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The Good, The Bad, The Ugly...
The Good..I liked the MS specialist I went and seen yesterday at CC. He was very nice and made me feel comfortable. He listened to my full neurological history and was very interested in the whole picture. I looked up some info on him prior to my visit and he had credentials out the yin yang to say the least. He has wrote extensive medical papers on MS (one I thought was particularly interesting was about how MS can occur in ANY age group).
Quix...I quoted you...saying that most doctors believe MS but when they get to the MRIs, they are hesitant. After he spoke with me for a good 30 minutes..he did the neuro exam. He saw abnormalities. My left eye was drooping again. I had weakness in my left side. My left toes would not bend up. I had barely a reflex on the right knee..and a hyper reflex on the left knee. I was a mess yesterday and was not walking good. On the paper work that I got to glance at he referred to it as abnormal gait.
He closed the appointment with saying that MS is a possibility but my MRIs of my spine are horrible on the 1.5T. He want to repeat them on a 3T because he believes there is where the answers lie. He also ordered a few more blood test to check for some rare and strange diseases that might be causing the problem. He also ordered a Western Blot Lyme blood test. I've had the Lyme test before but maybe not the Western Blot. I go back New Year Eve for my MRI of my c-spine and t-spine and my appointment with him. He will go over my blood test and results of the MRIs that same day.
The Bad... I had my ultrasound of my ovary today. It didn't look good. I'm no radiologist..but I know what an ovary looks like...and that thing look like somebody ran my ovary over with a mack truck. I think surgery is in my near future, which isn't good considering the blood clots..my kids are in school...the doctors want to keep me in the hospital for 4-5 days..etc..I was only suppose to have one type of ultrasound (trans-vaginal) and ended up with both types so I know something was wrong. The cyst ran from my corner of my pelvic to the middle of my abdomen..so here we go again.
THE UGLY... I scared myself today. I'm not sure what happened. I was hot and maybe that was the cause. It was warm here. I was cold earlier today and I had on jeans and a sweat shirt. I had trouble walking and noticed my left leg was tremoring before my appointment. After my appointment, I got in the car..cracked the windows to let some air in and started to take off. I was hot. When I pulled out on the road, I became confused and for a couple of moments could not remember what side of the road your suppose to drive on.
I pulled in to another parking lot and freaked. The first thoughts that ran threw my head were...Did I throw a clot? Do I have a brain bleed? Is it because I'm hot? I watched other cars go by to see what side they were driving on. I called my husband. He freaked. I turned on the air conditioner. I started crying because I've never done something like that before. I mean, my body hasn't worked right in the heat but not my thinking but I was thinking straight about some stuff..but not something as basic as what side of the street your suppose to drive on. As soon as I composed myself and convinced my hubby I could make it since I cooled off, I drove home...I just don't know what happened. Any ideas? Was it the heat since it went away when I cooled off? I had trouble earlier doing math...I'm usually really good..I had to get a calculator over something basic. What the heck is going on?
Quix...I quoted you...saying that most doctors believe MS but when they get to the MRIs, they are hesitant. After he spoke with me for a good 30 minutes..he did the neuro exam. He saw abnormalities. My left eye was drooping again. I had weakness in my left side. My left toes would not bend up. I had barely a reflex on the right knee..and a hyper reflex on the left knee. I was a mess yesterday and was not walking good. On the paper work that I got to glance at he referred to it as abnormal gait.
He closed the appointment with saying that MS is a possibility but my MRIs of my spine are horrible on the 1.5T. He want to repeat them on a 3T because he believes there is where the answers lie. He also ordered a few more blood test to check for some rare and strange diseases that might be causing the problem. He also ordered a Western Blot Lyme blood test. I've had the Lyme test before but maybe not the Western Blot. I go back New Year Eve for my MRI of my c-spine and t-spine and my appointment with him. He will go over my blood test and results of the MRIs that same day.
