think mcbacon uses it to ...i would suggest asking your doc about it because it sure has give me relief....and i dont have any probs with it as long as i take my mirapix.....hope it helps you...deb
Blank
398059_tn?1312888668
Yes, mirapex works wonderfully for me.  There are some things that only the Gabbapentin seems to work on though.  Although, without Mirapex makes a big difference.
Blank
Avatar_n_tn
I was recently dx'd with RLS in January.  I am on Requip and it really helps me.  I'm on Gabapentin too, but it's for my pain in general.
Blank
405614_tn?1329147714
http://www.mirapex.com/

I found this website; there's even an offer for a free weeks' supply.

Neurontin really has helped me, and now Lyrica in its place.  I still have trouble sleeping, so maybe its not helping as much as I think!  :0)

Kathy
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Multiple Sclerosis Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
15 hrs ago by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
Avatar_f_tn
Blank
essdipity
147426_tn?1317269232
Blank
Quixotic1
Washougal, WA
572651_tn?1333939396
Blank
Lulu54
Dayton, OH
667078_tn?1316004535
Blank
HVAC
Durham, NC
987762_tn?1331031553
Blank
supermum_ms
Australia
198419_tn?1360245956
Blank
sllowe