Saw Neuro Today

[Guitar_grrrl]

Hi, All,
I saw my neuro for a three month checkup.  For the past two weeks, I've had more urinary surprises, more L'Hermittes,  and just really weak.  Climbing a flight of stairs feels like I've run a marathon. Bike riding is now without hills, and my arms and legs shake in Yoga if I hold my poses for more than 1 - 2 breaths.  An balance poses? Fuhgeddaboudit.  Anyway, I still have bilateral Babinskis, hyper reflexia, and now, I've flunked heel - toe and Romberg's.  My lumbar puncture is next Thursday. Thanks all of you who described your LPs,  I'm not too scared (this guy promises to be painless - I told him I'd hold him to it!).

More Later,
Guitar_grrrl

[Guitar_grrrl]

Hi, Ess, Bio, Lu, and Wobbly,

Yes, he's waiting for the positive LP results before he puts me on a DMD.  I have the D in T (2005 and now, for the past 13 months), and possible D in S.(Lesions that don't light up w/ Gd, positive Neuro exam). Sigh...

Later,
Guitar_grrrl

[biowham]

You'll be fine with the LP. I've had several now, and there's been no problem.

You do have enough without the LP, though.

My arms and legs shake if I try to extend them and hold the pose, too. It's kind of weird.

Bio

[Wobbly]

Good luck with the LP... it should go just fine... just stay laying down for awhile and rest for a day or two.. hope all goes well and let us know how it went..

take care
wobbly
undx

[Lulu54]

Hi GG,
I agree with Ess about not needing the LP but if it keeps your neuro happy, so be it! :-)

My LP was done in the office, no recuperation  time afterwards, and absolutely no problems.  I wrote about the start to finish process in my journal for areference if you are interested.

Hang in there - this all takes patience to get to the dx.

my best,
Lulu

[essdipity]

Thanks for your update. Is your neuro waiting for the results of the LP before giving you a diagnosis? That really isn't necessary.

You have classic symptoms, and many here can relate. I sure can, about the yoga and balance. I sort of flunked out of yoga a couple of months ago. My arms and legs shook too, and I had to hold onto the back of a chair half the time. PT did help the balance quite a bit, so you may want to look into that. I even got better at the tandem gait (heel to toe drunk driver test). At least I could tandem 'stand still' after quite a few PT sessions.

Good luck on your LP. Mine was truly the merest nothing, done in a hospital under flouroscopy. After a mandatory wait, I drove myself home and resumed my life. Yours can be that way too.

ess