The Bad... I had my ultrasound of my ovary today. It didn't look good. I'm no radiologist..but I know what an ovary looks like...and that thing look like somebody ran my ovary over with a mack truck. I think surgery is in my near future, which isn't good considering the blood clots..my kids are in school...the doctors want to keep me in the hospital for 4-5 days..etc..I was only suppose to have one type of ultrasound (trans-vaginal) and ended up with both types so I know something was wrong. The cyst ran from my corner of my pelvic to the middle of my abdomen..so here we go again.
THE UGLY... I scared myself today. I'm not sure what happened. I was hot and maybe that was the cause. It was warm here. I was cold earlier today and I had on jeans and a sweat shirt. I had trouble walking and noticed my left leg was tremoring before my appointment. After my appointment, I got in the car..cracked the windows to let some air in and started to take off. I was hot. When I pulled out on the road, I became confused and for a couple of moments could not remember what side of the road your suppose to drive on.
I pulled in to another parking lot and freaked. The first thoughts that ran threw my head were...Did I throw a clot? Do I have a brain bleed? Is it because I'm hot? I watched other cars go by to see what side they were driving on. I called my husband. He freaked. I turned on the air conditioner. I started crying because I've never done something like that before. I mean, my body hasn't worked right in the heat but not my thinking but I was thinking straight about some stuff..but not something as basic as what side of the street your suppose to drive on. As soon as I composed myself and convinced my hubby I could make it since I cooled off, I drove home...I just don't know what happened. Any ideas? Was it the heat since it went away when I cooled off? I had trouble earlier doing math...I'm usually really good..I had to get a calculator over something basic. What the heck is going on?
I'M REALLY GLAD YOU SEEN A GOOD MS SPECIALIST AT THE CC.
I KNOW MANY HAVE HAD DIFFERENCES WITH DRS. AT THE CC. I SEE 3 FROM DIFFERENT DEPARTMENTS THERE.ONLY ONE WAS A JERK.
THE HEAT INTOLERANCE NEEDS REPORTED AND DOCUMENTED TO ONE OF YOUR DRS.
I DISLIKE SEEING ANYONE DEALING WITH SURGICAL PROCESSES,BUT IF IT GIVES A BETTER QUALITY OF LIFE,THEN ITS ALL WORTH IT.
YOUR DRS. SEEM TO BE GETTING THE BALL ROLLING AND THATS A PLUS FOR A DX
HUGS
T-LYNN
I KNOW MANY HAVE HAD DIFFERENCES WITH DRS. AT THE CC. I SEE 3 FROM DIFFERENT DEPARTMENTS THERE.ONLY ONE WAS A JERK.
THE HEAT INTOLERANCE NEEDS REPORTED AND DOCUMENTED TO ONE OF YOUR DRS.
I DISLIKE SEEING ANYONE DEALING WITH SURGICAL PROCESSES,BUT IF IT GIVES A BETTER QUALITY OF LIFE,THEN ITS ALL WORTH IT.
YOUR DRS. SEEM TO BE GETTING THE BALL ROLLING AND THATS A PLUS FOR A DX
HUGS
T-LYNN
Your UGLY episode needs to be reported to your docs. If the symptoms coincided with you being hot - were you? - and the resolution coincided with cooling off, then heat intolerance sounds like an answer. But, I still worry about things like a TIA.
GOOD - Yes! This guy sounds like the kind of doc that will look for answers and be skilled and smart enough th see them. And , you KNOW I giggled when he made the issue about the 1.5T.
BAD - Do you really really want those ovaries??? lol. What a pain and I, also, would be loathe to put you under the knife again, especially knowing that the whole thing could occur again. I gave up my ovaries at 41. I really fear ovarian Ca. But, that's just me.
I think you are making progress, kid.
Q
GOOD - Yes! This guy sounds like the kind of doc that will look for answers and be skilled and smart enough th see them. And , you KNOW I giggled when he made the issue about the 1.5T.
BAD - Do you really really want those ovaries??? lol. What a pain and I, also, would be loathe to put you under the knife again, especially knowing that the whole thing could occur again. I gave up my ovaries at 41. I really fear ovarian Ca. But, that's just me.
