Sometimes it does take quite a while for a diagnosis. Have you been to an MS Specialist? You may get to the bottom things a little faster this way.
If an MRI wasn't done with MS protocol, it may not help with a diagnosis. My first MRI was done to rule out brain cancer or stroke and was done on an open, weak MRI machine. No lesions or abnormalities showed up. When I went to a neurologist, who ordered MS protocol, lesions appeared.
Then, I had 14 vials of blood drawn to rule out all sorts of diseases and problems. I had a CT scan of the lungs to rule out TB, an echocardiogram to rule out heart problems, a lumbar puncture, and then fianally another MRI which showed growth of lesions and more lesions. The day I had my MRI, I was diagnosed and was given literature on the different medicines for MS.
I've had ON twice, and have to see the opthalmologist every six months. Does your husband have visual symptoms? An opthalmologist or a neuro-opthalmologist can also be a person to see if there's any problems with vision.
I understand your frustration. Diagnosing is mostly done by ruling other possibilities out. I wish someone had explained how Neurologists work.
Unfortunately with Neurologists "Wait in see is Normal." Sometimes they need to see how things stay the same or change over time. When they thought I might have MS I had MRIs every six months for two years. I had a ton of blood tests to rule out other diseases. I had A VEP, SSEP, and BAER. I was sent to a Neuro Othamologist and given a bunch of fancy eye tests. Finally they did a lumbar puncture (spinal tap) and then a lot more blood work.
Oh and every time I saw the Neurologist a bunch of tests which seem simple but tell the Neurologist the most. Reflexes, timed walking, Standing with my eyes close, etc.
My symptoms started in the 1960's and I was diagnosed in 2009.
There is a great resource to the upper right called the health pages. If you click on it there is lots of good information.
Alex