My doctor wanted me to do another round but I want to wait and see how things go. If it gets much worse I will most likely call back and have the Dr. set it up.
The steroids make it hard to sleep (which I can handle) but the way it makes my teeth feel is what holds me back. My teeth have always been very sensitive an the steroids make it million times worse.
Right now I just feel like all I am doing is filling my body with drug after drug. LOL Does that feeling ever get better? I guess like most things it will become routine.
Thank you everyone for all your responses. This forum is partially how I make it through my days! My family is great, but only someone else with MS can fully understand what your body is going through.
Leanne
It might take longer to get over the ON with out the steroids. I know they are rough. ON is the only reason I would do steroids.
Al3ex
Thank you so much for sharing. Indeed this is good news and I can imagine how relieved you felt departing the office :)
Smiles :)
So I went to see a Neurosurgeon for what they call Tarlov Cysts. He does not recommend any thing be done at this time. There are 3 cysts in the lumbar part of my spine and one is pretty large but not effecting any nerves at this time. Which is good! LOL Not related at all to the MS which is good. I will take any good news I can get. I have never been so excited about leaving a doctors office before. Was so relieved..... Unfortunately though is seems that my optic neuritis is hanging out. Right know it just gets blurry more as the days go on. But has not black out yet. And I decided that I am going to wait it out and not do the IV steroids this time. To short of time from the last time I did them. Hoping it will go away on its own and not get to much worse. The steroids mess with my system to much. Not a lot of pain so just going to go with it and hope for the best.
Leanne
A friend of mine was recently diagnosed with a cyst on her thoracic spine. She had to undergo a specific PT and massage therapy routine but surgery was only a last option for her so I am afraid that I don't have anything for you because they are hopeful that they can minimize any future damage from the cyst.
I am glad you don't have to wait too long to have it seen to and that you are finally getting some answers. Hopefully if there is anything else going on your medical team will be on it asap to get you more answers.
Corrie
Also, nothing in the lumbar region involves MS, since the spinal cord stops at the bottom of the thoracic spine. So you may have 2 things happening. :-(
ess
Cysts would not be MS. Plus Neuro Surgeons are not for MS. Most times they can't explain test results the doctor has to.
Alex