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382218 tn?1341181487

Survey on the Impact of MS Disease-Modifying Therapies

This is another IMPORTANT survey for Canadians with MS.  Make your voice is heard, to ensure those conducting this survey understand how critical our DMDs are to maintaining our health and functioning.  

Every provincial and territorial government in Canada has programs in place to provide Canadians with MS access to DMDs, in keeping with the spirit and intent of the Canada Health Act.  Please provide your input to help ensure we retain funding for access to these important medications.

Frankly I'm cynical and distrustful of PM Harper and the PCs, particularly in light of the recent omnibus bill (C-45), and this government commissioned survey  makes me rather nervous......



Survey on the Impact of MS Disease-Modifying Therapies

In late February, the Multiple Sclerosis Society of Canada will provide input on behalf of people with MS in regards to a review of the current and emerging disease-modifying therapies (DMT's) for MS taking place by the national agency that makes recommendations to provincial and territorial drug program decision makers.

The national agency - Canadian Agency for Drugs and Technologies in Health (CADTH) is currently undertaking a systematic review to compare the efficacy and safety of DMT's for patients with relapsing-remitting MS and will examine their cost-effectiveness.

The review will include DMT's that are currently available in Canada (Avonex, Betaseron, Copaxone, Extavia, Gilenya, Rebif, and Tysabri) and newly emerging DMT's not yet approved in Canada (teriflunomide, dimethyl fumarate (BG-12), and alemtuzumab).

To ensure the views of Canadians affected by MS are truly represented, we are asking people with MS as well as caregivers to complete the following survey. Your answers will be incorporated into the submission to the national agency - CADTH.

Please complete the survey by Friday, March 1.


http://mssociety.ca/en/involved/advocacy/default.htm#survey
4 Responses
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1896537 tn?1381900009
Hi Lulu, I just saw your comment re dmt's in the UK. I hadn't heard this and wondered if you could tell me a bit more? I'm waiting to resume Copaxone at the moment and it's a seriously SLOW process!
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382218 tn?1341181487
Still time to complete this survey.  Deadline is tomorrow, March 1st.
Helpful - 0
1140169 tn?1370185076
DV, thanks for posting this, I have now completed the survey.

Mike
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572651 tn?1530999357
DV - I hope all our Candian friends will take the time to do this survey.  We saw what the NHS in the UK tried to do with cutting back on the availability of DMTs because of their supposed lack of efficacy. I hope that isn't happening up there, too.
Helpful - 0
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