Hello to you all, I have recently been diagnosed with RRMS and am waiting to start on Copaxone. In the mean time, I have noticed that I've started to stutter, not all the time, mainly when I am tired. I had an episode last night and my husband thought I was playing but I broke down in tears and was horrified. Needless to say he felt extremely bad when he realized that it wasn't on purpose and that I couldn't help it. Is this common in MS? Is this something that I should mention to my Neuro? Any advise would be greatly appreciated.
I do that sometimes. Mostly when I am tired too. I just hope it doesnt get worse. I can barely find the right words to say anyway and to stutter the wrong words is even worse!
Yes, mention to your Neuro. IMO
This may help - we're suffering from what is known as neurogenic stuttering. (reading the article...) It goes along with aphasia and dysarthria... Palilia and anomia too! I've had all of those, including palilalia - the repeating of a word or phrase over and over again.
Thank you to you all!!! I'm glad that I'm not alone...Is there a specific part of the brain where the lesion(s) might be that would affect speech? Just wondering if one of the lesions previously identified on my MRI is in this area...Thanks again
Hi there...I don't believe we have met but my name is Rena and I have SPMS. I too have a problem with my speech and have even been questioned as to whether I am inebriated or not! In the beginning it is very frustrating but soon you will learn to laugh at it most of the time as I have. My husband says he can read my mind because sometimes the stutter just won't stop and I can't get what I want to say out so he (for the most part) finishes my sentences for me.
I know this is frustrating but please mention it to your neuro and hopefully this probles will be limited to when you are tired...as is now the case with myself. Good Luck!
I first stuttered last year, never in my life had i ever had difficulty communicating, i'm a talker lol. I also lost all my nouns, very weird to not be able to name anything or anyone. it was alarming and confusing to just suddenly start walking like a drunk string puppet, not knowing what something i've known for ever was called and on top of that stuttering and slurring the words i did find.
One thing i've always known and that is stuttering gets worse under duress, it needs to be interupted to stop it, do nothing and the record will keep skipping and the more distressed you feel the worse it will be.
The key is knowing its happening, which doesn't always occur, sometime the brain doesn't recognise its stuck and needs a kickstart. Remaining calm, stop talking, take a calming breath, say the word in your head and then start talking again. The more you do it the easier it becomes. I believe in brain plastisity, the brains ability to rewire neuro pathways, if it can it will but it needs help, it takes repetition, determination and even tricks.
Speach therapy helps, check out cured articulation, heaps online and books on how to do it at the library. Sing, Sing and Sing! I know i sound like a dieing bagpipe and would never ever sing in company but i was singing loud and proud everytime i drove, or was alone, practise practise practise.
I had also lost my nouns so i also played naming games, i noticed i didn't seem to have a problem thinking the right word but it didn't roll off my tongue right, the word would disapear or stutter when i tried to say it. The more i did it the easier it was to control, understand the when and how it occured and to think how i was going to over come this.
I strongly believe in staying calm, acceptance of this moment and focusing on what works for you in order to garnish change, no matter how small those changes might be. I did ask the neuro what caused acquired stuttering (cause it sure wasn't developmental) and loss of nouns, and all i got was they still didn't have a comprehensive understanding of what part of the brain affected language, he had no idea why. Left brain controls language, numeracy, writing, speach, reading, and even coordination, I think thats right but it seems they still dont have it pinned down to what is controlled by where on the left.
I spent several months with the same problem - calling things by the wrong word, not being able to come up with the name of something. I've just kept at it - forcing my brain to think of the word, or if I can't, then getting somebody else to help me, and then repeating it to myself. You can definitely relearn!
My mother, who has MS, slurs like she's had one too many to drink. I tend to stutter, or lose words. My typing even stutters. I'm a grammar/spelling nazi so I check everything ten times before I send it but even so sometimes my typing comes out almost nonsensical.
My best friend, who is worse than I am at being a grammar/spelling nazi, used to pick on me when I mistyped. He doesn't anymore but he isn't sure if he should even mention when I use the wrong word or typo particularly bad. I've told him to tell me anyway because I want to know how often if happens, in case I don't realize, so that I can keep track of symptoms to tell my neuro. I left him a voice mail the other day and I thought that I sounded silly but rational and he called me because he had no idea what I was trying to say. It's really frustrating when you sound normal to yourself and weird to others.
I've started playing more word games online than I used to in order to try and force my brain to retain my vocabulary.
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