Hello,
I am a 29 year old male in good health. Starting 7 months ago, I began to have some strange neurological symptoms. The first was a minor pins-and-needles feeling in my left hand that lingered for a few days. It went away for a few weeks, then came back again. Another few weeks, it came back again, but this time with a tingling feeling in my left cheek as well. Another few weeks later, both came back, and my left toe was tingling and the back of my left leg also tingled. These tingles are not like pins and needles - more like a soft tickle, if that makes sense.
The coming and going then changed into a more consistent low-grade range of mostly left sided symptoms (although my right cheek/jaw area sometimes tingles as well). Today, my left arm and leg "feel" weak. I use quotes because they're not actually weak, as I am able to continue playing basketball and tennis and hike as I always have. It's more of a heavy feeling I would say, and sometimes my left leg muscles get sore earlier in a workout than they normally would. It also sometimes feels like my left foot is dragging, but it's not. That heavy feeling...
I no longer have the pins and needles in my left hand and my the tingling in the left side of my face is replaced by more of a small numb patch in the jaw - with an intensity that varies during the course of the day and the week, though never very intense. I also have this periodic feeling of pressure in the left side of my lower abdomen that makes me feel like I need to urinate, even though my urinary patterns continue to be perfectly normal (i.e. no pain, infections, incontinence or urgency). Just pressure, as if someone is pressing on the left side of my bladder. This comes around for a few days every couple weeks. My GP and neurologist have never heard of this last bit. Another unusual symptom that cropped up in the last month or two is mild left ear pain that comes and goes for a couple days at a time - sort of like ear infection pain but not as painful.
I went through a battery of blood work, checking for everything from Lyme to HIV, B12 level, and other stuff. Everything was negative, although my B12 level was on the lower border of normal (200 on a scale from 200-900). My doctors doubt my symptoms are due to B12 deficiency, although I have read about people with similar borderline levels with various symptoms. I have been taking oral B12 supplements (1500 pcg) and got restested and the level is up to 500, yet the symptoms persist.
I also had a neurological exam, which was reported to be fine. Neurologist checked for reflexes, walked heel to toe, vibrating tuning fork, etc etc. I had an MRI of the brain on a 1.0T machine which was clear and an MRI of the c-spine on a 1.5T machine which was also clear. I was not aware of higher power machines at the time, although I read that 3T has only been shown to identify about 25% more lesions than 1.5T. Not sure if that's anecdotal or actual fact. I had evoked potential tests done, and were all normal except my left leg. My neurologist said in the absence of any other abnormalities found, he sees no reason to worry about it since EPs can be very sensitive.
He said if I wanted to, I could proceed to have a t-spine MRI and a lumbar puncture, but said he really doubted they would show anything abnormal given the lack of findings to date, and since the common denominator of my symptoms seem to be the brain. I'm in no rush to subject myself to more testing, but am frustrated and anxious about what is going on. I'll admit I'm prone to hypochondria (and now, apparently, cyberchondria), and am trying to tell myself, listen, all those things in the past you were concerned about didn't amount to anything, so don't worry about this either.
My worst fear naturally is MS, but I don't seem to meet any of the criteria - just this consistent, oscillating, non-debilitating left side sensation that's been a daily part of my life to some extent for more than 5 months now, with a steady addition of symptoms along the way. No abnormal fatigue, dizziness, vertigo, heat sensitivity, or other common MS symptoms. I understand that MS most commonly starts out in a relapsing/remitting pattern, with distinct attacks which last on average a few weeks, but it feels like I've had one long stretch of weirdness lasting 5-7 months.
I'm trying to convince myself I have Lyme disease, since I do spend a good deal of time outdoors and I live in the Northeast, and have read that the tests can sometimes produce false negatives (I had ELISA and Western Blot done), and that symptoms can vary wildly from person to person, can come and go, can be strange, and can mimic MS. Or, maybe the remnant effects of low-ish B12 that will take awhile to fully clear up?
Is it also possible that there are simply cases of unexplained sensations? My neurologist said he says patients everyday who report strange sensations who end up having nothing wrong with them. I have to believe he's sincere and honest, and did make plenty of time to discuss my case with me. Is there necessarily a reason to worry?
Thanks in advance for any input!