Aa
Aa
A
A
A
Close
1172359 tn?1310667693

Spinal Tap Phobia

I saw my MS Specialist yesterday and he has ordered yet another test.  A spinal Tap.  I am scared of those.

I understand and appreciate that he wants to me make sure it is MS before he starts treating me, but what else could it be?  What else mimics MS?
Because my EMG was normal and the visual part was normal I believe he is starting to doubt me.  I wouldn't make up these symptoms.  I do not want them.  They are ruining my life.  
I apologize because I frustrated and confused.
What if there are no antibodies in the fluid, does that mean I am crazy and none of these symptoms are real?
Does the lesion on my brain mean something else?

Sorry guys, I do not know what to think anymore.

Cin
65 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi Cin

Remember that if your LP comes back negative it does not mean there is nothing wrong. If this should happen please do not give up the fight, maybe take stock for a while then see where to go next.

Obviously this is such a difficult time, I completely understand that while you do not want MS you DO want answers.

I think you know that whatever happens you will get loads of support on this forum.

Mand
Helpful - 0
1172359 tn?1310667693
Thank you Boston,

It has been 12 days now and I have heard nothing.  I called and left a message yesterday and never received a call back.

What if they come back negative?  Do I have to live with this numbness, fatigue and aching legs for the rest of my life?  My right leg is going numb now.  I noticed the inside of my right thigh was numb this morning.  Its all been on the left side.  I can't lose feeling in my right arm.  
I am not sure if I asked you or not but what was your results?
Cin
Helpful - 0
1040373 tn?1273687488
I'm glad your head is better. I had my LP on 9/4 and knew the results on 9/14.
Helpful - 0
1172359 tn?1310667693
Today I had to do a presentation to the FAA and I bet they thought I was drunk.  I was swaying back and forth.  
It was almost funny.  I had to see the humor in it or I would cry.

Cin
Helpful - 0
667078 tn?1316000935
Cin.
  Take it easy. It took me a couple weeks to be back to normal.

Alex
Helpful - 0
1172359 tn?1310667693
Great!  He told me 10 days and when I talked to him on Thursday he said he will have them back either Friday or Monday.  Guess not!  
I am so freaking dizzy today that I ran into the bathroom wall hard and then fell off the toilet.  I know nice huh?

My head feels much better, no more tap headache.

Cin
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease