The Weiner Roast is great, and I appreciate those who are sharing their stories. I don't feel so alonennow :)
In that same thread, I read of one doctor who came to his patient's defense and helped her get away from her horrible neurologist. So, I think it would also be a good idea to acknowledge the good ones too, to give us hope that there are kind, compassionate doctors and other medical personnel out there too.
I will post about mine tomorrow as I have GOT to get to bed.
Thank you again everyone for sharing your experiences.
My MS doc is Saud Sadiq. He,quite simply, is amazing. His International MS Management Practice in NYC is comprehensive MS care under one roof; Neurologists, Neuropsychologists, Physical Therapists, Psychologists, Infusion Center, MRI Center.
At the head of all this is Dr. Sadiq. My first appointment lasted 3 hours. My second lasted 2 1/2. I have his cell phone # and he responds to messages promptly. The man and his practice are beyond amazing :-)
I still don't have a diagnosis, yet I believe I have a good neurologist finally. Of cours , we'll see if he is so nice after February 12th.
The reason I say he is great is because he spent a long timewwith me during our initial consultation. He said that I present for MS but sometimes the body doesn't give enough information right away. He said we would figure out what is going on with me.
I likehim a llot as of right now. He is at least at the moment, committed to find out what I have.
I hope those of us searching for answers get them soon.
The best docs are the ones who can stop, take time to listen to the person sitting on that exam table, and work together to piece together the puzzle and the treatment. My MSologist is great and I wouldn't trade him in for a newer model, but he is also busier than he should be and for new patients it can take patience to wait to see him. He still has 30 minute appointment times for those of us already diagnosed and will take longer for people not yet diagnosed or when he has to break the bad news.
There is a shortage of good neuros and those of us who have good ones are fortunate.
My MS doctor is Samuel Hunter at Neuro Sciences Institute in Franklin Tennesse. he has also been amazing! After months of being seen by a regular neurologist who told me that I couldn't possibly be having the problems I was having and would not prescribe anything for relief-He finally referred me to Dr. Hunter to get rid of me when I pushed for answers.
My first appointment with Dr. Hunter lasted 8 hours and was unbelievabily thourough! (My other doc only tapped my knees with a hammer and had me touch my nose). My second appointment was nearly all day too. I had a 3T MRI and a spinal and also took a cd of my previous MRI. I was diagnosed that day. He showed me the lesions on the first MRI and the 3 T. It was there all along, but the radiologist and Dr. did not see it.
He also treated my symptoms right away, he nor his staff ever hurries you and makes you feel like your the only patient in the world. His office always calls back promptly with any questions or concerns I have.
He told me that his goal is to stop the progression and make me feel as "normal" as possible. I reccommend everyone see an MS specialist that thinks they may have MS. if you live within 200 miles of Nashville, he would be a great choice!
Sorry this all runs together! If I'm not being graded for correct sentence formation, etc.-I'll let it ride like this! Lol
I actually live about 15 miles outside of Nashville. I like my current neurologist, yet I am having a difficult time getting his office coordinated with the hospital that administered my LP back on December 7th. Still no results! If Dr. Hunter accepts my insurance, I may end up going there.
My first neurologist visit was to an MS Specialist in Nashville, butI oonly saw himffor about 10 minutes, and he said I would be all better if I took a muscle relaxer at bedtime. Not going to get into all of my history, but basically my right side is a mess and my vision went bad suddenly this past Summer.
I have known a few good medical people over the years but the one that first springs to mind is my GP (family Dr), he's very old school and makes an effort to go out of his way for his patients. He's not afraid to be honest, apologise or admit he doesn't know the answer when he's stumped and he's always up for a laugh, cuddle or kiss on the cheek, they just don't make Dr's like him any more! [3 cheers for Dr D]
I had a Psychiatrist who saw me free for years. He figured out I had MS and was not mentally ill. He got me in with the good pain clinic. He also came and sat with me in the hospital one Saturday when I had the cancer surgery. He closed his practice sadly.
