Super_sally888, dreamyeyes, sllowe, Quixotic1, Super_sally888, pennst8r, LLW, DrAbhijeetMD, Caliber2005, DrGodofredoMD, Super_sally888

Hi, I was finally able to read your posts today, after my appointment with my GP.  My current diagnoses, as of October, are Neuropathy, Myoclonus, Hypermobility Syndrome, Restless Leg Syndrome, Fibromyalgia, Spinal Stenosis, Kyphosis, Scoliosis, Early mild Disc Degeneration Disease, Mild Disc Desiccation, Anemic (B-12 and Iron), Osteopenia & possible Scleroderma.  Why me?  I am also on 15 different meds, the most important is Lamictal, Requip, Pamelor, Cymbalta and so on.  My doc believes the anticipation, the depression and some of my medications are causing the nausea and vomiting.  Also he is unsure of what symptoms are caused by what problem, because most symptoms seem to overlap.  I notice that some of these people on here, try to be smug, if you are going to be like that then do not reply.  That is the last thing I or anyone else on this site needs, attitude.  Note, by this comment I mean no harm to anyone listed above, I appreciate all of your advice.

[sllowe]

Hi Thester,

I had to go back and re-read what this post was in response to.  It's difficult this way, meaning, re-posted on a new thread, same topic or issue.  

Yikes!  I'm so sorry for what you are going through, thanks for the update.  I'm sorry I can't answer the - why you question, but I hope you and your Dr., work toward eliminating what is causing you more problems.  

I don't think anyone was trying to be smug, really, sometimes typed words are just misinterpreted by the reader, or posted in an unintentional quick way.  We've (the world) definitely moved away from the more eloquent ways of writing as in the distant past.  So, it's bound to happen. . . hang in there.  

Be well,
SL

[sllowe]

Who are the Drs in the Subject line?

SL

[PlateletGal]

So many of us with autoimmune diseases have overlapping conditions and symptoms. One theory is that mycoplasma (bacteria) multiplies and when it multiplies, we end up having the overlapping conditions.

[Wobbly]

Gee...someone should tell a Dr that? ahahahaha

[Heather3418]

We do not identify people that we are upset with on this forum.  This forum is a place of support and caring.  If you disagree with any comments please do NOT post them to specific individuals.  Take what information you can use, discard what you do not agree with.

This forum is not answered by any MS doctors.  It is only a group of people dealing with MS or trying to go through the diagnosis process.  So it's only opinions and personal experiences.  Please re-read the disclaimer at the bottom of the first forum page.  Nothing stated here should be taken for medical advice.  Always seek the advice of your physician.

This forum IS moderated.  Any post that is considered to be any personal attacks on others advice or experiences, WILL be deleted.

Heather

[PlateletGal]

"Take what information you can use, discard what you do not agree with."

Well said !  Thank goodness that we have the internet to share information and possibly help others as a result. This is a support forum and a forum to share our own personal stories and things that have helped us and information.

[pennst8r]

Holy cow! They really threw the med book at you didn't they? I could tell you had a lot going on from your post on the other firum; that's why I suggested you post over here. But, I am overwhelmed! I do understand why the doc is unsure what symptoms go where. Take comfort that you did get some answers though - more than you wanted, no doubt. I am glad to see you're getting somewhere.

I am sure that no one intended to be smug toward you. This is a great bunch - I'm sure it is as SL suggested, a miscommunication from thought to written word - done that myself recently (did not reread what I wrote to see that it could be read very differently than I thought I wrote it) and still think I hurt a friend's feelings, even though she insists I did not.

Keep following up with the doc - hard ot find one who will take action quickly and aggressviely. God bless!

Penn


PS to sllowe - the docs in the subject line frequent the neurology forum recently and actually answer posts!

[PlateletGal]

The Autoimmunity Research Foundation is a sponsor at the 6th International Congress on Autoimmunity... held in Portgual link: http://www.kenes.com/autoimmunity/sponsors.asp

This is the protocol I'm currently on and Dr. Marshall is going to be sharing his success stories with other physicians from around the world.

[Quixotic1]

I would like to remind you that this forum is populated by interested people and patients ONLY.  To date we have not had MedHelp physicians fielding questions here.  There are no supervising docs, and there is no guarantee that someone will answer your questions or be able to give you the information you want.  We all have our own lives and may tune into the forum less than once a day.  Many of us are very symptomatic with our neurologic problems and thus, limited in the energy we can expend on the forum.

For myself, this is very true.  I volunteer here and I do try to help answer what questions I can.  My ability to sit in front of a computer screen is limited by sever fatigue and by the difficulty I have with eye tracking, so that after about an hour I am nauseated and unable to think or focus.  I try to help with the forum in three or four stints a day.  Many times, if I am not feeling well, I will answer the posts to which I know the answer or to enjoy the community and comraderie, but may not be up to handling a very complicated situation.  I cannot guarantee to anyone that I will answer all questions or be able to return a post within a certain number of days.  I just can't.

Your repeated requests for answers are beginning to look like demands that we perform in some specific way.  This will make people less inclined to give you a response, as there are many people in need of answers here.  Posting the same question multiple times in a day is impolite, but I do know that you only do it out of fear, frustration and desperation.  You are in a horrible situation and you feel crummy!  I also am sure that no one here intended to be smug or snide.  I certainly didn't.  I try very hard to give good answers and to be helpful, but (if you count) we often have close to 100 posts a day.  I am merely a member here.

That said, your situation is very complex, and I have tried to put it into some organized framework, so I could give you a good and helpful answer, but so far I can't.  We only see a tiny picture of the true you contained in your posts.  Clearly, even your own doctors do not have a clear idea of what is going on as you list the huge numbers of diagnoses that they are working with and entertaining.  I cannot give you a likelihood of this being MS, even in my own opinion.  I'm truly sorry for that.  As we learn more about you, maybe we will have more ideas.

Quix