Thanks so much for your thoughts Sumanadevii and macaroni. I appreciate the honesty and your sharing. And yes macaroni - It was suggested I may have subclavian steal syndrome. I think this has been good for me to share today - it has spurred me to MOVE - I went to the Y and had a workout - not easy - but at least I did SOMETHING - and I am going to get a referral to a local MS specialist and ask him about the SSS issue. Thanks for understanding my need to vent.
And Sumanadevii - glad my ? re exercise giving energy gave you a laugh. I also have great fatigue - with my arms and legs - arms are worse - it comes and goes though. It's not constant. This is one of the hardest things for me - knowing what to expect from day to day and wondering if I'll feel like doing anything.
Happy holidays! Thanks again for your help.
You can push yourself, wiggles, but MS is going to do what she wants. I found your question about exercising and does it help the fatigue humorous. How can you even think about exercise if it is real fatigue. Unless I experience it much differently than you, my arms and legs feel like there are a hundred extra pounds on them. I can't lift a cake from the oven. I can barely hold my toothbrush. I am speaking of "fatigue"! Now it is not this severe all the time but when it takes hold? I do all I can to conserve and use my energy wisely. Exercise would the last thing on my list.
Yes, my little friend, I think you are in denial. None of us want to be here yet we found ourselves in this MONSTER. We each fight it in different ways and denial is one. Mine is anger. I still get angry that it happened to me. In fact, I am insulted that the universal energy used ME as its host! I wanted to do so much more...so sooo much more...Why not pick on some lazy old woman that would enjoy lounging around? But NOOOOOOO, I was chosen.
Yea, acceptance. I try. I know you do. We just keep trying to get there...
I think that it would be a good idea to follow up on your provigil prescription and see if it helps you, there is no reason to suffer if you don't need to.
Also, was it you that was also given a different diagnosis in addition to MS? A diagnosis that affects your blood pressure on different sides of your body? Did you follow up on that? I wonder if that would affect your energy levels as well, just a thought.
Acceptance is a good thing. I think that once one accepts what it is they have to deal with then they can more easily tackle the situation. Denial is what keeps us from moving forward, though denial does protect us from reality at times when we need a bit of a break.
Be kind to yourself.