My Primary Care Doctor and Gynecologist both apologized for not figuring out my cancer. They have been great support. They call and check on me. They see me quickly if I need either of them. Sometimes they just talk to me about the cancer.
My MS Specialist is a great guy. I only see him every 12-16 months.
My pain clinic is great. They really care about my MS and Cancer. I love the PA over there. They think outside the box. I am on way less medication.
My oncologists are not very nice but I guess they just aren't. If they thought of you as a person their job would be harder. The one saved my life so I guess he does not have to treat me kindly. May be the Breast Oncologist will be okay.
My pain management group is great, too. They treat the "whole" person, meaning providing not only medication, but physical therapy and a psychologist as well as other alternative treatments.
Truly, I don't particularly care if the doctor is "nice," but what I would like is to have someone who isn't quick to throw out the "stress," "its all in your head," or "if you would lose/gain weight" because he or she doesn't know. Simply tell me you don't know and at least suggest a direction we can follow. I guess it is difficult for some people to admit that they don't know, so rather than admit to that, hey, blame the patient!
I am so glad you have had such a great team overall!
I have a good answer to this and a bad one. I have Medicaid, which is a long unfortunate story and a shock to my being, but, anyway, it means I don't get much health care. I had a neurologist come to my room when in the hospital for something else, and state that I had a "slam dunk case of MS" and for me to look at these meds, decide which I wanted and make an appt with her. Then she walked out. I was quite surprised because I didn't have a clue that I had MS. Yes, I had had multiple neurological problems and had seen several different neurologists who never tested anything but the site where my symptoms were. i.e. I had Trigeminal neuralgia and was given pain meds, I went numb somewhere and I thought nothing of it. I had a hot burning sensation on the left side of my face only - that was wierd and I mentioned it to my doctor, but he just shrugs. I had been diagnosed with Systemic Sclerosis, so he thought everything that happened to me was related to that. Thank goodness, I had had MRIs over time and also LPs looking for answers, so they were able to see the progression and confirmation of MS just by looking at all the tests. It fit with the clinical picture, but it was clear to them anyway. This is where I insert my speech that (just because you have one diagnosis - autoimmune, or other - doesn't mean you can't have others - lots of others! lol) THAT neurologist was nice enough, but oh my - she was NO help. Because I have so many other diseases, she said she wouldn't be able to tell which symptom was caused by which disease. She said I needed a specialist, but again - can't go - so she ended up saying "you need fairy dust sprinkled on you". So I never went back.
My Internist, bless his heart, has to manage everything. I don't have other specialists willing to see me due to the medicaid. So he has to be my Endocrinologist, Neurologist, Rheumatologist, and Pain Management Dr., I do have a Gastroenterologist who I see when I'm in the hospital, and a pulmonologist, who I also only see when in the hospital and occasionally cardiiologist. I don't have an orthopedist for my spinal problems which may become unbearable, but the doctors don't have to take you if they aren't going to get paid enough. My urologist and ENT haven't been needed for a while - yea.
So, I say my Internist, Dr. Palazola, is an angel of a man to put up with me. He calls me "unfortunate", which makes me laugh. He figures I'll skip purgatory completely and shoot straight to heaven (he's Catholic). I know I'll go straight to heaven. But this guy listens and is willing to try things that I come up with etc. Not many are like him, and I'm afraid the system is going to push the good ones out. Hopefully not all of them. I'll try to stay positive.
Just went to the Hereditary Breast Doctor and she was amazing. She really new her stuff and had looked at my chart and really cared. I am going to like seeing her! Her team even cares about my husband and how he is doing. She makes my Ovarian Doctor look like an ***.
Love these guys but should we be posting their names? The posts are google-able from anyone and we might be clogging up their switchboards (grin) I know mine has stopped seeing walk in's, now he wants to see your medical records then will decide if he can see you, he's picked up so much business from referrals..........
Oh, I certianly didn't intend on people listing names, just positive experiences. So many of us have had bad ones, that reading something postive for a change might give some people (okay, me!) some hope. I may stick with my current neurologist, might not. As noted before, I don't particularly care about bedside manner, just "Git 'er Done!!!"
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