Hi,
I'm new and have not gotten a diagnosis or treatment as of yet with over four years of testing and a nice long list of symptoms.I thought being new this was a good place to start.
1) Dizzieness and imbalance (started this way and progressed fast)
Now 24/7 365 never goes away
2) Neck Pain and stiffness ( came right after the Balance issue )
almost always present ( helps to use neck brace or lean head against
Wall or recliner)
3) Vertigo ( had a couple of Sever boughts with this ) Found out it happens More often with stress and Anxiaty
4) Numbness, Burnning, Tingling, Itching, Cold wet feeling (started in right
thiegh, now in my left thiegh more often )
5) Swollowing ( started with solids now both solids and liquids )
6) Nastagmas ( Both eyes Lsft right and upwards) Hard to walk up stairs.
Looking up is an issue with keeping balance.
7) Loud sounds Affects Balance
8) Fatigue
9) Irratale bowl
10) Deep muscle and Joint pain ( feels like getting stabbed through the
joints ) Happens mostly during sleep, Wakes me up can't go back to
sleep.
11) Muscle spasams ( Happens while at rest, Not painful, Just a Nussence.
12) Sleep Apneiha, Insomnia ( Use C-PAP )
13) Opticnuritus, Dry eye, Blurred and some double vision.( eating big challenge,miss mouth alot,stab face with utenstels ) Hard to read.
14) Cognative issues, thinking ,problem solving,memory,staying on track,speech slurred, trouble finding words and interpitation of hearing words, the mind sometimes dosent hear things correctly, have to ask alot of times what people say to make sure I heard it right. loose track of time and space, where i'm at sometimes, people I just met don't remember who they are or even meeting them.
15) Intetional tremmors ( If I use this term correctly ) Only while useing
hands and arms. Legs tremmor if standing in one spot.
16) Muacle cramping,Legs, calfs toes, arms,Feels as if someone tied an atternakit to my bicepts and arms go cold and numb.
17) Buzzing viberatory feeling from waist to knees.( Not all the time ) Happens only at rest.
18) Vommiting ( too much motion and movement will cause this ) Learned to control this to a point.
19) Loss of sensation of a pin or needle prick from the neck down.
20) Arms and legs weekness, feels like they are made of lead.
21) Dry Mouth, constsntly thirsty ( causes frequint urination )
22) E.D.
23) Inconstance, ( very embarrasing )
I may have missed a few, But I feel like I listed most of them.And some I may have never related them to this condition.
Early AM nystagmus
Urinary hesitancy
ED
Left foot doesn't like to turn right
Balance is off
Neuropathic foot pain
Those are my every day reminders :-)
Permanent double vision, permanent vertigo, cognitive issues, fatigue, left side weakness, clonus, spasticity, diaphragm spasms (may be cancer), wide gait, when I am tired I drop things.
Alex
I forgot neck pain, stiffness
and hard time staying focused