Once again, thanks to all.
I've somehow stupidly separated this thread from one called paraneoplastic neurologic syndrome, when they really belong in the same one. Oh well, I can be a compu-klutz sometimes!
ess
I just want you to know that I'm thinking of you and saying plenty of prayers for you. I also think you should consult another neurologist. This one doesn't sound like he is on the same page as you. The kind of doctor that will work harder to prove you wrong than to really find out what's wrong.
I'll be praying,
Carol
Hi Ess,
We've never spoken, but I wanted to say hello, and wish you well. You must feel like you are in complete limbo. Is your Dr going to line up the appt. at Hopkins for you? Asking this, because I would hope that would speed your appt. date. I agree with the above responses, w/moving ahead quickly w/the tests, that way you will have a lot of reports to bring w/you to Hopkins.
Wish you the best of outcomes, and some calming times, as you move forward,
SL
Thinking of you! At work now!
Hugs,
Zilla*
Thank you both so much for your kind words and thoughts. I have told literally no one else about the MRI or the neuro visit, and only one or two know that I've had more symptoms. Not that I couldn't. It would be okay, but I'd like to wait till I know something a bit more definite. Don't want to put people through still more worry when there's nothing I can do about it at this point and no answers. Anyway, in view of this I appreciate all the more my friends at the MS Forum.
I'm doing okay today, all things considered. I've made appointments for the ultrasound and the blood work, and am in the process of trying to hook up with Hopkins. Still hoping it will all just magically go away. It has before, over time.
I hope to get more medical insight here, especially about the paraneoplastic tests. I've looked up what these are about and it's not good. Maybe Quix can help me out.
ess
Hello
Take the further consult he offered to you at Hopkins, and see them as soon as you can.
You will be fine.....no matter what. We are all here to support you and lend an ear or a shoulder when you need one. I have similar symptoms, so his suggestion kinda freaks me out too. I can only imagine what your mind is going through. Try to get some sleep tonight, go get a massage tomorrow, and set up an apt. Please let us know how you do. We will be here waiting.....
Sincerely, Terrie
That certainly did not turn out well - no wonder you're shaking! I would definitely be seeking another opinion and quickly. Not sure whether I'd use his choices or not, as he likely chose them because they think alike. The fact that your legs were shaking and you could not perceive it concerns me. Try not to panic, but absolutley get to another doc. Still go through with current doc's testing, but look for a fresh set of eyes.
Will keep you in my prayers. Hang in there
Penn