I was diagnosed with fibromyalgia almost a decade ago. Over time, my symptoms changed, some even bizarre. Had an MRI done a few years ago (about2) , no lesions. Time continued, symptoms continued to change, making everyday life almost impossible. I have alllllll of the general symptoms along with the ....sorry cannot think( that one is so frustrating as well!) the symptoms that are not so common as well.....tingling, numbness, tinitus(permanent for a year now), pain, spasms out of absolute nowhere, fatigue. Severe problems with cognition, and sometimes,meaning sometimes daily, sometimes a few times a week, having issues walking, I will almost ' mis step', I bartend and my boss thought I had been drinking, i cannot avoid it, comes out of nowhere. The latest symptoms, blurry vision, and a few months ago, I went to text a fellow co worker, my left eye literally went blank. It seemed to last forever, because it was frightening, but realistically, probably only lasted 20-30 seconds maybe. I had gone back to school, had to stop because I cannot read my text books from the blurry vision, before I stopped, I stopped participating in any group discussions due to the last time I did, I was confident and almost memorized what I wanted to discuss, I started speaking, and all of a sudden, I drew a total blank. That happens several times daily( probably every hour). Word finding troubles me daily. Didn't mean for this to be so long, just wanted to get it all down, along with wanting to be sure it made sense! :) oh, I am in my 30's, have worked out since the age of 14, generally a happy go lucky person! However, this interferes with EVERY SINGLE ASPECT of my life. Difficult to always remain happy... Anyway, because of this, I can barely work, only one Neurologist accepts my embarrassingly enough state insurance I HAD to apply for due to regular insurance companies WILL NOT cover me, pre-existing. I love working, I love sketching, but now I cannot write longer than two sentences, hands contort??..... The mental is hard, to go from upper class all my life, to having Medicaid. $ doesn't matter like that to me, do not get me wrong. But I swear people seem to look down on you for even having that insurance! There wasn't a choice, going through looonnnngggg disability claim, was denied (in court) once, before that, seems like along with most people, was denied by paper so to speak. So, had to start over with new claim. Sometimes I feel it will kill me. Any and all feedback is appreciated. Oh wow, almost forgot the point! My Dr wants to change my diagnosis to MS but states the Neuro needs to be the one to do that. How do people work, how do people cope with ALL the symptoms, and normal MRI? I can barely function in my own home, again, any and all ideas, thoughts, advice would be wonderful! Promise future posts WILL NOT be this long! :) thank you!
Susanna