Thinking back "What were your presenting symptoms?

Just curious. :)

[Sumanadevii]

Lower back pain...like a raw open exposed nerve

[figuerpa]

vertigo, and parasthesia

[HVAC]

When I was 2 1/2  in 1965 permanent double vision and trouble swallowing due to lesion on brain stem.

[RedFlame]

L'Hermittes, numb chin, dizziness, couldn't taste,

[ANonnyMouse73]

Numb patches on my toes and feet.

[Willowwoman777]

weak legs, balance problems, bone crushing fatigue, brain fogs, on

[LATW]

Optic neuritis, weakness in my right leg, debilitating fatigue

LA dx'd 2008

[michelleric]

I had horrific sporadic facial/scalp pain for the last 7 years or so.  It was very infrequent episodes for the 1st 5 years, and then really changed for the worse in the last 2 years. Turned out to be trigeminal neuralgia with some other neuralgia's mixed in.

I had Optic Neuritis about 2 years ago, and that was the 1st symptom that got me worked up for MS.  That was in 2008.
Michelle

[LATW]

I had basically your same situation.  I had espisodes of Trigeminal neuralgia for several years, but nothing else  until ON hit.
LA

[JemmAus]

Migraines, the a single seizure then vertigo/balance issues.........but if i look way back ten years I had attacks of dizziness and muscle spasms that I think now may have been the true start.

[COBOB]

I went blind in my right eye.  Optic Neuritis.

Bob

[supermum_ms]

I'm not sure what came first, odd things have happened and resolved for 20 years, if I look back I can work out things that was no big deal when I first noticed something but is a big issue for me now. One example, (possibly first), I started having periods of blurry vision, It would last a few days and go away again. I was told i read too much, (strange but true) I didn't do more or less than before so I couldn't work it out. Nothing was picked up during eye tests, my sight was perfect!

It progressed to having trouble focusing and sometimes i would be caught staring in to space, that led to having my toncils out at 29. Thoughts at the time were that the persistant toncilitus through out my life was now poisioning me, yes no toncils and still I was having issues with intermittent blurry visson and trouble focusing, though my sight was always perfect when tested so there was no concern.

Fast forward through the years and i'd added quite a lot more issues apart from my sight, they too would come and go, always a little worse than the time before but they went away and no dr had a clue. A couple of years ago, for the first time the optometrist picked up a problem, I now had a pale optic disk in my right eye, my sight was still perfect, though light sensetivity was worse than the test prior, pressure normal etc so thought to be early glacoma, i didn't get told, it was just noted in my chart.

The last test I had at the same clinic but different optomitrist, was only a few months back, and i've now been dx with unilateral adult acquired Nystagmus (MS related), diplopa which is double vision (MS related), significant unilateral deficit, unilateral pale optic disc (ON = MS or glacoma = not) and cork screw ocular veins (??). Now that I know I have a pale optic disc, and with my eye pain and everything else, ON is the more logical explanation, where as for it to be early glacoma and totally unrelated to anything else and even presenting in an inconsisten fashion to glacoma, would not be logical.

From my perspective, an early sx progressed through the years but is only now detectable, so now the damage is there for all to see (pardon the pun), not just me saying this is happening, its finally proven and now that 15+ year old complaint is validated and neurological in causation lol.

Cheers..........JJ

[cainer]

a nightmare!  i went blind- but balance was way off before that-

[johnniebear]

left eye pain,  Optic neuritis  was  never confirmed and  minor balance problems,

It all started in March 2008.


Johnniebear