Tired

[sapid]

Oct 2002, I had vertigo and slurred speech, my lips had a numb sensation and my tounge felt fat,that lasted 2 weeks. Aug 2003 tonic spasms in both legs, off and on for 2-3 weeks. Few months later I had difficulty walking straight and fatigue started to set in..I am usually ADHD, 120 miles an hour. Nov 2005 vision changed suddenly with sensitivity to night lights and moving objects,I started to withdraw because I started having a difficulty time following a conversation. Simple calculation became difficult and I quit reading because I can not remember what was on the last page. Started loosing strength in my hands first, then in Sept 2005 I started having tremors in my hands and over shooting when trying to reach for an object, cant get the key in the key hole with out bouncing all over the place, legs go from rubber to cramped depending on the day, pain everywhere.Do not usually have headaches but latley I am experiencing pain in my neck ringing in my ears.Lupus Anticoagulant Disorder runs in my family, I was adopted a birth, how important is this information to me??  HELP

[Heather3418]

I was also adopted at birth.  When you talk about Lupus being in your family, are you talking about in your adoptive family?  If you are, Lupus is probably genetic and you are not suspectible to it, just because you lived with a family that has it.  My son-in-law has Lupus and so does his sister and an aunt on his father's side.

I have Multiple Sclerosis but have not found out if there is any MS in my birth family.  Have only found one blood sister, out of 7 siblings...so I really don't know much about my true genetics.  Birth mother and father are already deceased.

You should be over your Methadone withdrawal by now.  You should NEVER abruptly stop taking Methadone.  But by now, you should not be having any symptoms of withdrawal.  This is one reason I will not take Methadone for my constant pain.  I don't want that awful stuff.  It IS "UGLY" as you say.

Looking forward to your answers about your adoptive family....

Hang in there, Heather

[sapid]

I have seen a Neurologist and I take Copaxone inj. for MS.  My Lupus came back neg. but do I understand correctly that Lupus can take years to show up?   My family suffers from Lupus Anticoagulant Disorder, could this be part of the problem? I do not like being on pain meds so I quit my Methadone Oct 10th, how long until the aches and chills go away. That Methadone is UGLY.  My neck is spasming and my brain feels swollen, not a, "Headache" this is different.  I slept 13 hours and I am weak and exhausted and hurt all over.  How does someone test for Crytococcosis-fungal infection that occurs in Immune deficiant people? How do you tell if it is MS or Lupus or some other Neurological Inflammatory Disease?  My sister is having the same problem and they are telling her it is not M.S...Confused and lacking faith in NEUROLOGISTS

[TonkaSpirit]

Hello,
Have you seen your doctor with these concerns?  Write down your time line and symptoms and ask to be tested for the many things that may be the cause.  Have you been tested for Lupus?  I think it is done by a simple blood draw.  I was tested, but I can't remember how it was done.  I hope you are feeling fine now as your timeline goes through 2005.  Have you experienced any traumatic injuries that would explain?  We are here to listen and to try to help.  Please don't ever feel alone.  There is much support and understanding here.
Terrie