I think you are making progress, kid.
Q
I am so sorry about the ovarian problems. How heartbreaking for you to have to deal with two problems.
Concerning the instant menopause, please read on the internet about hormones and MS. Testosterone seems to help with men with MS, and estrogen with women and MS. You could check with the neurologist at the next appt.
Good Luck. Please let us know when you find out and I will keep you in my prayers.
Elaine
Concerning the instant menopause, please read on the internet about hormones and MS. Testosterone seems to help with men with MS, and estrogen with women and MS. You could check with the neurologist at the next appt.
Good Luck. Please let us know when you find out and I will keep you in my prayers.
Elaine
To make a long story some what short...
I started feeling lower abdominal pressure pain in May of this year on the left side. I was also having trouble going the bathroom. I was also have a feeling of bloating...(I don't have a uterus because of a hysterectomy so I knew something was up). Eventually I developed a large hemoraging ovarian cyst and I ended losing my left ovary.
A few weeks later after my surgery, I started getting the same lower abdominal pressure pain again and I went back to the doctors. They did an ultrasound and confirmed that I developed another ovarian cyst on my last, right remaining ovary. They wanted to see if it would go away on it's own.. (it didn't)..and several months ago they gave me a Deprovera shot to see if it would shrink the ovary...(My best guess after today is that it didn't)...so now, according to my doctors, the only option is the removal of the ovary and cyst and that means instant menopause for me.
I started feeling lower abdominal pressure pain in May of this year on the left side. I was also having trouble going the bathroom. I was also have a feeling of bloating...(I don't have a uterus because of a hysterectomy so I knew something was up). Eventually I developed a large hemoraging ovarian cyst and I ended losing my left ovary.
A few weeks later after my surgery, I started getting the same lower abdominal pressure pain again and I went back to the doctors. They did an ultrasound and confirmed that I developed another ovarian cyst on my last, right remaining ovary. They wanted to see if it would go away on it's own.. (it didn't)..and several months ago they gave me a Deprovera shot to see if it would shrink the ovary...(My best guess after today is that it didn't)...so now, according to my doctors, the only option is the removal of the ovary and cyst and that means instant menopause for me.
Wow, a good doctor at CC!!! I am glad to hear that someone took your concerns seriously and will help you. Lulu is right...December is not that far away.
About the cyst, what kinds of problems did that cause to alert you to it?
Concerning the heat, Craig got lightheaded and felt faint when he drove on hot days this year, and had to cool off the car before he could drive it.
Best wishes with your future tests.
Elaine
About the cyst, what kinds of problems did that cause to alert you to it?
Concerning the heat, Craig got lightheaded and felt faint when he drove on hot days this year, and had to cool off the car before he could drive it.
Best wishes with your future tests.
Elaine
Hi SB,
for the UGLY, please be sure to let your doctors know about the problem - you may have something else neurological going on that needs to be looked at.
The BAD - the cyst sounds bad and so does a legthy hospitalization but what else are you going to do? If it needs to come out surgically then that's what you'll have done because you have those kids and the future to think of as well as the present.
The GOOD sounds great - I am so glad he was accomodating to you and listened to your full story. What a beautiful day to make the trip to CC.... December is not that far off - the time will fly before you know it you will be back up there for the additional tests.
I'm happy for you - enjoy these last days of Indian Summer!
Your neighbor,
Lulu
for the UGLY, please be sure to let your doctors know about the problem - you may have something else neurological going on that needs to be looked at.
The BAD - the cyst sounds bad and so does a legthy hospitalization but what else are you going to do? If it needs to come out surgically then that's what you'll have done because you have those kids and the future to think of as well as the present.
The GOOD sounds great - I am so glad he was accomodating to you and listened to your full story. What a beautiful day to make the trip to CC.... December is not that far off - the time will fly before you know it you will be back up there for the additional tests.
I'm happy for you - enjoy these last days of Indian Summer!
Your neighbor,
Lulu
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