Hey All- I was just diagnosed with ms. My neuro is a general neuro and basically told me to research the Dmds available and to let him know what I would like to try. Searching, I found you and am excited that there is a group that may actually be able to answer some of my questions. The first thing he wants to do is put me on solumedrol for 5 days, I am not currently in a flair. Any reason I should put myself through that if I am not currently having symptoms?
Hi NMK -Sorry you found us, but glad you're here :-)
If I were asymptomatic I would not do the Solumedrol thing. It is not a DMD and is used to aggressively address inflammation. If you are not having symptoms, the chances are you don't have any serious inflammation.
What lead to your diagnosis? If you have lesions that are 'glowing' in an MRI with contrast maybe that's why he wants to start steroids.
I'd be checking back with your neuro to find out his rationale for high dose steroids. I'd also be talking to him about a referral for a consult with a neuro who specializes in MS treatment. The field is presently evolving at a fairly rapid pace and we need to have contact with docs who are familiar with what's in development and what's best for our particular situation (those aren't always the same thing).
Thanks for your responses. I hate to bore you too much with my history but here it goes... I have had on and off weakness on my right side for years, drop things, knee would give out. I just chalked that up to being clumsy. This past summer I had a visual disturbance- about a third of my vision in my left eye was shadowed. That lasted about six weeks. Went to my dr, he ordered an MRI. That showed 2 lesions that were characteristic of ms, he referred me to a neuro. I had the evokes done, they were in the normal range but with differentials, so then I had a spinal tap, that showed 6 O bands, thus leading to the diagnosis. I have had tingling on and off down an arm or leg, but more commonly somewhere on my head, weird, not sure if that's ms or what. I am currently trying to get into an ms clinic for more specialized care.
I second Kyle's welcome. Sorry you had to find us, but so glad you did. You will find alot of information and support here. I too agree if you are asymptomatic no reason to submit your body to steroids. Finding a MS specialist is important. I was dx'd by a general neuro and she referred me to two different ms specialists. While she had alot of the answers, I wanted more specialized care and have found a wonderful neuro.
Keep us posted on your journey to finding a dmd and how you are doing with all of this. It is fairly overwhelming at first - heck it is overwhelming all the time!
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